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Author Topic: Taste and Eating habits  (Read 18413 times)

Boppie

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Re: Taste and Eating habits
« Reply #15 on: November 13, 2007, 05:10:23 pm »
Confused taste information is temporary for most AN patients, post treatment.
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Catflower

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Re: Taste and Eating habits
« Reply #16 on: November 13, 2007, 05:16:04 pm »
Although the real metallic taste has gone away I'm finding that nothing tastes the same as before surgery.  I do still have some numbness on the right side of my tongue.
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nancyann

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Re: Taste and Eating habits
« Reply #17 on: November 13, 2007, 06:29:04 pm »
I have NO numbness; in fact, when I accidentally bite my tongue or cheek or lips because of the paralysis, boy do I feel it.  Guess the sensory part of my nerve works, just not the motor part....   weird, huh?
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

lori67

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Re: Taste and Eating habits
« Reply #18 on: November 13, 2007, 08:23:51 pm »
Sounds perfectly normal to me!  It seems like my tongue is numb on the one side, but I woke myself out of a sound sleep the other night when I bit it!    Guess it's not as numb as I think it is!  Too bad - that really hurt.   :-\
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

4cm in Pacific Northwest

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Re: Taste and Eating habits
« Reply #19 on: November 13, 2007, 09:25:33 pm »
12 weeks tomorrow I can now and “yes - I have some taste improvementsâ€?. :)  I even had a spot of tea and it was actually palatable. Raw apples taste weird however tonight I managed baked apple pie mmm... chocolate (ok I am back in there ::) ) but coffee blahh  :P... grapes –  :P   :P double bluchhh...

Must be the tannins or something… no wine tasting tours for me this upcoming Thanksgiving weekend

So you are right there are improvements happening there ... and I did not pay much attention until Nancy mentioned this...

Cheers,

4


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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

nancyann

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Re: Taste and Eating habits
« Reply #20 on: November 14, 2007, 05:41:51 am »
Hi 4 - Last week I couldn't get enough apples!!   2 weeks before I didn't have any taste for them (go figure).  The funny thing about my taste is I can taste (somewhat) vegetables & fruit, but NOT meat!!!   I miss my steak, burgers & frankfurters!!!!   Is the universe trying to tell me something?    For lunch today I've made broccalli rabe (bitter broccalli, something I hated as a kid!).
Always good thoughts,  Nancy
ps:  Lori:  Isn't that something!!!!
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Catflower

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Re: Taste and Eating habits
« Reply #21 on: November 14, 2007, 10:40:17 am »
Quote from: nancyann on November 14, 2007, 05:41:51 am
Hi 4 - Last week I couldn't get enough apples!!   2 weeks before I didn't have any taste for them (go figure).  The funny thing about my taste is I can taste (somewhat) vegetables & fruit, but NOT meat!!!   I miss my steak, burgers & frankfurters!!!!   Is the universe trying to tell me something?    For lunch today I've made broccalli rabe (bitter broccalli, something I hated as a kid!).
Always good thoughts,  Nancy
ps:  Lori:  Isn't that something!!!!


I went through the same thing with red grapes.   For a few weeks I couldn't get enough of them and now I'm not wanting them at all.

Linda
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nancyann

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Re: Taste and Eating habits
« Reply #22 on: November 14, 2007, 01:54:48 pm »
Linda - isn't it the funniest thing?  I wonder if our bodies NEED the nutrients & make us crave certain foods.  I never CRAVE chocolate, it's like Pavlov's dog - I remember the taste & want it again, especially in times of stress.....
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

lori67

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Re: Taste and Eating habits
« Reply #23 on: November 14, 2007, 02:27:01 pm »
I'm pretty sure my body NEEDS the chocolate!  I think it helps ensure the safety and happiness of those around me!   ;D
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

justpens

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Re: Taste and Eating habits
« Reply #24 on: November 14, 2007, 05:22:02 pm »
I'm almost 4 months post op, and my taste is terrible.  Mainly a bitter taste that I can't seem to mask.  Food tastes ok while I'm chewing, but then right after is the awful taste.  I, too, keeping eating to cover it up.  I told my doctor and all he said was"interesting".  I started to wonder if there isn't another health problem, not from my AN.  But the coincidence of it starting after I had surgery seems too much of a stretch.  I've tried the dry mouth toothpaste and the zinc tablets and the listerene strips.  Some days it really gets to me.

justpens
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4cm in Pacific Northwest

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Re: Taste and Eating habits
« Reply #25 on: November 14, 2007, 07:37:06 pm »
justpens,

Nah the taste is all tied into the facial nerve...

I thought it might be how they filled the craniotomy hole (metal heads vs fat heads) but I was proven wrong after reading up on it more. It is tied into the cranial never that control the face and tongue.

Today I had the 3 month follow up MRI with contrast ... talk about metallic taste  :P after the contrast injection.


MMMMM the chocolate coated M & M peanuts left over from Halloween seems to be the perfect medicine MMMM post MRI metallic mouth....MMMMM

Quoting you
“ I told my doctor and all he said was "interesting ".�

Well of course he has no idea – being that he has probably never had a craniotomy or a GK zap himself. LOL  :D  ;D

I was told at my first MRI that I would “not feel a thing� … yet I always do. I swear I can feel it when they are zooming in on that spot between the brainstem and the cerebellum. I also get this weird eye twitching in my AN side (now palsy side) . They know something but just tell us patients, “interesting� …


Did you try the Biotene stuff that someone recommended on another thread? (I think it was boppie)
http://anausa.org/forum/index.php?topic=5131.0


Cheers,

4

P.S. MMMM you should try these M & M  MMMMMM’s (no way I could have eaten these 2 months ago- oh these are good! MMMMMMMM :D ;) :)
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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

Soundy

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Re: Taste and Eating habits
« Reply #26 on: November 15, 2007, 08:05:02 am »
Still having taste issues  but tongue is no longer numb.... and have a couple spells where the 
saliva glands have gone wild and almost drowned me in spit instead of mouth being so dry that
it hurts...so I am hoping more improvement comes along...

as to cravings ..... red grapes... odd since they are one of those things that I can
usually take or leave ... but lately I have to have them.... and granny smith apples...
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3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

marg

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Re: Taste and Eating habits
« Reply #27 on: November 30, 2007, 09:28:17 pm »
Hi Soundy,
   I have had the crazy saliva glands too.... and the first time it happened I was in front of my class teaching................ ::)  boy was that an experience.... it lasted about  5 - 10 minutes..... It has happened a few times now and I just keep thinking the same thing as you.......... must mean that the nerves are healing up.... but I sure don't want to flood my classroom  ;D .

     I also had one thing that I craved for about 7 weeks after surgery .....root beer floats.........it was the ONLY thing that tasted the same.  I am not going to tell you how many of those I had ( ok I will ...... enough that I probably should have gone to root beer annonomous ).  I am over the major crave now so only have one every once in a while.... probably because even though some foods don't taste the same...at least I'm not dealing with the metal taste in my mouth as often.
Margaret
« Last Edit: November 30, 2007, 09:38:15 pm by marg »
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Marg 
 4 mm  AN removed .. middle fossa   5/07 OHSU  Dr. Delashaw
AN scraped off facial nerve & balance nerve removed
 MRI  follow up showed AN gone ... thank you God
Some facial paralysis- . SSD weeks after surgery.  Trans-Ear Nov.2007 ... it really helps !

Soundy

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Re: Taste and Eating habits
« Reply #28 on: December 01, 2007, 07:15:00 pm »
I think I wanted grapes and the apples because they tasted right...

Driving down the road my daughter gave me a square of a Hershey's bar... it
tasted really bad... some things seem to bring out the metallic taste more...I
am glad I am an odd ball that doesn't particularly like chocolate...

right now dry mouth is a big problem...yesterday , to show my youngest just
how dry it was ,I pinched the corner off a square of toilet paper and put it on my
tongue and it just slid off... you wouldn't think being dry would hurt but it does
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3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

marg

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Re: Taste and Eating habits
« Reply #29 on: December 02, 2007, 12:43:29 am »
Wow, I haven't had the dry mouth at all...didn't even know that that was something that could come from this 'wonderful AN recovery' experinece.  Hope it gets back to normal for you soon.... I think I'd rather have 'gusher saliva' and deal with that. 
Margaret
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Marg 
 4 mm  AN removed .. middle fossa   5/07 OHSU  Dr. Delashaw
AN scraped off facial nerve & balance nerve removed
 MRI  follow up showed AN gone ... thank you God
Some facial paralysis- . SSD weeks after surgery.  Trans-Ear Nov.2007 ... it really helps !
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