Dear Alwaysanonymous,
Having read both of your posts I would like you to know that I think you are a pretty amazing young person!!! You are definitely a positive example for all of us to follow.
In regards to your question. In your research it might help to type in "spontaneous Acoustic Neuroma", this basically means non NF Factor.
I also asked the doctor many questions regarding inheriting issuses. 3 family members all have a different brain related medical problem. The best answer that we were given is "recessive genes"
One of the leading centers for treatment of Acoustic Neuroma's is The House Ear Clinic in LA.
www.houseearclinic.com. I'd seriously consider contacting them with your questions. They have/are doing alot of research and might be able to assist you.
Again thank you for posting and sharing your AN journey
Raydean