nerve regeneration ?

[satman]

hey everybody, I have a question ,Most of you know my story but to make
a long story [a real long story] short .I had the cranial nerve jump back in august
and lately I have been feeling some weird things going on in my cheek and I'm
not sure what it is. It feels like a rubber band or something snapping me.
It's hard to explain the exact feeling.
Has anybody ever felt this ,and if so what is it ?

[Jeanlea]

I think this is good news.  I think it means the nerves are beginning to work.  I've had similar feelings, almost like getting an electrical shock, as my face has been healing. 

Jean

[satman]

thanks jeanlea , thats close to the feeling ,it,s alost like
I'm getting popped with a rubberband or something.
when you got it how long before you noticed movement ?

[4cm in Pacific Northwest]

Hey Super Duper Trooper “8� Satman,

Sounds like you have “Facial synkinesis�
Here is the definition
http://www.answers.com/topic/facial-synkinesis?cat=health

Read what the ANAC (Canadian AN group) says about the facial nerve

Go to this link
http://www.anac.ca/en/dischargeTreatment.shtml

Then Click on “Facial Nerve Information� link

Here are a couple of similar threads on our own ANA forum
http://anausa.org/forum/index.php?topic=5084.msg47996#msg47996

(I am thinking that these sensations are a “good� thing. I think you and “Yardtick� should have a celebration and serve up carrots sticks at AN forum party… here

Read this one (re Yardtick’s post)
http://anausa.org/forum/index.php?topic=5152.0

I had this weird lip twitching and now I can purse my lips, blow kisses  and even drink from a straw now (this was around 4 weeks post op) … unfortunately since then I have not had, facially, anything exciting happen and still have the full facial palsy here at 8+ weeks.

When I DO start to get the nose twitches and cheeky rubber band snapping -I plan to have a big ole celebration here on our ANA forum.

The key is to talk   about this, don’t get depressed about it  … and try to maintain a sense of humor.  Laughter can be amazing medicine.

Bring on the rabbit nose twitching… start prepping the carrot sticks…LOL

Signed the impatient patient 

“4�

[Jeanlea]

Hi Satman,

My nerve was not cut during surgery even though I had total paralysis on one side afterwards.  I started feeling the "shocks" right after surgery, but I didn't have any movement until three months after surgery.  My first movements were only measured in millimeters.  Now I'm 25 months post-surgery and have a decent smile.  I still get the twinges so I hope I will still gain more movement.  Sounds like you are on the right path.  I wish you good movement in the months to come. 

Jean

[4cm in Pacific Northwest]

Jean,

Oh I like reading these stories... SO pleased to read you are smiling

Bring on the "twinges"

"4"
(The impatient patient)

[deea]

Same thing here..about 8 weeks post op.  Every time I get a facial "tingleing" or little electial shocks I seem to get a little more movement back.  Immediately after surg. I had no movement but it improved quite rapidly with facial exercises, except for my mouth, which has improved but at a little slower pace.  I had dry eye for about the first 5 weeks, now pretty good, no tears and some numbness around the eye.  All in all, it seems like the shocking is good.  Yeah, I will take more little shocks.  For me it means more healing.  Hope it means the same for you.

Claudia

[er]

I have not had the surgery. I do know that when I am having healing going on in my head that is how it feels. It makes you jump from your sit.
I have gone through some good ones the past 3 weeks.
I am 2 years 6 months in recovery. This last week I went to a dentist because for 2 weeks after a plane trip my left side of my jaw and teeth were really hurting.I had no sinuse problems, and the dentist said he couldn't find anything wrong. By the time I saw him the pain had subsided. Then a couple of nights ago , not only with the firing in my head , I all so got up in the middle of the night feeling like I was on a rocking ship. I couldn't stand. I had to grab onto the wall it felt so weird.
I am blaming it all to nerve healing.

[satman]

Thanks everybody, as usual I knew you guys
were the ones to come to.
Let the shocks and the good times roll !

[BB]

I know this may sound strange, but I have these shock feelings in my deaf ear.  Anyone experience that?  I never know when it is going to do it.  It doesn't hurt, just scare's me.  I just had my MRI, and no sign of regrowth.  It does it several times a day.  Just thought I would ask the experts here.  Thanks, BB

[satman]

sorry bb,i personally have never felt that,but the day is young.

[4cm in Pacific Northwest]

BB.

I had the shock in the AN ear start up 3 weeks prior to my surgery.(My hearing was declining rapidly around that time)

Now at 9 weeks post op (today!) I still have this. I notice it every night when I try to settle down to sleep.

Maybe post this under "hearing" and see if there is a reponse from others. I would sure like to know what it is too...

My surgery report indicated that some tumor residual was left there to preserve balance ... gee I hope it is not re-growing.  I am due for my 3 month MRI.

4

[satman]

Good morning 4, thanks for the previous
links, I found it to be interesting reading.

[Dfcman]

Satman,

   My story is very similar to Jean's.  I was not cut but the tumor compressed my nerves.  It does take a while but it does improve.  That is def a good sign.  Everytime Jean posts a picture she looks better and better she is a mjor inspiration for me not to mention everyone else in this forum, including yourself.

Chri

[satman]

Thanks Chris , I to put so much faith in everyone here
including yourself.
I have been keeping up with you progress for quite some time now.