Survey for Post-treatment patients

[ppearl214]

Hi all,

I am posting this in this forum, instead of the Headache forum, for wider visibility in hopes that you all can help with this survey.  This is open to all post-treatment patients (microsurgical and radio-treatments). This has been discussed (locally) recently and need to get a feel for if you all are running into this.

Survey questions:

1.  Do you experience "sharp" head pains (ie: like a steak knife being jabbed into your head)?
2.  If yes, what kind of AN treatment have you had and when did you have your treatment?
3.  How long, post-treatment, did you experience these kinds of sharp head pains?
4.  If you worked with your dr regarding these kinds of head pains, what was their recommendation in treating these pains?

You participation is appreciated.

In advance, thank you.
Phyl

[Mark]

Head pain survey

1) No, except when I deal with certain types of people 
2) Radiosurgery
3) N/A
4) N/A

Mark

[nancyann]

1:no
2:microsurgical
3:n/a
4:n/a

[HeadCase2]

Phyl,
  You may want to also ask "How Often".

1. Yes-- but only once
2. Microsurgery: retrosigmoid
3. about a year after treatment.
4. n/a
5. How often: only once


Regards,
 Rob

[Cheryl R]

  1:  No
  2:  Mid fossa and later translab
  3:   NA
  4:   NA                                                                 Cheryl R

[Sam Rush]

No
translab

[Boppie]

1. No
2. Translab
3. n/a
4. n/a

[lori67]

Nope, no steak knives to the head.  I had trans-lab and no issue with headaches to this point.

Lori

[Victoriah1999]

1. Yes.
2. SubOccipital, 1999
3. Still have them.
4. Gosh, so many things.  Had a few nerve blocks, do exercises, breathing/meditation etc.
ETA:  I've used lots of drugs but to no real avail so far.  gr.   I've used anti-depressants and anti-seizure meds.
Triptans and ergots, oh my! 
Imitrex Sub-Cu is the best so far for the cracking-my-head-open pain.

Last week I used DHE in the hospital and that worked well after the 2nd day.  (Five day mig.)
If I forgot anything, just ask!  I'm an open book....  With a few pages missing. 

     

[staypoz]

1.  Yes
2.  Retrosigmoid in 2004
3.  Still get them
4.  Drugs, nerve blocks, accupuncture, massage, hypnotherapy, physical therapy

staypoz

[leapyrtwins]

No
Retrosigmoid 5/31/07

[ppearl214]

thanks folks (and Mark, you're a nut!   )

Looking for more inputs and please know it's truly appreciated.

thanks again,
Phyl

[Janet]

1. Yes
2. Retrosigmoid 2004
3. Started 2 weeks post-op and on going
4. Referred to headache neurologist. Neurontin (not effective), Trileptol (not effective), Indomethacin (effetive), Maxalt (effective) Botox (effetive) Physical Therapy (not effective) biofeed back (not effective).

Janet

[yardtick]

1. yes
2.translab 2006
3.started 1 yr prior to surgery
4.tylenol 3's (not effective), referred to neurologist tegretol (not effective), topamax helping, something else along the line as imitrex if I get a breakthru migraine.  Too long of a name, its in my purse.

You described the pain exactly the way I have to my drs. 
Anne Marie

[Dana]

No
GK July 2007

Dana