Karen (Arushi) Good point!!. I'm wondering how many cases of AN I must have missed in my 38 yr career, by not thinking about it. Mine, was the first case I ever saw. A pt. w/ balance, hearing, tinnitus problems, I would never have thought of AN. Now, I order lots of MRI's w/ any suggestion of AN sx. So, experience and education is the key to earlier diagnosis. I personally was extremely lucky, in that the ENT I went to for my lack of hearing had done a fellowship w/ Dr. Brackman at HEI, so AN was the first thing he thought of. I thought he was nuts!!, Told him to just clean out the earwax, and I'd go home. He said There was no earwax, MRI next day = AN. My excellent internist, thought that my balance prob. and hearing was from some blood pressure meds I was taking, and I agreed w/ him for one year. He feels terrible now, but I told him it's not his fault we don't usually think of rare things.
Anyway the ANA is dedicated to education which should help make diagnosis easier in some people.