Author Topic: tingly on opposite side of AN  (Read 3035 times)

mindyandy

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tingly on opposite side of AN
« on: December 07, 2007, 06:12:20 pm »
Question. I have had a tingly feeling on non AN side right in front of ear like on cheek bone. I dont have this feeling all the time but sometimes it will happen and stay for maybe a half day off and on. This is very disturbing to me. I have had an MRI about 2 weeks ago and it showed nothing. I do get ringing off and on but previous postes shows that ringing is normal. I'm confused and tired of strange symptoms. I would like to hear others imput. Do you have strange happenings?

Mindy
14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

sgerrard

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Re: tingly on opposite side of AN
« Reply #1 on: December 09, 2007, 08:37:40 pm »
What, nobody has any strange tingly symptom stories to share?  :D

I have odd little tingles now and then, sometimes just above the mouth, on the opposite side, like something wanted to go numb, then after a few hours changed its mind. I'm pretty sure that most ANs bring a few little odd sensations along with them. Inside your head, all this stuff is interconnected like crazy, so its not that surprising, really. It sure can be disturbing though.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

mindyandy

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Re: tingly on opposite side of AN
« Reply #2 on: December 10, 2007, 05:54:21 pm »
Thank you Steve for the support. I know this AN thing throws us for a loop sometimes. I wish others would share their experience....strange experiences if they have any.
14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

leapyrtwins

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Re: tingly on opposite side of AN
« Reply #3 on: December 10, 2007, 10:21:36 pm »
I have had no strange tingling, but I have had an issue with sensitive teeth on my non-AN side.  It started about 2 months post op and my dentist hasn't been able to pinpoint any cause.  It may have absolutely nothing to do with my AN surgery - it might just be a coincidence.  Other than that, I have had no "strangeness" - at least I'm no stranger than I normally am  ;D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

mindyandy

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Re: tingly on opposite side of AN
« Reply #4 on: December 12, 2007, 01:47:49 pm »
Thanks for the support. I dont have it very often but when I do its strange. Sometimes I wonder if its all in my head....?
14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

sgerrard

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Re: tingly on opposite side of AN
« Reply #5 on: December 16, 2007, 11:47:59 am »
Thanks for the support. I dont have it very often but when I do its strange. Sometimes I wonder if its all in my head....?

Well it is all in your head, of course.  :)

The question is, is it really in your head, or just in your imagination? When it comes to "benign neoplasm of the brain/nervous system", which is the classification my insurance company has used for my AN, I'm not sure you can draw that line. Either way its a tingle, and it is the nerve itself acting up, not something else going on.

Hang in there...

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

mema

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Re: tingly on opposite side of AN
« Reply #6 on: December 29, 2007, 03:22:42 pm »
My tingling is inside my head.  I first described it as a wave of water feeling.  Then as a worm crawling through feeling.  Now it feels like flutters.  If any of you have followed some of my posts, after 2 yrs the docs think it COULD be a nerve spasm.                                       



                                                                        mema
6mm x 8mm left AN FSR 26 treatments Nov.-Dec.2005
MD Anderson Orlando, Fl.

Taylor

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Re: tingly on opposite side of AN
« Reply #7 on: February 02, 2008, 03:07:49 pm »
Hey there.
Yeah I've had a tingly sensation on my non-AN side since the day of surgery. But it's from head to toe and i wonder if i'm going to have it for the rest of my life. and the only thing with this tingling is that it's every second 24/7 365 days a year.
It feels like pins-and-needles.
I take Tegretol for it but the medicine doesn't seem to be doing anything.
I took Neurotin before that but it didn't seem to have an effect on me either.
Just remember it could be worse.
Taylor
Translab/4.8 cm AN on right side removed 2/3/06
St. Louis Children's Hospital (next to Barnes-Jewish)/ Jeffery Leonard - Neurosurgeon
Cross-facial nerve graft with muscle transplant
Bad coordination on right side - constant pins-and-needles sensation on left side
21 years-old
Illinois