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Author Topic: An Acoustic Neuroma Christmas  (Read 47930 times)

Sue

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Re: An Acoustic Neuroma Christmas
« Reply #45 on: December 20, 2008, 01:14:19 pm »
Well, Steve, there is always Christmas of 2009!  It will still be timely then.

Sue in Vancouver USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

catlover

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  • 13 days post-op. I still have my smile!
Re: An Acoustic Neuroma Christmas
« Reply #46 on: December 20, 2008, 07:00:23 pm »
FANTASTIC, Steve!

Thanks for your great poem, it was so funny reading and I laughed a lot  :D  :D  :D

You are such a talent! I also like the idea with the Christmas cards   ;)

Have a lovely Christmas all of you and thanks for always being there for me when I need help and support!

I'm so grateful I found this forum.

1 000 hugs from Helene in Sweden   :)
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AN found in February, 2006, size 0,8 cm
Surgery 20th May, 2009, retrosigmoid approach
SSD and balance issues
Forever grateful to Dr Siesjo and Dr Kahlon, University Hospital of Lund, Sweden
Two AN:s found 1st March, 2016
Waiting for GK

tenai98

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Re: An Acoustic Neuroma Christmas
« Reply #47 on: December 21, 2008, 08:22:57 am »
this is great.  tx Steve.  Unfortunately only those who have experienced and are experiencing AN can appreciate this. 
JO ;D
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

4cm in Pacific Northwest

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Re: An Acoustic Neuroma Christmas
« Reply #48 on: December 21, 2008, 10:31:18 am »
My husband has not personally experienced an AN tumor- and he thought it was fantastic as did a few others who have never had a TUMA  ;D

DHM
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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

Mark

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Re: An Acoustic Neuroma Christmas
« Reply #49 on: December 21, 2008, 06:36:40 pm »
Steve,

I'm not sure how I missed this last year, but I would echo everyone's comments about how absolutely brilliant and creative your poem is. Very entertaining  ;D

Mark
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CK for a 2 cm AN with Dr. Chang/ Dr. Gibbs at Stanford
November 2001

Syl

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Re: An Acoustic Neuroma Christmas
« Reply #50 on: December 21, 2008, 06:59:19 pm »
Steve,

I love the poem. Laughter is the best medicine.

Thanks for the laugh.

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

Sue

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Re: An Acoustic Neuroma Christmas
« Reply #51 on: December 21, 2008, 07:42:23 pm »
Steve, remember this for next Christmas!  Then we can enjoy this all over again.  Truly, this is genius.  How ya doin' in the snow?

Sue in Vancouver
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Rivergirl

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Re: An Acoustic Neuroma Christmas
« Reply #52 on: December 23, 2008, 06:38:50 pm »
Loved the poem, it is a must to re-post every Christmas... we all need a laugh.
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Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

LADavid

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Re: An Acoustic Neuroma Christmas
« Reply #53 on: December 24, 2008, 05:10:49 pm »
Great one, Steve.  And I agree -- this needs to be an ANA Forum tradition.  And I am sure Judy would be glad to publish this in the Newsletter.
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Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

wendysig

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Re: An Acoustic Neuroma Christmas
« Reply #54 on: December 28, 2008, 11:56:37 pm »
Steve,
I have to thank you again for writing  this poem.  It is just hysterical and eveyrone I showed it to, whether they got it completely or not found it almost as funny as I did.

Thanks again,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

marg

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Re: An Acoustic Neuroma Christmas
« Reply #55 on: December 29, 2008, 12:46:10 pm »
Steve,
    Once again - thank you for the poem.  I printed it off this time ( with your small picture and name at the bottom  as the author..... :) )  .  Please submit it to the ANA director again.... it should go in the newsletter!
marg
P.S. It was great seeing you again at the Casey Eye Institute a few weeks ago.  What a great meeting that was.
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Marg 
 4 mm  AN removed .. middle fossa   5/07 OHSU  Dr. Delashaw
AN scraped off facial nerve & balance nerve removed
 MRI  follow up showed AN gone ... thank you God
Some facial paralysis- . SSD weeks after surgery.  Trans-Ear Nov.2007 ... it really helps !

Sue

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Re: An Acoustic Neuroma Christmas
« Reply #56 on: December 15, 2009, 11:01:25 pm »
READ PAGE 1, as this posting by our esteemed moderator, Steve, needs to be popped back to the top!!  It's EXCELLENT!!

And the winner of one of the best poems on the AN Forum goes to.....the envelope please!   STEVE!!   ;D ;D ;D ;D ;D

Sue in Vancouver, USA
« Last Edit: December 15, 2009, 11:03:24 pm by Sue »
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

anissa

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Re: An Acoustic Neuroma Christmas
« Reply #57 on: December 16, 2009, 12:00:12 am »
That.was.AWESOME. 

Steve, you gave my hubby and I such a chuckle tonight, thank you!  :)
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Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

cindyj

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Re: An Acoustic Neuroma Christmas
« Reply #58 on: December 16, 2009, 07:38:17 am »
It has indeed become a classic!  I saw it for the first time last year and so enjoyed it!  Great again this year, too, Steve!  Didn't someone last year mention trying to get it in the ANA newsletter?  Probably too late for this year, but we must try to get it published for all the ANers to enjoy ;D

Thanks to you, too, Sue, for bringing it to our attention again!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

another NY postie

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Re: An Acoustic Neuroma Christmas
« Reply #59 on: December 16, 2009, 08:44:04 am »
Steve, my first read and I can't stop chuckling...simply brilliant!  Can't wait to share with my family!!! Definitely a classic and right on the spot!
Happy Holidays,
Cheryl
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5 mm lateral IAC (impacted?) diagnosed 6-09-09
middle fosa 9/23 HEI - Brackmann/Schwartz
all tumor gone, facial perfect, no ringing
SSD on right side - Rockin' and Rollin'
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