science research project for a high school student...

[Battyp]

My son Christopher is doing a science research project and needs your help. If you could please answer these questions in a copy pasted email to Christophers345@yahoo.com or back to me  here we would be greatly appreciative. He is trying to find documentation to help the doctors in understand and treating AN's after dealing with mine and a teenage school friend of his.

Thanks in advance,
Michelle (aka BattyP)

The  Cognitive Effects of an Acoustic Neuroma Survey
(All surveys will be anonymous and will not require you to provide your name however; I will ask you to please add your age (if you feel comfortable to) so I may set up an age bracket for my research on Acoustic Neuromas.)
1.   Are you a male or a female?
2.   Which cerebral lobe(s) is your tumor located on?
3.   Prior to your diagnosis, did you suffer from headaches? If yes to #3 what was the intensity of your headaches on a scale of 1-10? (1 being very minimal and 10 being immobilizing)   
4.   Did you headaches lead to an MRI diagnosing your Acoustic Neuroma?
5.   At any time before your diagnosis, did you experience uncontrollable changes in mood? 
6.   Did your doctor send you for an MRI scan based on this symptom?
7.   Prior to your diagnosis, did you find you could not remember short-term items?
8.   Prior to your diagnosis, did you find you could not remember long-term items?
9.   Did your symptoms of memory loss lead to the discovery of your acoustic neuroma.
10.    Prior to your diagnosis of your acoustic neuroma did you experience a mild to severe form of depression?
11.   Did your doctor send you for a MRI or PET scan due to your depression? Or did he give you prescription medicine for it?
12.   Did you experience insomnia prior to your diagnosis?
13.   Did your insomnia lead to sleep test that helped in your diagnosis of an acoustic neuroma?
14.   Did you ever feel like you had trouble concentrating on a task?
15.   Did having trouble concentrating lead to the diagnosis of ADD/HD or the acoustic neuroma?
16.   Based on the symptoms you showed were you diagnosed for those only or did yoru doctor send you for further test?

 

[Sam Rush]

answers to questions

1=male
2=left
3=no
4=no
5=no
6=no
7=no
8=no
9=no
10=no
11=no
12=no
13=no
14=no
15=no
16 yes, no
age at time of diagnosis = 61

[Pembo]

The  Cognitive Effects of an Acoustic Neuroma Survey

1.  female
2.   right
3.  no
4.   no
5.   yes 
6.  no
7.  yes
8.   yes
9.   no
10.   yes
11.   no
12.   no
13.   no
14.   yes
15.   AN
16.   further test
age at time of dx, 35

[krbonner]

Mine's sent.  I hope he gets a good response rate!

Katie

[aardvark]

Sent mine, but for those who are still contemplating doing so, is there a cut-off date, Michelle?

Thanks -
Adrienne

[OMG16]

If you would like answers to your Son's questions from a person with a pituitary tumor to compare just let me know and I would be happy to answer.  It sounds like he would just like AN answers so I do not want to answer the questions unless you talk to him first.  So just let me know either way.  You should be so proud of him.  He sounds like a wonderful Son.  16

[goinbatty]

Sent mine.  Good luck!
Sandra

[Denisex2boys]

Sent mine too!

[Battyp]

I'm not sure of a cut off date. I know he has to be ready to present in February, valentines day.
He is about 20 shy of making his quota.
I appreciate everyone's support!

[mema]

Hi Michelle,


1.  female
2. left
3. no
4. no
5. no
6. no
7. yes
8. yes
9. no
10. no
11. no
12. yes
13. no
14. no
15. no
16. first went to ent for loss of hearing
age of dx 57

[cookiesecond]

1.female
2. right
3. yes 5
4. no
5. no
6. no
7. no
8. no
8. no
10. no
11. no
12. yes
13. no
14. no
15. no
16. no
dx'd age 42

[Samantha n Adrian]

1.   Male
2.   Right
3.   Yes.  8
4.   No
5.   Mood Changes yes, but not uncontrollable
6.   No
7.   Yes
8.   Yes
9.   No
10.   No
11.   No
12.   No
13.   No
14.   Yes
15.   Neither
16.   1st syptom was hearing loss.  Facial numbness and lack of balance was thought to be MS.  MRI showed 4cm AN
Male 34

[Battyp]

Thanks Mema, Adrian, and Cookie.
I'm hoping he's got the number needed.

Adrian how are you doing?
Did you marry Sam yet?

[Samantha n Adrian]

Hi Michelle!  Sam and I not married…. “what you talking ‘bout Willis?â€?  In the past 5+ years, there hasn’t been a day that both of us haven’t felt married.  We’re good….we both are very unconventional people.  We tend to go against the grain….OFTEN!  Besides…..haven’t you heard of the one food guaranteed to kill a woman’s sex drive…..WEDDING CAKE! 

I feel great.  I’m strong as a bull, better than I was before.  My face still doesn’t work, but who needs that anyways!  It is making small improvements.  My eyebrow does move a lot more than it used to and the corner of my mouth slightly curls up when I close mouth smile.  You can also see small movements in my cheek and wrinkles that haven't bee there in 4 1/2 months.  My top lip still is still paralyzed  , but I’m hoping for the best as time progresses.  All in all, I feel great…..thank you for asking!

[Battyp]

To all those who helped Thank you!
The science fair is over and Chris took second place in his category. For some reason they put him in behavioral instead of medical.
He plans to continue the project through grad school. Thanks for helping to get him off to a great start.

Michelle