Here is an update on my facial bone infection. Last friday I had what I thought was the flu and boy do I wish it was. Anyways my facial swelling, fever, night sweats and bone pain are back. I have been off the antibiotics for 11 days now. I called the surgeon today and was told by his nurse after her talking to him that he does not know why I am having problems again and that it could not be even happening so to go and see my primary care Dr because he can not help me. He did not want to see me and the nurse had a very snotty attitude. I also found out that the cultures were negative, however he did not send the bone that was mush (his words not mine) off for culture or the bone that he touched and it just turned to dust and fell apart. Why would he not send the abnormal stuff for pathology and biopsy? I am very angry and frustrated to say the least.
My primary care was out of the office until Monday so I saw the Dr filling in for him. Thank goodness he was very kind and put me back on the antibiotics and made me an appt for Monday first thing to see my primary. He could tell by looking at me with all of the swelling there was a problem that needed treatment. He also said he would call my infectious disease Dr and talk to him and they made me an appt. Unfortunately he is gone on Vacation until April 4th but he did say in his consultation report from 1st part of Feb. that he would want to do bone cultures of his own if it did come back. I was told that the infectious disease Dr wants to rule out midline granuloma disease. I'm thinking that Dentists/Oral surgeons who do the surgeries for the facial bones are way over their head on this one.
Anyways I need lots of kisses to my forehead and prayers for this one. I am getting pretty tired of this and have had enough!
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