Author Topic: Please, please help?  (Read 12339 times)

JeWeL41

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Please, please help?
« on: February 25, 2008, 01:10:06 pm »
Hi all,

I finally had a contrast mri today that I paid for privately. It lasted just over an hour and I was given the disc which I eventually managed to work and now I am really, really scared. The neuroradiologist was not there so will not see it and write his report til thursday. I've posted the pics on my frappr - I can definately see something in the right area but doesn't seem to be tiny or quite classis shape/position for AN.

Again I know that you are not medics or radiologists but this is something to worry about isn't it? I would be grateful to anyone who taked the time to look and comment. Thanks x

http://www.frappr.com/?a=myphotos&id=4872740

Sudden hearing loss Nov 2006 (left), tinnitus, fullness,imbalance, left side headaches and strange sensation on that side of face - but not AN!
Diagnosis - SSHL. Bouts of spinning vertigo now!
Saw Prof Ramsden (April 08) and it may be Atypical Menieres with Migraine Syndrome!

HeadCase2

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Re: Please, please help?
« Reply #1 on: February 25, 2008, 02:01:52 pm »
Hi Jewel41,
  Try not to get too excited about looking at your MRI images.  Let the professionals do their thing and interpret it for you.  About all we can say for sure is that, yes, you have a brain  :) .  There are some enhancing (light colored) things on the MRI, which may or may not indicate some kind of problem.  The cranial nerves themselves can also enhance with contrast. And the image "slices" are often slightly off kilter, meaning that the slice is not exactly across the head at a right angle, so you may see more of some nerve or other body on one side of the image than the other.  I know it may be hard to do, but wait for the doctor's report on the MRI.  Here's hoping for a good report.
Regards,
  Rob
 
« Last Edit: February 29, 2008, 07:52:52 am by HeadCase2 »
1.5 X 1.0 cm AN- left side
Retrosigmoid 2/9/06
Duke Univ. Hospital

GrogMeister of the PBW

JeWeL41

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Re: Please, please help?
« Reply #2 on: February 25, 2008, 03:25:32 pm »
Thanks, I do appreciate your reassurance.

I'd still be grateful for any other views though.
Sudden hearing loss Nov 2006 (left), tinnitus, fullness,imbalance, left side headaches and strange sensation on that side of face - but not AN!
Diagnosis - SSHL. Bouts of spinning vertigo now!
Saw Prof Ramsden (April 08) and it may be Atypical Menieres with Migraine Syndrome!

Sheryl

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Re: Please, please help?
« Reply #3 on: February 25, 2008, 03:33:45 pm »
Also, MRI images are extremely magnified.  Please keep us posted.
9th cranial nerve schwannoma - like an acoustic neuroma on another nerve. Have recently been told it could be acoustic neuroma. Only 7 mm of growth in 18 years. With no symptoms. Continuing W&W

Jim Scott

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Re: Please, please help?
« Reply #4 on: February 25, 2008, 03:46:37 pm »
JeWeL41:

Unfortunately, I cannot tell you one way or the other as to what your MRI scan is showing.  Only a trained, licensed medical profession can do that.  I know that isn't what you wanted to read, but it remains the reality.  We could all take guesses, but that would simply muddy the waters, as it were, leaving you even more confused and apprehensive than ever.  What's the good of that?

I suggest you try to relax a bit, don't entertain dark thoughts and simply wait until you have the neuroradiologist's report, which you should ask (demand, if necessary) be faxed to you or pick it up in person, to expedite the process.  If there are any words in the report that you don't understand there are medical dictionary's available (for free) on the internet that can greatly assist you in understanding the wording in the report that may read like gibberish, in some instances.  It isn't, really.  If the MRI facility will only release the report to your physician, he can tell you over the telephone whether you have what medical professions usually call a vestibular schwannoma or what is usually called an AN (for acoustic neuroma). 

In any case, I don't see any realistic way of accurately learning what the MRI actually showed unless you can locate a medical professional (radiologist, neurosurgeon) to read the scan and offer you a professional opinion.  I really regret that we cannot do that.  I wish we could, just to ease your mind or at least help you deal with the situation, should you actually have an AN tumor.  I pray that you don't.  Meanwhile, try to stay strong until Thursday and please stay connected with us.   :)

Jim

4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

OMG16

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Re: Please, please help?
« Reply #5 on: February 25, 2008, 11:06:27 pm »
Jewel please try not to worry there are many reason you could be seeing the enhanced images that you are.  I in no way am qualified to give you an opinion one way or another.  With this being said I had an MRI for some problems I have had lately and mine lite up all over the place which gave me the same sort of anxiety that you are having.  As my son reminded me there is no need to worry until you have something to worry about.  Out of the mouth of babes.  I will be waiting to hear from you how you MRI is read by the neuroradiologist.

Just a thought who ordered the MRI and could they read it for you.  I hope and pray everthing turns out fine.  If this is not the case please do let us help you.  That is what we are here for.  Hundred of kisses to forehead.  :-*  :-*  :-* 16
I believe you are given choices in life and it is not what has happened to you that defines who you are.  It is how you handle the situation and finding the positive in an almost hopeless situation that counts the most.  My son is my hero and I have had the pleasure of learning this from him.

JeWeL41

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Re: Please, please help?
« Reply #6 on: February 26, 2008, 12:13:01 am »
Thank you all. I know you are right, it is pointless worrying until i know. I'll contact the imaging centre again today to see if they can speed up the report. My mothers GP referred me for the scan so I'll call him too but I doubt he can read it as he's not a radiologist.

Your support is great  :D
Sudden hearing loss Nov 2006 (left), tinnitus, fullness,imbalance, left side headaches and strange sensation on that side of face - but not AN!
Diagnosis - SSHL. Bouts of spinning vertigo now!
Saw Prof Ramsden (April 08) and it may be Atypical Menieres with Migraine Syndrome!

Catflower

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Re: Please, please help?
« Reply #7 on: February 26, 2008, 12:57:38 pm »
Something as simple as a sinus problem will show in an MRI.  Hang in there for the official word.

JeWeL41

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Re: Please, please help?
« Reply #8 on: February 28, 2008, 11:37:45 am »
Hi all,

well I have the scan report and it says 'There is no patholoigical enhancement following intravenous contrast' and everything appears normal so I guess I'm not in your club!!!!!!

There is no explanation of the obvious enhanced area on my scan, it is not even mentioned in the four-sentence report. I can't believe this bright white area in my left ear is not significant. I have asked to speak to the radiologist for a full explanation so hopefully that will be more illuminating.

I should feel reassured but I just want an explanation for my symptoms which are still really bad.

Good luck to you all and thanks for your support x
Sudden hearing loss Nov 2006 (left), tinnitus, fullness,imbalance, left side headaches and strange sensation on that side of face - but not AN!
Diagnosis - SSHL. Bouts of spinning vertigo now!
Saw Prof Ramsden (April 08) and it may be Atypical Menieres with Migraine Syndrome!

ppearl214

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Re: Please, please help?
« Reply #9 on: February 28, 2008, 12:10:56 pm »
JeWeL,

I'm glad you got this news and wishing you continued wellness... and hoping you find the answers you seek sooner than later. Be well :) 

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Dana

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Re: Please, please help?
« Reply #10 on: February 28, 2008, 12:14:09 pm »
For your peace of mind, you might want to have a neurologist who's an expert at least in base skull tumors, if not acoustic neuromas, look at your DISK.  I know that my AN team wants to look at my follow-up MRI DISK (...that is, not just the REPORT) because they see subtleties etc that a general radiologist might not see.  I didn't say that very well -- radiologists will I think always notice something that's not right, but for your peace of mind, if it continues to bother you despite the radiologist's report, it might be worth getting a "second opinion" of the disk.

I notice you do have unilateral hearing loss.  I asked the ENT before my first MRI, "What if no acoustic neuroma shows up; then what's the cause of my hearing loss?"  And he said, "We probably would never figure it out."  !!  Just so you know that it can be unexplainable...

I had lots of what I thought were funny white spots ... and "holes" in my brain (!!) on my disk images ... that no one else has worried about .... Just so you know you're not alone!

Dana
1.5 cm AN diagnosed June 2007.   GammaKnife July 19, 2007 at Univ. of Washington/Harborview GK Center, Drs. Rockhill, Rostomily. 
After yearly MRIs for 5 years, it hadn't died. So I'm now leaning strongly toward surgery.

Esperanza

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Re: Please, please help?
« Reply #11 on: February 28, 2008, 12:54:26 pm »
I am so happy for you that it has not turned out to be an AN!! 

Will you still take up your consultant appointment to find out what is making your symptoms worse?

It was very interesting looking at your brain!!  How we connect on this site eh!


x
Profoundly deaf suddenly on AN side with vertigo January 3rd 2008.
12mm left side AN diagnosed 20th Jan. 2008.  MRI  in July shows no growth. What do I do now?????

Sam Rush

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Re: Please, please help?
« Reply #12 on: February 28, 2008, 02:49:22 pm »
There is a definate disease entity known as sudden unexplained hearing loss. You did the correct thing in ruling out a AN
1 cm AN translab, Dr. Brackmann, Dr. Schwartz, Dr Doherety HEI   11/04   Baha 7/05

JeWeL41

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Re: Please, please help?
« Reply #13 on: February 28, 2008, 03:27:08 pm »
Thanks to you all.

Sam - Idiopathic Sudden Sensorineural Hearing Loss has been my diagnosis since November 2006 but I have symptoms that are getting worse, that are the same as AN and now a large bright spot on my MRI in that area which apparently means nothing. And still no appointment to see any specialist. I'm glad that it seems I don't have an AN of course but I am desperate to know what I do have.

I simply can't accept that there is no explanation and I don't want to have to live with this hearing loss, tinnitus, imbalance and constant discomfort for the rest of my life.

moan...moan...etc x
Sudden hearing loss Nov 2006 (left), tinnitus, fullness,imbalance, left side headaches and strange sensation on that side of face - but not AN!
Diagnosis - SSHL. Bouts of spinning vertigo now!
Saw Prof Ramsden (April 08) and it may be Atypical Menieres with Migraine Syndrome!

OMG16

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Re: Please, please help?
« Reply #14 on: February 28, 2008, 03:44:40 pm »
Did the Neuroradiologist read your MRI?  You haven't post that it had been read so I was just wondering.  Hang in there. 16
I believe you are given choices in life and it is not what has happened to you that defines who you are.  It is how you handle the situation and finding the positive in an almost hopeless situation that counts the most.  My son is my hero and I have had the pleasure of learning this from him.