Just wanted to let y'all know that my grand daughter finally has a sort of diagnosis for her seizures. She spent two days at Texas Children's Hospital with her Mom, dancing, playing games, exercising, doing homework, getting stressed by phone calls, teachers telling her papers were missing, she ran the gambit. The conclusion is that she has a chemical brain imbalance that causes her brain to "short" out. She has been taken off all meds and put on one to help her sleep for now and she will see another doctor to get the correct med to help even out the imbalance. While not satisfied with the sort of findings, we are relieved that she has a healthy heart and no tumors or other problems.
I spent yesterday at the Lympedema Care Clinic where I was told I have seconary lymphedema in my legs. No one else in my family has ever had this problem so I couldn't figure out how I got so lucky. I was told that it comes from having breast cancer, any kind of stomach trauma (c-sections and a hysterectomy qualified me for that). So now I go through thirty days of manual manipulation and a compression pump and bandages until my legs are "normal" sized again and then I will be fitted with compression hose. Dummy me asked how long I would have to wear them. All day everyday. Okay for how long? I got a look that kind of asked me if I was stupid and then when she realized I was sincere she said that it would probably be for the rest of my life! You don't ever get rid of it and there is no known cure.
I certainly think that this last several years must be pay back time for the good times of my youth! It gets hot in Houston and I can think of better things to wear or not wear. Although I was told that as long as I don't have open wounds I can continue to swim daily. I can't get mosquito bites (I'll tell them I am off limits) and have to garden with gloves on and my dog can't scratch me or bite me and I can't wear fake nails or dark colored polish. No barefeet. Shoot me know, I don't do shoes!!! Not even in the winter. I have very limited exercises I can now do. My PT guy is NOT going to be happy!!
I can take walks as long as it isn't too hot and I don't get too tired. The list goes on. I'm calling the Scooter Store..........................not.
I'll make it through this, but I already told my insurance company that they better spring for several pairs of these girdles for my legs and feet because some need to be polka dot and tie-dyed.........................
Hugs to all, I am going to have a martini and popcorn.
Brenda
