Author Topic: Post Treatment roller coaster ride  (Read 2439 times)

cabram

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Post Treatment roller coaster ride
« on: March 18, 2008, 08:52:15 am »
I’ll try and make this short, In Nov of 07 I had left side facial paralysis and complete lost of hearing, it started with the stuffy feeling in ear.  ENT said it was AN, I went to a specialist who talked about the trans procedure but he wanted me to visit with his partner a Neurology Surgeon, by the time I saw the Neurology Surgeon the paralysis was gone and I could hear in the left ear (about a week later). MRI still showed tumor.  I opted for surgery (retro approach) over radio to get it over with and out of my system. Feb 13,  I had surgery (7 hours), Dr was able to get the entire tumor out but said it was not an AN but a Facial? I have no paralysis and I can hear some in my left ear.  10 days later I went back to get the staples removed, it was discovered that I had allot of fluid around the incision and some fluid was coming out of nose, Dr. drained the fluid and sent off for testing ( negative) he put me on heavy antibiotics, I went back to see him 3 days later fluid still there, now the CSF word was being tossed around, if fluid does not go away I would need to go back into hospital for some sort of lumbar drain procedure, if that didn't work......back on the table. 

On my next visit the following week, I was prescribed Diamox which is used get rid of excess water in the body, so far so good !!  The incision is just about flat, I’ve had no fluid coming from the nose.

On the other hand my vision has been all over the map, I’m primarily seeing double, I went to the eye Dr who said my eyes look good it’s jus that the eye muscles need time to heal, I was given a  prescription for glasses to help out temporarily until my eyes recover ( left eye).

Right now, I scheduled to see Dr. this Friday, hopefully he will say I’m good to go.

If you have any questions feel free to email me cabram@gmail.com

THX

leapyrtwins

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Re: Post Treatment roller coaster ride
« Reply #1 on: March 18, 2008, 09:44:47 am »
Cabram -

sorry to hear of your roller coaster ride; thanks for updating us.

While reading your post, it sounded to me like you were describing a CSF leak - but then again I'm not a doctor.  I'm glad to hear that the diamox is working; I hope it continues.

As far as the double vision goes, I can tell you that I had it for 2 or 3 days post op (had retrosigmoid also) and then it went away.  I can imagine how aggravating it is for you.  The days I had it I literally had to close one of my eyes in order to function.  Did your doc give you any timeframe for your eye muscles to heal, or is it just a wait & see kind of thing?

Jan 
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

cabram

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Re: Post Treatment roller coaster ride
« Reply #2 on: March 18, 2008, 03:23:13 pm »
I've had double vision for about 2 weeks, I was closing 1 eye to function. It has improved a little.  I did go to the eye Dr. last week just to make sure, she said basically it takes time for the ey muscle to heal after a major operation, could take a few more days, a month, 3 months.  In the mean time she wrote me a prescription for glasses that will help with my vision until my vision clears up on it's on. 

Static

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Re: Post Treatment roller coaster ride
« Reply #3 on: March 18, 2008, 05:25:33 pm »
It sounded to me like you had a CSF leak too, but I am also not a doctor so don't pay any attention to that comment!  You might want to look at this site ...  http://www.gwc.maricopa.edu/class/bio201/cn/cranial.htm .  It shows just how close the nerves are and which ones a next to which.  Maybe something got nicked accidentally.  They are all so close and I would imagine, easy to touch the wrong thing, which could cause some temporary complications.   I hope things get better for you soon!
~Karen
3.5cm AN removed 1-21-04
CSF leak repaired 5/04
SSD Right