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Author Topic: Has anyone retained hearing after retrosigmoid?  (Read 12315 times)

Kate B

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Has anyone retained hearing after retrosigmoid?
« on: April 05, 2008, 09:14:04 am »
Although retrosigmoid is considered to be a hearing preservation surgery, my question is to find out if anyone on this site actually retained usable or serviceable hearing after surgery according to Gardner-Robertson? (see definitions below)

Hearing preservation has three defined states:
maintenance of hearing within the same hearing class,
preservation of hearing at a "useful" or "serviceable" level (Gardner-Robertson score of 1 or 2), and
maintenance of some measureable hearing function.


« Last Edit: April 05, 2008, 09:17:04 am by Kate B »
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Kate
Middle Fossa Surgery
@ House Ear Institute with
Dr. Brackmann, Dr. Hitselberger
November 2001
1.5 right sided AN

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leapyrtwins

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Re: Has anyone retained hearing after retrosigmoid?
« Reply #1 on: April 05, 2008, 09:31:44 am »
Not me - SSD in AN ear post op

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

nancyann

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Re: Has anyone retained hearing after retrosigmoid?
« Reply #2 on: April 05, 2008, 10:58:14 am »
Same as Jan:  SSD AN side post op

Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
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right facial paralysis

leapyrtwins

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Re: Has anyone retained hearing after retrosigmoid?
« Reply #3 on: April 05, 2008, 11:40:28 am »
Quote from: nancyann on April 05, 2008, 10:58:14 am
Same as Jan:  SSD AN side post op

Nancy

Nancy -

we could be bookends!  Your AN was on the right and mine was on the left.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

nancyann

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Re: Has anyone retained hearing after retrosigmoid?
« Reply #4 on: April 05, 2008, 11:58:11 am »
Jan - so if we sit next to each other at the symposium I sit on your right side & both our good ears are together !

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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

jtd71465

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Re: Has anyone retained hearing after retrosigmoid?
« Reply #5 on: April 05, 2008, 12:41:24 pm »
My hearing has gone from 12% (just after surgery) to 42% at the one year mark.

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leapyrtwins

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Re: Has anyone retained hearing after retrosigmoid?
« Reply #6 on: April 05, 2008, 03:10:54 pm »
Quote from: nancyann on April 05, 2008, 11:58:11 am
Jan - so if we sit next to each other at the symposium I sit on your right side & both our good ears are together !



Or, if we sit with our "bad" ears together we can actually be like a "normal, hearing person" and have two "good" ears to hear everybody around us ;D
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

leapyrtwins

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Re: Has anyone retained hearing after retrosigmoid?
« Reply #7 on: April 05, 2008, 03:13:57 pm »
Quote from: jtd71465 on April 05, 2008, 12:41:24 pm
My hearing has gone from 12% (just after surgery) to 42% at the one year mark.

jtd -

that is incredible!  Good to know this actually happens for some  8)

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Omaschwannoma

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Re: Has anyone retained hearing after retrosigmoid?
« Reply #8 on: April 05, 2008, 03:47:07 pm »
Negative SSD left
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1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear

Kate B

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Re: Has anyone retained hearing after retrosigmoid?
« Reply #9 on: April 05, 2008, 05:57:01 pm »
Quote from: jtd71465 on April 05, 2008, 12:41:24 pm
My hearing has gone from 12% (just after surgery) to 42% at the one year mark.



Awesome! You are the first person I know of to have some hearing left after retrosigmoid.  What was your hearing level prior to surgery?
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Kate
Middle Fossa Surgery
@ House Ear Institute with
Dr. Brackmann, Dr. Hitselberger
November 2001
1.5 right sided AN

Please visit http://anworld.com/

Featofclay

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Re: Has anyone retained hearing after retrosigmoid?
« Reply #10 on: April 05, 2008, 07:23:35 pm »
Same here...SSD on AN side.
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Diagnosed 12/19/06; 1.7 cm x .8 cm right side
Retrosigmoid 2/16/07 @ House Ear Institute
Dr. Rick Friedman, Dr. Marc Schwartz & Dr. Michael Stefan
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jtd71465

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Re: Has anyone retained hearing after retrosigmoid?
« Reply #11 on: April 05, 2008, 09:19:33 pm »
My hearing was at 100% prior to surgery.

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leapyrtwins

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Re: Has anyone retained hearing after retrosigmoid?
« Reply #12 on: April 06, 2008, 12:07:35 am »
Quote from: jtd71465 on April 05, 2008, 09:19:33 pm
My hearing was at 100% prior to surgery.


So in your case, choosing retrosigmoid was a very wise decision  8)
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Dan

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Re: Has anyone retained hearing after retrosigmoid?
« Reply #13 on: April 06, 2008, 02:53:48 am »
I had 30% hearing loss before surgery and now I have 47% hearing remaining in AN Ear.  When someone speaks very loud on the telephone I can understand them, but I automaticly use the good ear now, when talking on the phone.

Dan in Germany 
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US Army Retired, age 51,  residing and working in Germany.
Retrosigmoid 21 Sept 07 left side 1.76cm AN, Prof. Mann, Uniklinik Mainz Germany

jtd71465

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Re: Has anyone retained hearing after retrosigmoid?
« Reply #14 on: April 06, 2008, 07:08:38 am »
For me...surgery was a wise decision....
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