I'll add my title IT'S NOT EAR WAX!!!
When I ask people to speak up or repeat what they said, I often get this reply, "Are you sure it isn't just ear wax and not really a tumor?". My husband used to ask the same question even though he saw the AN on the MRI. When he saw that it had grown this past year, he said he wouldn't throw out the ear wax theory any more. One guy even asked me if I could just get the tumor out using a Q-tip. Everyone meant well. People have been very supportive now that they know I am having GK. They ask me what they can do to help after I have GK. I anticipate walking out with no problems, but maybe I should just milk the situation and ask for meals for a month! My husband's cooking stinks, and I'm not much better!
A book would be great, and I would definitely want a signed copy.
Nancy
Nancy:
A signed copy is yours, should a book ever materialize. Right now, we're in the planning and early implementation stages; writing and submitting chapters as drafts. Scott is valiantly acting as editor/organizer with input from the various authors. An actual book would be great but that may be a long way off. I would like to see at least some of the chapters 'serialized' in the ANA newsletter (
'Notes') which would offer the readership our stories in a convenient form. We'll see.
I was flabbergasted - and its not easy to gas my flabber - when I read about your husband and others asking if you had 'ear wax' instead of a tumor. I'll give your husband a pass here (I know he'll be relieved) but really, for anyone to make such an assumption is simply absurd. I can't imagine asking if the tumor could be removed with a Q-tip. One has to wonder where these folks get their ideas. I guess the 'Q-tip guy' would think you could fix a broken ankle by wearing tighter socks. Yeesh!
While 'milking' your GK isn't advisable and might actually put you in a mindset that could unnecessarily prolong your recovery, which is normally pretty rapid as I understand it, (my 26 FSR treatments didn't require a recovery period) a few days of help, including meals, might not be such a bad idea.
Jim