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Author Topic: Debbi Bifulco Update  (Read 127844 times)

wendysig

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Re: Debbi Bifulco Update
« Reply #495 on: June 19, 2008, 07:59:47 pm »
 Hi Debbi -
I just finished catching up on this thread.  It sounds like a good news/mediocre news day for you.  Hopefully Dr. Roland and Dr. Louie will have good news for you on Monday.  My fingers, toes and shoelaces are all crossed for you!  I forgot who said it, but I agree -- have some chocolate it always seems to make anything better.  It's my favorite mood enhancer.  Hope it helps you too.

Wendy

Lori - I understand your need to see the Atlantic Ocean.  Staten Island is surrounded by New York Harbor, Raritan Bay and the Atlantic on one side, but there's nothing like being at the beach and digging your toes into that sand that the Jersey shore and Rockaway Park (my old hometown) have.  I know how much you must be looking forward to it.  When we lived in Rockaway, we lived right off the boardwalk, literally about 20 feet.  Sometimes I really miss that.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

lori67

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Re: Debbi Bifulco Update
« Reply #496 on: June 20, 2008, 10:12:24 am »
Debbi - OFF THE LEDGE!  NOW!!  Go get yourself some chocolate.  Don't make me come up there, missy!  (Can you tell I have kids?)

Wency - ah, yes, nothing like the beach.  When we first moved to Virginia Beach, anytime I'd had a bad or stressful day, James would hand me my beach chair and just say "go to the beach".  Nothing like a half hour of sitting by yourself staring at the ocean and watching the dolphins swim by to de-stress you.  There were some days I wanted to build myself a grass shack right on the sand so I could stay there!   ;D

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Debbi

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Re: Debbi Bifulco Update
« Reply #497 on: June 20, 2008, 11:37:41 am »
Good News!!

After taking matters into my own hands this morning and faxing an update to Dr. Louie's office with my questions/concerns, and emailing Dr. Roland with questions and pictures ...  apparently someone called Dr. Louie on vacation and he and Dr. Roland and the IV company all talked - and I can get the PICC line out on Monday!!!  Since I am scheduled to see Dr. Roland anyway, he says he'll take the PICC line out.  I am SOOOOO happy to have this chapter in my recovery drawing to a close!

I am already planning a long celebratory shower when I get home Monday night! 

The last lemon will be infused tonight - see ya later, sucker (sorry, moderators...)!!

I am a happy camper! 

Debbi - looking for Lorenzo's Chianti...
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

yardtick

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Re: Debbi Bifulco Update
« Reply #498 on: June 20, 2008, 11:44:48 am »
Wonderful ;D

Oh Happy Day :D

Maybe I can FedEx you a bottle of my Dr Louie's wine ::)

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Debbi

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Re: Debbi Bifulco Update
« Reply #499 on: June 20, 2008, 11:53:45 am »
Anne Marie, I'm ready!!  Your family sounds like my kind of people - lovers of food and wine.  Wasn't there something about a white pizza somewhere here??? 

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Kaybo

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Re: Debbi Bifulco Update
« Reply #500 on: June 20, 2008, 12:11:18 pm »
Debbi~

GREAT news -- happy dance for you!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!   ;D

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Jim Scott

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Re: Debbi Bifulco Update
« Reply #501 on: June 20, 2008, 02:01:11 pm »
Debbi:

No need to apologize for being anxious to bid your 'lemon' adieu. 

I join everyone else that has followed your AN journey and admired your spirit and determination in congratulating you on the upcoming move forward in your recovery...the loss of the PIC line.  Enjoy your shower and thanks for sharing your happiness with us.  It's downright infectious!  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Pooter

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Re: Debbi Bifulco Update
« Reply #502 on: June 20, 2008, 04:40:35 pm »
Debbi - I'm glad that you'll be PICC-less next week!  That is great news!  I'm happy for you!

Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

leapyrtwins

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Re: Debbi Bifulco Update
« Reply #503 on: June 20, 2008, 04:50:04 pm »
Congratulations, Debbi - wonderful news  8)

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Debbi

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Re: Debbi Bifulco Update
« Reply #504 on: June 20, 2008, 05:18:37 pm »
If I could grin ear-to-ear right now, I would. As it is, I am grinning cheek--to-ear.  Now, I think I need to get a do-rag to keep up with Tammy.

Thank you all, as always, for your support and for always making me feel welcome and cared-for.   :-*
Logged
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

leapyrtwins

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Re: Debbi Bifulco Update
« Reply #505 on: June 20, 2008, 05:27:48 pm »
Hey, Debbi - it sounds like Pooter is just about done with his do-rag and it's pretty impressive (I've seen pictures  ;) ) maybe he'll lend it to you   :D
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

wendysig

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Re: Debbi Bifulco Update
« Reply #506 on: June 20, 2008, 08:56:21 pm »
Debbi -
What fantastic news!!!  I am sooooo happy for you!!!  It was terrific of whoever contacted Dr. Louie on vacation and even nicer of him to respond.  Monday is just three days away.  I hope the anticipation doesn't make it seem any longer than that.  I'll do the dance of joy for you!!  Congratulations on your wonderful news.  Now, behave yourself young lady (I wanted to get into the mother act with Lori) and don't overdo it or you won't get any more Chianti!

Best wishes,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Pooter

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Re: Debbi Bifulco Update
« Reply #507 on: June 20, 2008, 09:03:43 pm »
Heh.. I'm so blunt these days that I don't even put a do-rag on the wrap.  *shrug*  I don't care who sees the wrap.  I look REALLY cool with the wrap and my nice, new sunglasses that fit over my glasses!    ;D

Pooter...
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

yardtick

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Re: Debbi Bifulco Update
« Reply #508 on: June 20, 2008, 09:55:57 pm »
Yes Debbi, you have a very good memory.....Louie did have a pizzeria for 17 yrs.

Actually back in his parents' home town, my MIL's mother was the town baker.  My MIL makes the best pizza dough and onion pizza.  Yummy!! :P 
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

leapyrtwins

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Re: Debbi Bifulco Update
« Reply #509 on: June 20, 2008, 10:16:05 pm »
Quote from: Pooter on June 20, 2008, 09:03:43 pm
I look REALLY cool with the wrap and my nice, new sunglasses that fit over my glasses!    ;D

Pooter -

it sounds like another picture is in order  ;)

Jan
Logged
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways
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