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Author Topic: Debbi Bifulco Update  (Read 127835 times)

Pooter

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Re: Debbi Bifulco Update
« Reply #510 on: June 21, 2008, 08:15:15 am »
Haha...if I wasn't having problems with my domain, I'd upload a pic with the glasses too.  Darn the luck! ;)  Perhaps soon!

Brian aka Pooter...
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

cmp

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Re: Debbi Bifulco Update
« Reply #511 on: June 21, 2008, 08:19:50 am »
Hooray for Debbi! Hope having PICC-lessness to look forward to on Monday makes the weekend extra nice for you!  :)
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5 cm AN surgery, Shands Hospital, FL, Dr Albert Rhoton, 1988; VII-XII anastamosis for right-sided facial palsy 1989; diagnosed Feb 2008 w/ 1.8 cm recurrence; drs McKenna & Martuza; surgery rescheduled for 6/24/08!

jerseygirl

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Re: Debbi Bifulco Update
« Reply #512 on: June 21, 2008, 08:23:12 am »
Debbi,

Yay! PICCless is the way to go! Congratulations, I am sure it was not fun even if it beats staying in the hospital.


                                Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

Tamara

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Re: Debbi Bifulco Update
« Reply #513 on: June 21, 2008, 12:10:37 pm »
Debbi -
   YAY! I'm waving my flag for ya!  And Pooter, It sounds like we have the same look going on - got my wrap-arounds around my glasses and bandage too.  I've got the do-rag for outdoors, and just wear the ace inside.  It's truly stunning either way...and yes, Deb, it's time to get a do-rag too.  I've yet to receive my knit hat, so I think we'll have to wing it...

Tam
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7 mm AN left side
translab 6-12-08
postop issues including CSF leak, eye issues, and facial palsy.  All issues resolved at 9 mos. except slight facial palsy & weakness.  Continuing to improve...

Debbi

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Re: Debbi Bifulco Update
« Reply #514 on: June 21, 2008, 12:11:50 pm »
Can I just tell you all how wonderful it was to wake up this morning and NOT have to get up and infuse an IV of antibiotics!  I am a free woman!!!!!  I just laid in bed and reveled in the joy of not having to do a darned thing...

I took the 12" extension off my picc last night, so only have the little 6 inch line to contend with until Monday afternoon.  Wahoo.  I have it neatly tucked in a chopped off tube sock (some of you know what I mean here...) so I don't look like too much of a wacko.

Having my in laws over for "dinner" tomorrow afternoon.  For those of you with Italian families, you'll know that Sunday dinner occurs at about 1 PM and lasts for several hours.  I have conditioned them over the years not to expect a pasta course anymore  ;D so this won't be as taxing as it may sound.  Willie is going to grill salmon and I'll do some mashed sweet potatoes and a big Greek salad.  And, I've already warned everyone that I may retire to nap if I get too tired.  My in laws are VERY loud (it's like a movie, actually) so a nap might be just the thing - I can lay on my good ear and block everything out...   :D  For those following the wine dialoge, chianti goes very nicely with salmon, as does pinot noir.  Maybe I'll have both...  

I am counting the hours until the de-picc-ing of Debbi...
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

leapyrtwins

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Re: Debbi Bifulco Update
« Reply #515 on: June 21, 2008, 12:15:24 pm »
Debbi -

enjoy the Sunday dinner tomorrow - wish I lived in the neighborhood - the menu sounds great!

So, on Monday, do you plan to rush home and take your first "free woman" shower?  ;)

Bet you can't wait!  So happy for you!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Debbi

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Re: Debbi Bifulco Update
« Reply #516 on: June 21, 2008, 12:16:27 pm »
Hey Tam - I've got my leopard print scarf from the hospital (my bonnet adornment) - will that work??  Here's the pic...

http://s280.photobucket.com/albums/kk167/debifulco/?action=view&current=52DebsNewBonnetlook1.jpg

Jan, jump in the car and come on over - friends are always welcome at the Italian table!!
« Last Edit: June 21, 2008, 12:19:58 pm by Debbi »
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Pooter

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Re: Debbi Bifulco Update
« Reply #517 on: June 21, 2008, 01:23:20 pm »
Quote from: Tamara on June 21, 2008, 12:10:37 pm
And Pooter, It sounds like we have the same look going on - got my wrap-arounds around my glasses and bandage too.  I've got the do-rag for outdoors, and just wear the ace inside. 

Yup.  I don't wear a do-rag, but I definitely wear the ace bandage all the time and my new fancy glasses when I go outside.   8)

Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

wendysig

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Re: Debbi Bifulco Update
« Reply #518 on: June 21, 2008, 05:00:13 pm »
Debbi -
Sounds like your in heaven now that you're  about to go piccless.  I can't say that I blame you.  I was so happy for you I did the dance of joy (and managed not to fall down despite the twirling)!  Since you are having company tomorrow and I'm not quite sure what our plans are for the day, would Monday be better?  If you're available, it would probably be better for me.  Let me know when You'll be home and I'll give you a call then, if you think you'll be up to it.  Otherwise, it can wait. 

Hope the rest of your weekend is great!

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

cmp

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Re: Debbi Bifulco Update
« Reply #519 on: June 21, 2008, 09:05:03 pm »
Debbi--

That dinner sounds fabulous! (If not exactly fast food...  ;) )

Hope you enjoy the company, and also the freedom to opt out of the commotion, guilt-free, when you need to!
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5 cm AN surgery, Shands Hospital, FL, Dr Albert Rhoton, 1988; VII-XII anastamosis for right-sided facial palsy 1989; diagnosed Feb 2008 w/ 1.8 cm recurrence; drs McKenna & Martuza; surgery rescheduled for 6/24/08!

lori67

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Re: Debbi Bifulco Update
« Reply #520 on: June 22, 2008, 10:37:26 am »
Debbi - menu sounds great.  See ya at 1.  I'll bring the pasta.  My Italian family wouldn't have it any other way - you make it an eat it even if you don't want to!   :D  You know those Italians - "Mangia!".

I'm so glad Monday will be "Freedom from PICC's" day for you!  I'd hate to see your water bill after that LONG shower you're going to enjoy!  It'll be worth every penny though!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

wendysig

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Re: Debbi Bifulco Update
« Reply #521 on: June 22, 2008, 11:09:36 am »
Hi Debbi -
Just thought I'd drop you a quick note to say "H!"   Hope you enjoy your Italian Feat today with our in-laws.  I have to go with Carrie and say it's nice you can opt out with a legitimate excuse if you need to nap. I know since I've lost so much of my hearing noisy situations bother me too.  It's hard to follow conversations and just gets annoying and frustrating.    Don't lknow what I'm doing today.  Sam  went out with a friend and her mother to spend some of the loot she got for her birthday (yesterday's party was a huge success from all points of view)  Jen and Rob just went out with one of her friends.  I didn't feel like going and much to my surprise, he didn't insist (he usually doesn't like to go anywhere without me if one the girl's friends are involved.  I haven't walked yet today as I decided to sleep in for once and didn't get up until 10:30 - late for me, or anyone I guess.  Hope you have a great day!

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

yardtick

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Re: Debbi Bifulco Update
« Reply #522 on: June 23, 2008, 09:26:45 am »
Debbi,

Sunday dinner and NO PASTA.......why didn't I think of that!!  My in-laws would never darken my door step if I did that.  Oh yeah, several years ago on Thanksgiving I didn't serve the pies quick enough so my in-laws left in a huff.  You see my cousin and I where having too much of a good time washing dishes. ???  Get this, my in-laws never celebrate "TANKS DAY" until I married Louie. 

Hope your dinner went well and I hope you got some rest.  Yeah I know all about the noise level ;)
Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

lori67

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Re: Debbi Bifulco Update
« Reply #523 on: June 23, 2008, 10:12:27 am »
Anne Marie - come on now - pie comes before washing dishes!  What's wrong with you???   :D

Oh well, at least after they left in a huff, there was more pie for you, right?  Or did they take theirs to go?

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

yardtick

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Re: Debbi Bifulco Update
« Reply #524 on: June 23, 2008, 12:41:52 pm »
Lori,

Nope they left without the pie!!!  Unfortunately once they got home, they called and spoke to my husband.............gosh he got an ear full, about me being selfish and inconsiderate.  According to his father, I should have served the pie before I did the dishes.  I don't know about your house but in my house I like to clean up before I serve the coffee and pie.  It gives me a chance to sit down and enjoy also!  That's was just one of many memorable battles.   :'( 
Logged
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games
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