Author Topic: Debbi Bifulco Update  (Read 127784 times)

calimama

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Re: Debbi Bifulco Update
« Reply #90 on: May 03, 2008, 05:54:36 pm »
Willie thanks for all the updates. As you can see, there is great interest and concern, and now comfort that Debbi is well on the road to recovery.

Look forward to hearing from you Debbi you rock star you!

Trish
Left 2.9cm CP Angle AN discovered Jan 2008. Retrosig surgery June 2, 2008 Toronto, Canada. Facial paralysis and numbness, double vision (4th nerve), SSD. DV totally recovered in 4th month; palsy started to recover slowly around month 7. Had twin boys 13 months after surgery. Doing great.

ppearl214

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Re: Debbi Bifulco Update
« Reply #91 on: May 03, 2008, 07:15:39 pm »
Thanks Wille! :)  You've made an excellent secretary and Debbi should give you a raise or promotion. I'd ask for one! ;)

DEBBI!!!!!!!!! Are you reading this?  Congrats hun! You did it, you POSTIE!!!!!!!!!!! Great job!!!!  Now, don't over push and for geesh sakes, let the brood do the laundry.  Great to have you back!

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

wendysig

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Re: Debbi Bifulco Update
« Reply #92 on: May 03, 2008, 10:38:14 pm »
Debbi -

Glad to hear you are home and doing well.  Your hubby seems to be taking good care of you.  He deserves 100 gold stars.  I'm sure he will continue to pamper you, if you let him.  You are obviously a very strong person.  Good for you .  Make sure you take advantage of at least a little of the pampering you deserve.  Looking forward to getting to know you better.  Willie - thanks for the updates.  Even though only met Debbi on this site a few days before her surgery, I have been converned for her welfare.  It's good to know she's in good hands.  My best wishes to both of you.

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

kimberly

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Re: Debbi Bifulco Update
« Reply #93 on: May 04, 2008, 08:07:11 am »
Debbi ...........

So glad to hear that you are home and well.  You will no doubt get more rest and relaxation at home than you ever will at a hospital.  You have a wonderful husband.............can I borrow him for like a week or so???   :D

I wish you a speedy recovery.  This is a great time of year to be able to be home - I am not sure where you reside, but I'm in Michigan and happy that I won't have to be recovering with snow falling outside. 


kimberly

MaryBKAriz

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Re: Debbi Bifulco Update
« Reply #94 on: May 04, 2008, 09:00:58 am »
Hi Debbi,

It is so wonderful hearing that you are progressing so well. I am sure it feels SOOO good to be back home in your own bed. Your husband is a gem (as I am sure you know) so he will continue to be there for you and we will be here for you! :-) You made it to Postie status. You did it! You continue to be cheered on from sunny warm Arizona, what is snow, anyway??? LOL, in summer you in Michigan will be saying what is 110°, anyway??? Wherever you are Debbi, warm or cool, you have your fan club here.

Mary
Diagnosed March 24, 2008, 1.1cm, right side, "Goldie" - small but mighty!! :-(
Hearing, lottsa balance problems and a few facial twitches before CK
CK June 2, 2008, BNI in PHX, Drs Daspit/Kresl, side effects,steroids helped. Getting "sea legs".
Apr 2012 - Still glad I chose CK

Debbi

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Re: Debbi Bifulco Update
« Reply #95 on: May 04, 2008, 09:39:25 am »


It's me, everyone!!!  I am amazed to have been in the hospital only 78 hours from check in to check out!!!  Can anyone beat that??  I was so thrilled that they let me come home.  Resting in the hospital really is an elusive goal.  So my version of events -

I walked briskly into the OR and got myself situated on the table, staring at the bright surgical lights and taking in the ever growing team of surgical folk.  They got me put out very quickly and the next thing I knew, I was staring at that darned surgical beam light and coughing out my breathing tube (yucky, but not as bad as I thought)..  Followed by an immediate need to throw up, which they accommodated expeditiously!

Next thing was being in Recovery - like a super, duper ER episode but only with all of the fluids being real as opposed to fake.  I had massive pain in my head which took a while to control.  Before I knew it, though, I was sipping (sorta) apple juice and being visited by my wonderful husband, parents, and friends - they were surprisingly accommodating in the Rec. Room in terms of letting family come in.

I learned quickly that they got just about all of Ethel - left a few toes that were clinging tenaciously to the facial nerve, but they feel that whatever little nubs are left will be harnless.  The biggest hurdle for me was that I did come out of this with facial "numbness" which we all know means palsy.  My right side is pretty droopy, especially when I'm tired.  My eye shuts pretty well, but I need to keep drops in it during the day and goo and a patch at night.  Length of time my nerve to recover is hard to determine - maybe a couple of months or as many as five or six.  That is probably going to be the hardest part for me - but I'll work hard to do whatever I can to speed recovery.

Haven't had the dizziness that so many have - no room spinning at all.  I was up the second morning (Fri) walking to the bathroom and by later that day was doing laps (assisted) around the hallways.  Great to be up on my feet.  Started eating a soft diet the second day (very little, but enough to pass muster!)

I spent the first 24 hours in Recovery - not due to my condition but due to a shortage of beds in NICU.  Other that the constant noise and activity, the care was excellent - had a neuro nurse taking care of me and the other AN patiend of the day, so we got terrific care all night.  I didn't sleep at all the first night - lots of discomfort (yep, you were all right, that first day is a killer) and all the noise and confusion of the RR. 

Thurs afternoon I was moved to a Surgical ICU room - four of us, again, good care.  Got some rest that night.  Last night, in a semi private room that was blissfully quiet until they brought a post-gall bladder woman in - she was unable to take narcotics for pain and by 11 PM she was in excuritating pain, terrified, and I found myself teetering by her bed by 1 AM holding her hands, telling her to breath, and waiting until the nurse could get back with more stuff.  Finally at about 2 AM they found the right fix for the pain.  I felt so sorry for the poor woman - she was so sweet.

I was so good to sleep in my own bed last night - totally quiet - well, except for all the sounds in my deaf ear (more on that later).  It is really amazing what a deaf ear can think it hears.  I'll write later about some of the weird things I heard the first few days.

My superstar husband has been amazing (but you already know that) - every time I even moved last night, he was right there to make sure I was okay (and this from a man who can sleep through anything normally) - he set the alarm to make sure he got me meds on schedule. 

I am definitely feeling the exhaustion today - I expect to nap and rest most of the day.  However, I did have a half bowl of cheerios this morning - all of which made it successfully to my mouth (hey, eating with half a mouth ain't easy, kids!)  Then, Willie helped me with the much awaited shower and SHAMPOO!!!!!  I feel SO good now!  I am sitting in my comfortable chair, surrounded by my family and husband, cats and dog - life is pretty good.  So far, the SSD hasn't bothered me too much - time will tell on this.

I promise pics later (my dad even got one in the Recovery Room!) - I think you'll like what I did with my bonnet - I may be running right up at the head of the pack.

For all you soon-to-be-posties - I will be senind you lots of good vibes and energy and prayers.  Remember that the first day is pretty rough, but you will feel better each day.  If anyone wants to talk this week, send me a quick PM and I'll respond with phone number.

NYCArtist - tell your fiance she is in great hands and it sounds like she also has a great support system in you.  Tell her to practice some deep breathing when she is feeling stressed, pain or nausea - it really helps. 

You guys are awesome - all of you!

Your newest Postie - Debbi!!!!!!
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

lori67

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Re: Debbi Bifulco Update
« Reply #96 on: May 04, 2008, 09:56:36 am »
Wow Debbi - you're going to be a tough act to follow for all the others, but I know they'll do well too.

I'm so glad you are doing so well.  You set a fine example!  Small "inconveniences" are to be expected - eye drops, eating with half a mouth, noisy deaf ears... but this too shall pass - or you'll learn to deal with them.  One bit of advice - don't order soup out at a restaurant - messy!!!

Take the time your body needs to rest and recover and don't over do thing!

Continued good luck to you!
Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

LADavid

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Re: Debbi Bifulco Update
« Reply #97 on: May 04, 2008, 09:58:50 am »
Hey Postie
You did it!!!!  Congratulations.  Glad to hear things worked so well.  Now take it easy and get some rest.  And you know if you have any questions, fire away.  There are a bunch of us here that can fill you in on some of those odd little postie things.

Good going, Debbi!

David
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

jerseygirl

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Re: Debbi Bifulco Update
« Reply #98 on: May 04, 2008, 09:59:31 am »
Debbie,

Congratulations on being a postie! You made through OK and that is wonderful! Now rest and try not to get tired the first few weeks - your facial nerve will thank you for that. Everything will be back to normal, I am sure - take it form twice the postie! Are you still on steroids or painkillers?

I was wondering how many people are in NICU at NYU these days. You wrote four but I remember more from 20 years ago. Maybe, it was my double vision post surgery!

Congratulations again and have a smooth, fast recovery!

                                   Eve
Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

leapyrtwins

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Re: Debbi Bifulco Update
« Reply #99 on: May 04, 2008, 12:03:39 pm »
Congratulations on being a postie, Debbi - and in record time, too.  Very impressive!

I can't wait to see what you've done with the bonnet!  Bet we'll all be jealous  ;D

Good to have you back,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Catflower

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Re: Debbi Bifulco Update
« Reply #100 on: May 04, 2008, 12:25:45 pm »
Debbi:

Congratulations on the successful surgery and wonderful recovery.

Linda in WV

AJ

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Re: Debbi Bifulco Update
« Reply #101 on: May 04, 2008, 12:58:44 pm »
Debbi, very happy to hear that your surgery went so well.  You seem so full of energy and spirit so soon after your surgery.  WOW!  Very impressive  ;D   I wish you continued success on your recovery. 

God Bless,

Annette in sunny AZ
2.5cm AN diagnosed 3/25/08 Barrow Neurological Institute, Phoenix, AZ
Some hearling loss in right AN ear.
Slight Tinnitus and slight imbalance.
CK scheduled for May 28th! Woohoo!

Kaybo

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Re: Debbi Bifulco Update
« Reply #102 on: May 04, 2008, 02:14:09 pm »
Way to go Debbie!

I'll write more later -- I'm off to catch a plane back to Houston!  So proud of you!!


Hugs,
K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Tamara

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Re: Debbi Bifulco Update
« Reply #103 on: May 04, 2008, 03:17:09 pm »
Congrats on a stellar recovery!  I'm inspired, but don't know if I'll be able to meet the standard you've set!! ;)

Well done!
Tamara
7 mm AN left side
translab 6-12-08
postop issues including CSF leak, eye issues, and facial palsy.  All issues resolved at 9 mos. except slight facial palsy & weakness.  Continuing to improve...

jtd71465

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Re: Debbi Bifulco Update
« Reply #104 on: May 04, 2008, 04:50:29 pm »
Great to have you back and on the road to recovery.


Joe-
Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos