Welcome Kelly Oakland,Exactly this very day this time last year I got “the call� from my ENT that I had an acoustic neuroma (Vestibular schwannoma is the same thing -just harder to pronounce)… I was overwhelmed… read way too much out on this forum and started to freak. Somehow (after hoards of research & decision making) I was transported from Oregon to California, walked into the Stanford ENT department with the tumor …and out without it…. Here I am, now 9 months later, doing well… however it was quite the journey in between – Nevertheless I came through it and still continue to recover and move forward with life.
Know that you have a small tumor (mine was huge), these do not typically grow fast, and in the majority of cases these are benign. You have lots of time to do research, talk to people on this forum and read up on
this thing- that, last month, you had never even heard of. Just try not to get bombarded with all the information at once.
I think STEVE is a great person for you to connect with. Personally if my tumor had been discovered at that small stage, and I was living in Northern California, I would head straight to Dr. Chang at Stanford.
http://www.stanfordhospital.com/clinicsmedServices/COE/cyberknife/default&
http://www.stanfordhospital.com/search/PhysicianDetail?doc=2077He has amazing success stories on our forum
http://anausa.org/forum/index.php?topic=894.0http://anausa.org/forum/index.php?topic=5469.0http://anausa.org/forum/index.php?topic=5105.0http://anausa.org/forum/index.php?topic=5903.msg54753#msg54753http://anausa.org/forum/index.php?topic=6063.msg58464#msg58464http://anausa.org/forum/index.php?topic=5530.msg50571#msg50571Their ENT dept is good too. My AN tumor was discovered way too late for me to qualify for Gamma Knife… however if I could turn back the clock and choose which route I would have gone IF my AN was discovered sooner- Dr. Chang’s office, there in California, would be the door I would walk through.
Daisy Head Mazy
