Brain & Jenni,
I have been off the forum for a while… (you would not believe how much stuff we are getting done around the house as a result!
)
…Gee whiz I missed all the excitement. I regret not being on as I would have pointed out the Diamox issue and its side effects.
Oy ya ya – what a trip. (Spinal tap- to boot
)
Brian wrote
"I then need to contact my doctor for a replacement for the diamox to reduce the swelling since it's somewhat back up now that I'm off the med." I am guessing you have been taken off this abruptly instead of weaned slowly. If you show any coordination issues or if the leaks return be sure to contact the doctor
immediately. The abrupt wean can cause leaks again – as it did with me. I too remember being cold and constantly requesting heat bags and blankets. The Diamox works on the kidneys so it can have your system go all over the place. Be sure to have the “
pee in a cup� test done at your next doctor visit to make sure you kidneys returned to normal. Potassium and sodium levels can go all over the place -on that nasty drug.
Jenni wrote
"I'm ready to fatten my boy up again (since he has now lost 25 lbs)..." The Diamox kills the appetite not to mention has you pee all the
good calories out.
I went down to 112lbs (I am just over 5’3�) … and it was getting scary as I was becoming so weak. I remember those days well. (Although I would like to forget)
My neighbour (a retired dietician technician) declared,
“My goodness you are a rack of bones!" ...and returned with grocery bags of ensure, boost, etc. as she was determined to fatten me up and get color back into my face. Buy some Carnation Instant Breakfast (cheaper than boost or ensure but same nutritional value) and mix it with milk to keep the calorie intake up. Try to get more protein into you- Brian.
Keep walking and keep eating. Healing will happen.
Hang in there!
Daisy Head Mazy