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Author Topic: Syl's surgery update  (Read 29630 times)

sgerrard

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Re: Syl's surgery update
« Reply #105 on: August 04, 2008, 11:15:15 pm »
Quote from: Syl on August 04, 2008, 10:58:18 pm
I feel good right now, but will not be surprised if tomorrow isn't such a good day.

Well, they say the optimist is sometimes disappointed, while the pessimist is sometimes pleasantly surprised. You are sounding like a seasoned ANer now. ;)

Actually, your news is very good. Both driving yourself around, and walking around without a cane, are significant developments. Enduring a 9 hour visit to Marine World is a feat in itself, even for a normal person. :)

Great to hear you are making such good progress.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

NL

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Re: Syl's surgery update
« Reply #106 on: August 05, 2008, 02:00:57 am »
Hi Syl,

I just caught up with all your good news!

Congratulations on everything!

Nancy
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1.6 cm left AN diagnosed Oct. '07
1.9 cm on 2nd MRI, May '08
Retrosigmoid surgery at House Clinic/St. Vincent's on 8/6/08
(no post-op dizziness, nausea, facial or balance issues)
Thankful for a fantastic team of doctors - Dr. Rick Friedman, Dr. Marc Schwartz, & Dr. Michael Stefan

Kaybo

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Re: Syl's surgery update
« Reply #107 on: August 05, 2008, 08:24:43 am »
WHOO-HOO!!! 
that's all I have to say about that...

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Pooter

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Re: Syl's surgery update
« Reply #108 on: August 05, 2008, 09:47:22 am »
Syl - That's great news!  You are coming along great!  Walking without your cane *and* driving yourself around!  Great job!  Before you know it, you'll be driving old men off the road like Jan!  ;)

Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Debbi

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Re: Syl's surgery update
« Reply #109 on: August 05, 2008, 10:37:00 am »
Syl-

Thrilling news!  So glad you are mobile again - it's a great feeling, isn't it?

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

cindyj

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Re: Syl's surgery update
« Reply #110 on: August 05, 2008, 11:14:19 am »
Wow, Syl, you really have had a great few days! Sounds like wonderful progress!  You are, of course, still intitled to nap times, lots of them!

Hope the good news continues,

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

wendysig

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Re: Syl's surgery update
« Reply #111 on: August 06, 2008, 05:56:22 am »
Hi Syl,
I am just playing catch up on the forum again.  My backaches are still plaguing me and keep me away for a day or two at a time.  Great news about your trip to Marine World, driving and doing your 3 mile walk again.  Did you start your vestibular rehab yet?  I have my first appointment next Tuesday and am curious to see how yours went  Maybe we can compare notes after my first session.  I'm very hopeful this will help -- the TP seemed sure it would.

Wishing you all good things,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Syl

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Re: Syl's surgery update
« Reply #112 on: August 06, 2008, 10:40:32 am »
Wendy,

Had my 1st P/T appt. today. The therapist tested me with some exercises to see where I am with my balance. Then, we worked on my balance. I noticed improvement with each exercise I did. The first repetition for each revealed my vestibular deficiencies, but the final repetition showed noticeable improvement. After working with her for almost an hour, I left feeling dizzier than when I arrived for my appt. But that's how it is with vestibular exercises. She seems to think I'm doing really well, and come to think of it, so do I. It's amazing how fast my remaining vestibular nerve is kicking in. Sometimes I feel it's asleep at the wheel, but not today. I was sent home with some exercises for homework and will see here again in 2 wks. LIFE IS GOOD!!

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

Pooter

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Re: Syl's surgery update
« Reply #113 on: August 06, 2008, 10:57:46 am »
Woo woo!  Congrats on your first appt!  That's all really good news!  A milestone for sure!  Congrats!

Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

wendysig

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Re: Syl's surgery update
« Reply #114 on: August 08, 2008, 07:08:05 am »
Yay Syl!!

It sounds like your first PT session was a complete success and I am ecstatically happy for you.!  Hope the homewolrk your PT gave you helps things improve daily.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Syl

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Re: Syl's surgery update
« Reply #115 on: August 08, 2008, 11:35:50 am »
Hello friends,

Yikes!!!! I have one more full week before I'm due to make an appearance a work. I'm due back Tues, Aug. 19.
Two weeks ago, I was having doubts about being ready and was considering extending my med. leave. Since then I have noticed a great deal of improvement in my condition (dizziness, balance, headaches) so I will show up as scheduled. However, my plan is to work shorter days that 1st week.

Life is returning back to normal.

Syl
Logged
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

Kaybo

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Re: Syl's surgery update
« Reply #116 on: August 08, 2008, 12:08:50 pm »
Syl~
Glad you are going shorter days at first.  I did 1/2 days the first week - I alternated mornings & afternoons.  You might think about that, especially if there is a lot of traffic or something in your commute or getting ready seems to take more out of you than planned.

K
Logged
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

sgerrard

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Re: Syl's surgery update
« Reply #117 on: August 08, 2008, 06:27:43 pm »
Syl's checklist:

  Facial Nerve    :)
  Hearing          :)
  Walking          :)
  Driving           :)
  Balance          :)
  Dizziness        :)
  Headaches      :)

Yup, you should be ready!

Steve
 
 
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Syl

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Re: Syl's surgery update
« Reply #118 on: August 08, 2008, 09:08:22 pm »
Thanks Steve,

When you put it in a list like that, my progress report is excellent.

Syl
Logged
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

Kate B

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Re: Syl's surgery update
« Reply #119 on: August 08, 2008, 10:03:17 pm »
Quote from: Syl on August 08, 2008, 11:35:50 am
Since then I have noticed a great deal of improvement in my condition (dizziness, balance, headaches) so I will show up as scheduled. However, my plan is to work shorter days that 1st week.

Life is returning back to normal.

Syl

Syl,
Starting with shorter days the first week is a great idea. 

I am doing a happy dance for you celebrating your improvement in your condition.

Kate
Logged
Kate
Middle Fossa Surgery
@ House Ear Institute with
Dr. Brackmann, Dr. Hitselberger
November 2001
1.5 right sided AN

Please visit http://anworld.com/
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