Thank-You Everyone:
People on my mother's side of the family, were doctors. We need to have support and stay informed. Here is a small section of an email I received this morning, regarding my good news; she is my neighbor. (a local) Some people don't understand our journey (frequent/necessary radiologist opinions, doctor consultations and treatment) and the reasons for this "AN Forum." It is important sharing with you to "listen" to your body, doctors and "yourself"---always.
See below what was sent to me in RED! (it's not in "red" on this screen)
You said that in six months, you'd need another MRI....if you're not hurting, couldn't you put that off? You also said it costs you about 5 grand, I think. Laura, when I get a pain, I usually IGNORE it, and it goes away eventually. You, I think, head to the internet and see the lists of symptoms and start to feel WORSE. Sometimes good health is in your attitude! Please begin to see illnesses as annoyances to be ignored instead of giant battles to be fought tooth and nail with everything you've got!!!!! You need to declare a moratorium on anything wrong with your body!!!!!!
*No, I don't feel worse---I feel so much better and it's all because of you people. Others, we have to "let-go" and hold the hands of strength in soul-mates. (along with forum members) Sometimes, we have to leave others behind which is part of this journey.
In six months, the MRI series will be viewed more closely because, of the reading from Dominican Hospital. I'm so thankful for any indication where "my team" will view this situation more carefully.
Sadly, as we all know on this list, you don't play "games" with symptoms. They are warning signals and mean something is amiss. When doctors sometimes have no answers for us or if we were to "ignore" problems---the AN (or any other problem) will eventually progress past more simple treatment.
I'm very appreciative of the report from Dominican MRI Center as, it clearly is a "head-up" for any professional in the future who will read my next MRI in six months. As all of you know, the NF2 possibility is all the more reason to keep on schedule with your appointments, communication on the list for sharing/learning and support/helping others.
I need to feel rejoice and not be "blasted." You people are kind and understanding. I need to thank you again for being there for me as, we don't need ignorant comments. This situation is hard enough for all of us and the email I got this morning is an example of how much we need each-other, here! My husband encouraged me to post this.
The emptiness, sadness, stress, fatique and more---"is over-whelming!" It is all of you that keep us going through this where others don't understand at all.
Your support means even "more" to me now........
Palace
