Negative Gamma Knife Stories Only!!!

[Nancy Drew]

Hi!

This is Nancy Drew once again doing her detective work.  Since I have already asked for positive gamma knife stories and gotten them (and I am so happy for all of you), I need to turn the question around.  I need to hear from those who have not been so fortunate in their GK journey.  I am especially interested in getting info about hearing preservation since I have fairly good hearing and want to keep it.  In advance, I am sorry if you had disappointing results with your GK--not fair.

Nancy 

[linnilue]

Well, I will be very clear here.  I had linac, a form of radiation, a one shot deal like gk.  My hearing was totally normal until 4 months after the linac and one night I lost almost all of my heaaring hearing, including the acoustic reflex.  However, I honestly don't find this so difficult to deal with in fact I forget about the loss most of the time.  I am 3 1/2 years out.

[Nancy Drew]

Kikynu,

I am so sorry to hear about your negative results, but it sounds like you are coping well.  The treatment you had, is it apples to apples with GK?  I need to research what you are talking about.  I am not aware of other types of radiation except GK and CK.  It must have been horrible to go in with normal hearing and then have such a drastic hearing loss.  That is my fear.  Take care.

Nancy