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Author Topic: on the road to recovery  (Read 24826 times)

MAlegant

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Re: on the road to recovery
« Reply #105 on: August 26, 2008, 07:47:50 am »
Hi Kay,
Now there's a thought!!
M
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

MAlegant

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Re: on the road to recovery
« Reply #106 on: August 27, 2008, 08:40:54 am »
Survived the public speaking, didn't spit, trip, or drool.  Did have to work mighty hard to speak clearly, but at least that's over...now to pack the kid up for college!
M
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

lori67

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Re: on the road to recovery
« Reply #107 on: August 27, 2008, 09:31:41 am »
Phew.. I'll bet you're glad that's over.  I'm sure it will only get easier from here on in.  The speaking part, maybe not the college send off part!

Hooray for you!!!!!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Debbi

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Re: on the road to recovery
« Reply #108 on: August 28, 2008, 11:21:48 am »
Yahoo, Marci!!  So proud of you! 

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

MAlegant

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Re: on the road to recovery
« Reply #109 on: September 02, 2008, 09:34:56 am »
Hi all,
Just returned from a grueling trip to Boston (drove up and flew back) to drop my baby boy at his new apartment.  Although I wasn't much help driving or moving, I WAS THERE!  And that was a goal for me post-op, one I wasn't sure I'd achieve.  I know my son appreciated me being there and besides, if it weren't for me, my husband and son would have killed each other.  We went out to dinner twice and I only had minor mishaps (face is still numb), but other than spilling food and drink on myself I came through unscathed. I was horrified that I misread the driving directions and got us lost; I'm usually the navigator, but the boys were forgiving.

Tomorrow I begin half-days at work.  I hope I can still do my job. I am bothered by the "lost word" syndrome but will try to improvise.  At least I don't need a map to find my office. Stay tuned..
Marci

ps: after just 6 weeks my scar is virtually invisible.  I used scar butter from Sephora and have been pretty good about massaging the scar...creepy as it may sound.
« Last Edit: September 02, 2008, 09:40:36 am by MAlegant »
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

lori67

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Re: on the road to recovery
« Reply #110 on: September 02, 2008, 02:34:53 pm »
Marci,

I'm glad to hear you survived your trip and dinners out!  And I don't think directions are very helpful when in Boston anyway, since I always seem to get lost there, even when following the directions exactly!  I think it must be a part of the master plan of the people of Boston - they want to keep the rest of us out!   :D

Good luck back on the job.  I'm sure you'll do fine!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

ppearl214

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Re: on the road to recovery
« Reply #111 on: September 02, 2008, 02:42:53 pm »
Quote from: lori67 on September 02, 2008, 02:34:53 pm
I think it must be a part of the master plan of the people of Boston - they want to keep the rest of us out!   :D

Ah, you finally caught onto us! :)

Sorry to have missed you while you were here, Marci! I know it was a hectic time for you. I'm only 15 min from downtown.... maybe next time!

*drives outta thread, cutting off poster's cars while changing driving lanes without use of my turning directional blinker* :D

Phy
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

MAlegant

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Re: on the road to recovery
« Reply #112 on: September 02, 2008, 04:08:43 pm »
Phyl,
I will definitely email you the next time I'm in town, which is at least once or twice a year. Love Boston, hate the driving!
M
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

MAlegant

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Re: on the road to recovery
« Reply #113 on: September 04, 2008, 04:30:45 pm »
Hi all,
I have now worked part-time for two consecutive days.  Yesterday I was exhausted, today was better.  I think I can, I think I can....
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Kaybo

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Re: on the road to recovery
« Reply #114 on: September 04, 2008, 05:15:13 pm »
WHOO-HOO!!!!

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

wendysig

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Re: on the road to recovery
« Reply #115 on: September 04, 2008, 06:25:20 pm »
Marci,
Congratulations on your return to work.  Even going part time I'm sure it is a challenge.  One more day to go and then you can have a nice relaxxing weekend.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Pooter

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Re: on the road to recovery
« Reply #116 on: September 05, 2008, 08:30:48 pm »
Congrats on returning to work, Marci.  The fatique gets better.  You learn to manage it better, too.  It sure sounds like your recovery is right on track.  I'm happy for you!

Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

sgerrard

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Re: on the road to recovery
« Reply #117 on: September 06, 2008, 09:10:34 am »
Quote from: MAlegant on September 04, 2008, 04:30:45 pm
I have now worked part-time for two consecutive days.

Workaholic.  ;D

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Jim Scott

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Re: on the road to recovery
« Reply #118 on: September 06, 2008, 02:14:50 pm »
Quote from: MAlegant on September 04, 2008, 04:30:45 pm
Hi all,

I have now worked part-time for two consecutive days.  Yesterday I was exhausted, today was better.  I think I can, I think I can....

Marci

Showoff.

Seriously, I think you can, too.  Go Marci!  :D

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

MAlegant

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Re: on the road to recovery
« Reply #119 on: September 06, 2008, 02:41:09 pm »
Yes, three half-days of work and I'm still here.  I will do the same for one more week before jumping all the way back in.  Thank you for the encouragement--what would I do without you guys?

So, when does your head (the AN side) begin to feel more normal?  Or is it just a given that it will feel weird forever?  I can handle that, just want to know. 

Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.
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