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Author Topic: My 2-1/2 yr CK treatment results are in!  (Read 13263 times)

Debbi

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Re: My 2-1/2 yr CK treatment results are in!
« Reply #15 on: August 14, 2008, 03:27:05 pm »
Phyl-

I am SO thrilled to hear your news!!!!!  I declare this weekend an offical "Celebrate Phyl's MRI" holiday!!!  And, I have a very nice bottle of wine to honor the occasion.

hugs to you, Phyl!

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Jim Scott

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Re: My 2-1/2 yr CK treatment results are in!
« Reply #16 on: August 14, 2008, 04:02:23 pm »
Phyl:

As another AN patient who recently celebrated my 2-year MRI showing definite necrosis, I share your elation and congratulate you on this not-so-small victory in your AN journey.  Way to go, Phyl!  :)

No one can predict the future but I certainly hope and pray that you have many more such encouraging MRI scans.   

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

MAlegant

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Re: My 2-1/2 yr CK treatment results are in!
« Reply #17 on: August 14, 2008, 05:30:47 pm »
And in honor of Phyl's good news, I am going to celebrate by eating ice cream.  Not that I needed an excuse. 
M  ;D
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

windy

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Re: My 2-1/2 yr CK treatment results are in!
« Reply #18 on: August 14, 2008, 05:33:37 pm »
Phyl,

I am so happy for your good news!!

Windy
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* Diagnosed w/AN (9mm x 11mm x 9mm) - 6-10-08
* GK @ UPMC w/Dr. Lunsford - 8-5-08
* Stable MRI - Aug. 2009
* 2 MM's Growth - Aug. 2010
* Lost 60% Hearing - Dec. 2010
* More Growth?? - Wait & Watch - Jan. 2012
* 1 MM Shrinkage - Aug. 2012
* 2 MM's Shrinkage - Aug. 2013
* Slight Shrinkage - Aug. 2014

Pooter

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Re: My 2-1/2 yr CK treatment results are in!
« Reply #19 on: August 14, 2008, 09:10:14 pm »
WOW!  Congrats, Phyl!  I, too, wasn't hear for the first day, but I've been continuallly encouraged by you and your posts.  I'm very happy for you!  That is GREAT news!

Brian

PS All this good news is what I need so I don't think about my truck that was almost broken into, lock broken, and how much it's gonna cost me to fix.. ugh!  At least they can't tell me I have a brain booger too! ;)
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

krbonner

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Re: My 2-1/2 yr CK treatment results are in!
« Reply #20 on: August 15, 2008, 07:57:02 pm »
**doing a very bad white girl dance around the family room while trying to avoid stepping on the cat's tail and causing a ruckus that would wake all the sleeping children in the house**

Woo-hoo and a big congratulations!

 ;D

Katie
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diagnosed June 2005
2.3cmx1.6cmx1.4cm left AN
translab Sept 13, 2006; Drs. McKenna and Barker in MA (MEEI/MGH)

Brendalu

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Re: My 2-1/2 yr CK treatment results are in!
« Reply #21 on: August 16, 2008, 04:41:12 am »
Phyl!

What more can I say, except  WONDERFUL NEWS!  Yeah! Yeah!  That's great!!
Huggles and more,
Brenda :)
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Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

ppearl214

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Re: My 2-1/2 yr CK treatment results are in!
« Reply #22 on: August 16, 2008, 08:02:42 am »
Bottles of wine... ice cream (yep, no reason needed for that!), dancing around,  all the whoopla  and all the wishes.... I just thank you all... truly! I couldn't get through this without you all.

Have a fab weekend!  and thank you all again for the well wishes... right back atcha!
Phyl

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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

leapyrtwins

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Re: My 2-1/2 yr CK treatment results are in!
« Reply #23 on: August 16, 2008, 09:31:18 pm »
Phyl -

while I'm not talented enough to send you awesome pictures of Michael Phelps & Co., or animated pictures of Beanie & Sadie, I hope you'll realize just how ecstatic I am by this incredible news!!!
 
As someone else said, I think it was my "sister" Kaybo - YOU RAWK!!!  ;D

Celebrating - in absentia - right along with you!

Pop the champagne cork and raise your glass in a toast!

Jan

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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Larry

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Re: My 2-1/2 yr CK treatment results are in!
« Reply #24 on: August 17, 2008, 10:51:44 pm »
WOO HOO
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2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

jb

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Re: My 2-1/2 yr CK treatment results are in!
« Reply #25 on: August 18, 2008, 10:37:10 am »
CONGRATS!!  :D
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2 cm right-side AN, diagnosed July 2006
Cyberknife at Georgetown Univ. Hospital, Aug 2007
Swelled to 2.5 cm and darkened thru center on latest MRI's, Dec 2007 and Mar 2008
Shrinking! back to 2 cm, Aug 2008
Still shrinking (a little), I think about 1.7 cm now, Aug 2009

Esperanza

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Re: My 2-1/2 yr CK treatment results are in!
« Reply #26 on: August 18, 2008, 01:29:03 pm »
 ;D Very, very, very, very, very HAPPY! for you, kind ladyl!  ;D

x
« Last Edit: August 18, 2008, 01:31:39 pm by Esperanza »
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Profoundly deaf suddenly on AN side with vertigo January 3rd 2008.
12mm left side AN diagnosed 20th Jan. 2008.  MRI  in July shows no growth. What do I do now?????

ppearl214

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Re: My 2-1/2 yr CK treatment results are in!
« Reply #27 on: August 18, 2008, 02:06:12 pm »
you all are gonna make me blush, dang it! :) Thank you!

the key will be next Monday's appt at BI with the radio/neuro team.... keep all appendages (ie: fingers, toes, legs, etc) crossed for good luck!.... if I get the news me thinks I'm gonna get, free rides for all on the Moderator Leer Jet! w00t! :)


thanks again... truly......

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Pooter

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Re: My 2-1/2 yr CK treatment results are in!
« Reply #28 on: August 18, 2008, 09:27:27 pm »
WOO WOO!  I'm first!  I'm first!  Congrats again!  I, personally, feel no angst for your next appointment on Monday. ;)  (Good luck anyhow!)

Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Kaybo

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Re: My 2-1/2 yr CK treatment results are in!
« Reply #29 on: August 19, 2008, 09:08:13 am »
I am in the same state as Pooter - can you pick me up next???  Can we go to the island where the luau is??  Can we???

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!
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