came across this young lady a while back - a USA Teacher
cancer at 15, now 30 and NF2, and completely deaf (AN x many), with balance issues etc etc
Down and out ?, taking it easy ?, waiting for the world to end ?
Not a word of it - She plans to hike (NF2 balance and all), 30 miles in the one day...
Its a charity walk, for support for other NF2ers
Check out the website
http://www.firstgiving.com/myquest4nfI think she may well be "completely zarking" (its a UK term)
- but I also think someone like that should be supported
I will arrange to get sponsership across the water somehow
I know times are tough in the big country (as they are here)
but tell your kith and kin - even a small contribution helps
..... ps ...she has a neuro OP in two weeks......
....pps ....I dont think "zarking" quite covers it...
...ppps ...make em tough, stateside dont they .....
Best Regards
Tony