Newly diagnosed with NF2 and have questions

[DontLookBack]

I have been a part of the Meningioma Mommas but there are only a few on there with this. I had surgery on 8/25/08 and my NS removed 4. He was unable to remove the M in my Saginal sinus and the four acoustic neromas I have. Now, I've been dealing with tinitus and that wasn't so bad. Now I'm experiencing blank spots of hearing loss. They don't happen all of the time just every once in a while and it only lasts for a second or two. Have any of you experienced this? Just curious because I just went through surgery and I know my NS is talking about Gamma Knife but down the road a bit. I'm already looking at a year to recover from the first surgery. Thanks for listening.
 

[Kaybo]

Hi Don't Look Back~
I can't really answer any of your questions - a lotta help I am, huh?  But I just wanted to Welcome you to our little corner of the world!  We have a lot of fun here, try to answer questions, and are VERY supportive & caring - hope THAT can help you!!

K   

[leapyrtwins]

Kelly -

just wanted to say hi and welcome 

Jan

[tony]

Sorry to hear of your troubles
Hard to call the exact cause of symptions
but understand that any local swelling or bruising
will cause a nerve to mis-fire (is a blood flow thing ?)
that applies to both hearing and balance
so careful with ladders and stairs for a whlie ?
Gamma maybe an option - it depends a bit
how big and where exactly the tumour is
Given the NF2 position - best to deal with docs
who have experiance with the condition
Best Regards
Tony

[ppearl214]

Hi Kelly and welcome.  I'm sorry to hear you've been having such a rough go of things, but hoping Tony and all can help provide answers that you seek. Glad to have you here..... and again, welcome.

Phyl