Author Topic: feeling guilty...  (Read 3585 times)

scarriegirl

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feeling guilty...
« on: September 23, 2008, 02:05:56 pm »
just called into work tonight for the first time.  usually i just suck it up and go anyway, but tonight i am just to tired.  i feel like i got hit by a truck...my joints ache and i had nightmares last night of being stuck in deep snow and not being able to pick my legs up.  tinnitus is SCREAMING in my an ear and numbness is worse than ever.  new symptom of eye twitching started last night too...yay!  feels like a tennis ball is in my ear.  just couldnt bear the thought of getting on the train and going to work till 2am.  (i bartend 3 nights a week)  but i feel guilty for using the "tumor excuse"  i am feeling really sick today, but not all days are so bad.  my boss is extremely understanding and cool...but i NEVER call in.  yuk.  hate having the guilts!  hate feeling sick in a bar full of people more though!  can't wait to be on the other side of all this. 

thats my rant of the day!!!!

xx
carrie
"when you reach the end of the rainbow there's always another color!"
finally diagnosed 8/08
retro surgery scheduled nov. 17 at boston medical
there is a tennis ball in my ear!! at least it feels like it.

lori67

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Re: feeling guilty...
« Reply #1 on: September 23, 2008, 02:15:05 pm »
Carrie,

Don't feel guilty!  You deserve to take a break every now and then, and I'm sure you needed it.  They'll survive without you for a night!

Now, if your boss is the one in the picture you posted, I don't think I would have called in sick!  I could easily work with him (or her) as a boss!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

scarriegirl

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Re: feeling guilty...
« Reply #2 on: September 23, 2008, 02:21:49 pm »
thanks lori!
that pic is from june in jamiaca the day before i was married!!  dolphins are so amazing!!!  my husband and i are going to have a "do-over" wedding after i have recovered somewhat.  we were married on the summer solstice, so we may have another wedding on the winter solstice....probably not in jamaica again although i wish we could!!!  i want to be a newlywed tumor free!! not fair to be diagnosed a month after being married... :-[ 

xx
carrie
"when you reach the end of the rainbow there's always another color!"
finally diagnosed 8/08
retro surgery scheduled nov. 17 at boston medical
there is a tennis ball in my ear!! at least it feels like it.

Jim Scott

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Re: feeling guilty...
« Reply #3 on: September 23, 2008, 03:04:09 pm »
Carrie;

While I admire your work ethic, I think you need to cut yourself some slack here.  Although I'm retired now and was when my AN was discovered, I worked for 45 years, 25 of them in a fairly demanding job as a radio disc jockey.  I was expected to sound bright and cheery no matter how I actually felt.  Like you, I used to dread ever having to 'call in sick' and, also like you, I almost never did.  So, I can empathize with your guilt feelings.  However, my wife used to admonish me for feeling guilty if I had to take a day off because of some illness (which was rare - I was in very good health most of my life).  I finally realized that as long as I didn't abuse my 'sick days' and was honest about any 'sick' excuses, I had every right to 'call in sick'.  So do you. 

As any good boss will tell you, even if you do come in, you aren't much use to them if you're too sick to do your job.  From your post, it appears as if you really were too sick to do your job in a busy, noisy bar.  You obviously needed the night off.  I think your boss is so understanding because he realizes you aren't a slacker who calls in sick every time you have a hangnail or something.  That speaks well to your integrity and your relationship with your boss.  I would lose the guilt and try to feel better. 

By the way, I like the dolphin photo, too.  Too bad we see more dolphin in it than we can see of you.  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

mindyandy

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Re: feeling guilty...
« Reply #4 on: September 23, 2008, 03:53:05 pm »
Carrie
Dont feel guilty....Everybody needs to take a day to themselves....LOL. How big is your AN? I'm glad to hear that you have a scheduled date ;D. Take Care and stop feeling so GUILTY!!!!
14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

lori67

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Re: feeling guilty...
« Reply #5 on: September 23, 2008, 04:21:54 pm »
Hey Carrie - I got married in Jamaica too!   ;D

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

scarriegirl

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Re: feeling guilty...
« Reply #6 on: September 23, 2008, 04:35:06 pm »
well lori, i guess we have more than one thing in common! jamaica is an amazing place!! 

and i'm feeling less guilty as i realized staying home means i can watch the new house, and the premiere of svu and (oh shame ::)) 90210!  terrific tv night my tumor chose to act up on!!  maybe it's smarter than i thought ;D
"when you reach the end of the rainbow there's always another color!"
finally diagnosed 8/08
retro surgery scheduled nov. 17 at boston medical
there is a tennis ball in my ear!! at least it feels like it.

lori67

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Re: feeling guilty...
« Reply #7 on: September 23, 2008, 05:50:23 pm »
Oh, okay, so the truth comes out... you weren't really feeling sick - you just didn't want to miss 90210!   :D

I would have done the same this Thursday if I had to work - wouldn't want to miss Survivor or Grey's Anatomy!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Nancy Drew

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Re: feeling guilty...
« Reply #8 on: September 23, 2008, 07:34:04 pm »
Hi Carrie,

I will say ditto to what all have said here about losing the guilt.  Mental health days are well earned.  Take care of you!!!  I can relate to the achy joints and nightmares.  My joints hurt every night it seems, and I am sure it is all of the stress I have carried around the whole day in association with worrying about this AN along with having to deal with bothersome symptoms.  My nightmares usually consist of being trapped in the GK machine . . . I'm in there, all of the doctors die, and I'm stuck in that machine forever . . . Or, I'm in the GK machine and the whole team goes out for a long lunch  . . .  The nightmares get pretty weird sometimes.  I actually ended up going to see the nurse at the GK center, and she told me a lot of patients have those very same nightmares.  I thought my mind was being creative!!!  I am so sorry to hear that you didn't get much "honeymoon" time before you found out you have the AN.  You will definitely have to take a second honeymoon AN free, and you might want to stay away from the tennis courts for awhile!!!

Jim,

Finally you reveal yourself!!!  My husband was a radio DJ while in college.  I listened to him every morning for two years before I met him.  Took me awhile to put two and two together before I realized it was him.  What format did you do?  My husband did a little bit of everything!

Take care, Carrie . . . BREATHE :) :) :)

12/05 AN diagnosed left ear 4.5mm
06/08 6mm
Gamma Knife 10/21/08
1 year MRI  6.8mm x 5.5mm
2 year MRI  5.9mm x 4.9mm
3 year MRI  6.5mm x 6.0mm 
Slight Hearing Loss Post GK

Swedish Gamma Knife Center
Englewood, CO
Dr. Robert Feehs

leapyrtwins

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Re: feeling guilty...
« Reply #9 on: September 23, 2008, 09:56:21 pm »
Carrie -

don't feel guilty.  Everyone is entitled to a little "me" time - even if it sometimes interferes with their day job - or night job, whichever the case may be ;)

Be good to yourself and do what you need to do to keep yourself mentally healthy.  Being diagnosed with an AN and then making a treatment decision is definitely stressful.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

wendysig

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Re: feeling guilty...
« Reply #10 on: September 24, 2008, 08:20:54 am »
Carrie,
Taking a mental health day is actually a positive thing.  You need to take good care of yourself right now and there's no reason to feel at all guilty.  Sometimes we all just need time for ourselves, especially at times like this.  I hope you enjoyed playing hookey and 90210!

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

tenai98

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Re: feeling guilty...
« Reply #11 on: September 24, 2008, 08:50:58 am »
A day off sounds great...Fortunately my boss was unable to book me for tomorrow night so I get to see the new season of Grey's Anatomy...yaaaaaaaaaaaaaa ::)  But then again I just went back to work this week...hehehehe...Always have summers off.... ;D
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

scarriegirl

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Re: feeling guilty...
« Reply #12 on: September 24, 2008, 09:37:07 am »
well, i guess i really did need the night off...i just woke up and it's 11:30!!!

no nightmares last night...buy woke up earlier with my jammies soaked in sweat and freezing.  anyone else getting night sweats?  not everyday, but i get them a couple times a month...just started this summer.

xx
carrie
"when you reach the end of the rainbow there's always another color!"
finally diagnosed 8/08
retro surgery scheduled nov. 17 at boston medical
there is a tennis ball in my ear!! at least it feels like it.

Nancy Drew

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Re: feeling guilty...
« Reply #13 on: September 24, 2008, 02:06:06 pm »
Carrie,

I have had the sweats with nightmares.  You look too young to be having hot flashes.  Might be a good questions for your doc--maybe hormone related (just a guess).  Glad to hear you got some sleep.  Your body usually tells you when you need to rest.

Nancy
12/05 AN diagnosed left ear 4.5mm
06/08 6mm
Gamma Knife 10/21/08
1 year MRI  6.8mm x 5.5mm
2 year MRI  5.9mm x 4.9mm
3 year MRI  6.5mm x 6.0mm 
Slight Hearing Loss Post GK

Swedish Gamma Knife Center
Englewood, CO
Dr. Robert Feehs

scarriegirl

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Re: feeling guilty...
« Reply #14 on: September 24, 2008, 11:24:11 pm »
nancy...maybe i did have nightmares and was just too knocked out to know it!! i will ask my doc.   also i take zoloft and i think that may have something to do with the night sweats. 

jim, i think we should start a picture thread so we can all see eachother "face to face"  or show off or whatever...if one doesn't already exist...

it is nice to put faces to the names we are posting to.  if people are comfortable with that.  also i would be very reassured to see postop pics too so i know what to expect!! 

my "novacaine face" is horrible today!  i think i may have noticed an imbalance in my mouth while putting on lipstick today...but maybe i am also looking for something to be there.....this is so frustrating!!!!!

thank you all for being here to read and respond to my rants.  it is nice to have a place to put things out there that noone else can really understand. 

soon enough i will be on the other side and will be able to help others the way you all are helping me now.  i am so grateful.

phyl, i am 99% going to attend the brunch...my husband will most likely be out of town on tour...oh the trials of marrying a musician!!  but if he is i will drag my mom along as she has been a huge part of this journey....she brought me two pairs of jammies for my hospital stay today  :D  looking forward to meeting you all!   and lori, we should schedule a jamaica brunch asap!  ;)

xx
carrie
"when you reach the end of the rainbow there's always another color!"
finally diagnosed 8/08
retro surgery scheduled nov. 17 at boston medical
there is a tennis ball in my ear!! at least it feels like it.