Author Topic: Finally received the ANA newsletter!  (Read 10575 times)

Brendalu

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Re: Finally received the ANA newsletter!
« Reply #30 on: September 29, 2008, 03:53:46 am »
I got my battered and abused Notes......................................I think Ike got to it first!  It was great reading.

Brenda
Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

mema

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Re: Finally received the ANA newsletter!
« Reply #31 on: September 29, 2008, 05:00:04 pm »
Lainie and David,

Both articles FANTASTIC!   Great picture guys, Handsome and Beautiful.  Gee I still haven't gotten my picture on the forum yet.

mema
6mm x 8mm left AN FSR 26 treatments Nov.-Dec.2005
MD Anderson Orlando, Fl.

lori67

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Re: Finally received the ANA newsletter!
« Reply #32 on: October 01, 2008, 06:51:39 pm »
Ok, since it seems I'm never going to get my newsletter - David can you hold that first page up just a little bit, and Lainie, a little to the left.... ok... I think I might be able to make out a word or two.

Well, I can't read what you've both said, but you look mah-velous!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

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Re: Finally received the ANA newsletter!
« Reply #33 on: October 01, 2008, 10:08:25 pm »
Lori -

didn't anyone tell you?  The forumite with the most hijacks in any given quarter doesn't get their newsletter.

Sorry about that.  Guess you'll just have to start behaving better  ;)  ;D

Jan

PS - maybe if you sweet talk Phyl, she'll ask the ANA to send you another one free of charge
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lori67

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Re: Finally received the ANA newsletter!
« Reply #34 on: October 02, 2008, 09:55:24 am »
Oh, no one told me!!  I guess I'll just have to start doing a better job of blaming you!   ;D  I think I can do that!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

MAlegant

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Re: Finally received the ANA newsletter!
« Reply #35 on: October 02, 2008, 10:15:03 am »
Hi,
Finally got my newsletter!  Yay!  David, you are too cute and your daughter is beautiful.  Your article was great.
M
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Omaschwannoma

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Re: Finally received the ANA newsletter!
« Reply #36 on: October 02, 2008, 11:30:26 am »
David,

Finally got and read my newsletter and wanted to tell you how much I enjoyed your piece--well said! 

Can't believe my support group made it too with picture of us all.  I enjoy these meetings as Neil does a great job making them informative and worthwhile. 
1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear

Cheryl R

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Re: Finally received the ANA newsletter!
« Reply #37 on: October 02, 2008, 01:17:46 pm »
Arushi,     I never even looked close at your support group till you mentioned it.   I know you are in Florida.        Very nice group and I will not say which one you are unless you point it out.   
Can't believe how long it has been since we were in Philly and met.
My excitement of the day was having my 3rd D&C for a history of post menopausal female problems the last 2 years.           My ob-gyn this time just asked when I wanted the hysterectomy.       Hopefully will make it till next year now so not 2 major surgeries in one year.             Probably shouldn't mention this here and sorry to the guys who read this.       This is  not cancer related also.     Just frustrating.                                      Cheryl R   
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

lori67

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Re: Finally received the ANA newsletter!
« Reply #38 on: October 02, 2008, 08:34:22 pm »
Ok, I had no choice... I had to do it.  I beat up my mail man.  I guess this means I won't get a copy of my newsletter tomorrow either????

Alright, just kidding... I didn't really beat him up.  Yet.  But if he doesn't hand over the newsletter tomorrow, I will give him a really bad paper cut with a very stiff envelope.   >:(

Cheryl, hope you are doing okay.  You really need to find something else to do for excitement!  Try cleaning a closet or something!  Very exciting!   ;D

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Omaschwannoma

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Re: Finally received the ANA newsletter!
« Reply #39 on: October 03, 2008, 11:53:28 am »
Lori my brother is a mailcarrier and always is on the look out for attack dogs.  You might want to try "ankle biting" as this usually gets my brother's attention!

Cheryl, very sorry you are dealing, yet again, with the medical community--SHEESH!  On the flip side though I'm sure am glad the "c" word wasn't present!  Hope you feel better after this procedure.  Hugs to you girlfriend you've been through much. 

....psssst I'm fifth from left in back row
1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear

lori67

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Re: Finally received the ANA newsletter!
« Reply #40 on: October 03, 2008, 09:45:23 pm »
Ankle biting?  Perfect.  I can do that.  I just hope he doesn't throw a steak at me or spray me with pepper spray.  Too bad I don't have those onion goggles.  Sounds like they'd come in handy...

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

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Re: Finally received the ANA newsletter!
« Reply #41 on: October 03, 2008, 09:55:28 pm »
What, Lori  ???  Still no copy  ???

Tell you what, contact the ANA and mention my name - they'll send you a new one  ;)

Actually I'm sure they'd send you a new one even if you didn't mention my name - sometimes I just like to feel important  ;D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sher

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Re: Finally received the ANA newsletter!
« Reply #42 on: October 03, 2008, 09:56:30 pm »
I just got my newsletter yesterday... first one I have gotten... really informative
Sher
1.2cm x 0.6 cm extracanicular component (7 mm) 05/08/08
MRI in AUG 08  showed 30 % growth
Having CK 9/30, 10/1 and 10/2/08
1/12/08 MRI shows swelling

lori67

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Re: Finally received the ANA newsletter!
« Reply #43 on: October 03, 2008, 10:06:00 pm »
Jan, I tried calling them an mentioning your name.  They laughed and hung up on me.   :P

I guess I'll just have to write my own newsletter.

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

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Re: Finally received the ANA newsletter!
« Reply #44 on: October 03, 2008, 10:08:28 pm »
Jan, I tried calling them an mentioning your name.  They laughed and hung up on me.   :P

I guess I'll just have to write my own newsletter.

Lori

Thanks for the huge laugh!  I needed that - it's been a rough couple of days.  Glad to see being a year older hasn't killed your sense of humor - you're still as sharp as ever  :D

If you need help with that newsletter, let me know . . .

I'll have K help you  ;D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways