Author Topic: Prednisone and steroids  (Read 2512 times)

Nancy Drew

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Prednisone and steroids
« on: January 13, 2006, 07:53:19 pm »
I am new to this AN situation (diagnosed one month ago) so I'm not very informed at this point.I have read where many of you have taken steroids during the course of treatment.I am wondering if this is standard protocall or does it differ from case to case?The reason I am asking is because I have bipolar disorder, and when I took prednisone many many years ago it sent me into a severe psychotic depression.I wanted to kill myself.The psychiatrist I was seeing at the time told me to avoid steroids althogether.I pride myself on having a good hold on the bipolar issues, and just the thought of slipping into any kind of depression, or mania, makes my blood run cold.So, I'd like to open this up to any ideas or experiences you might have.I did find out during my visit with the AN specialist last week that he and my psychiatrist are very good friends so this will hopefully help in dealing with the AN from both angles. Thanks much. ???
12/05 AN diagnosed left ear 4.5mm
06/08 6mm
Gamma Knife 10/21/08
1 year MRI  6.8mm x 5.5mm
2 year MRI  5.9mm x 4.9mm
3 year MRI  6.5mm x 6.0mm 
Slight Hearing Loss Post GK

Swedish Gamma Knife Center
Englewood, CO
Dr. Robert Feehs

Mark

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Re: Prednisone and steroids
« Reply #1 on: January 13, 2006, 08:29:34 pm »
Hi Nancy,

I don't think steroids are a standard protocol post treatment for either surgery or radiosurgery. Generally, they would only be used when some level of inflamation couldn't be controlled or reduced with OTC medications. I had FSR so I can give you some thoughts from the radiosurgery end of it and I'll let some of the other folks who had surgery speak to steroid use there.

When the AN is treated by radiation there can be some degree of swelling in the tumor as a natural consequence. Most of the time when that occurs it does not cause any significant reaction requiring medical intervention. On occassion, the swelling or irritation of the cranial nerves can can cause symptons (vertigo, headache, etc) where the Dr. feels steroids are indicated for a short duration. I know with the Cyberknife treatments I had, there was a nausea and steroid pill available after each of the three treatments. I took both the first day and didn't the next two with no problems. About 6 weeks after treatment I had a pretty good dizzy spell for a few hours and my dr. wrote a script for a 2 week run of steroids. I took them for a couple of days, didn't like what they did to my sleep and stopped with no problems. So most folks don't need them and those that do are ususally for very short durations. There are certainly exceptions to that rule. Jamie, who posts here frequently, found that OTC stuff like Ibuprofen, etc worked just as well for him.

Hope that helps

Mark
CK for a 2 cm AN with Dr. Chang/ Dr. Gibbs at Stanford
November 2001

GM

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Re: Prednisone and steroids
« Reply #2 on: January 13, 2006, 09:15:55 pm »
I took a three month regime of Predizone (July - Sept 2005)...that stuff made me feel strange.  It worked well, but I was sooo happy to get to the reduced dosage.  They make another version of it...I don't remember the name, but is similar to Predizone but without the harsh side effects...

Gary
Originally 1.8cm (left ear)...Swelled to 2.1 cm...and holding after GK treatment (Nov 2003)
Gamma Knife University of Virginia  http://www.medicine.virginia.edu/clinical/departments/neurosurgery/gammaknife/home-page
Note: Riverside Hospital in Newport News Virginia now has GK!!

russ

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Re: Prednisone and steroids
« Reply #3 on: January 13, 2006, 10:18:32 pm »
 Hi Gary and all
   Re: An alternative to Prednisone which is still a steroid but produces fewer side effects in 'some', I believe generically it is called dimethylprednisolone.
   I bounced off the walls on both but a bit less so with the latter. My feeling is they are Rx'd more for SHL, Sudden Hearing Loss, than for post Tx swelling but are used in a few more dangerous cases of edema post Tx.
   Best wishes!
   Russ

GM

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Re: Prednisone and steroids
« Reply #4 on: January 14, 2006, 05:51:48 am »
Thanks Russ!

By the way...what does "Tx" stand for?

Gary
Originally 1.8cm (left ear)...Swelled to 2.1 cm...and holding after GK treatment (Nov 2003)
Gamma Knife University of Virginia  http://www.medicine.virginia.edu/clinical/departments/neurosurgery/gammaknife/home-page
Note: Riverside Hospital in Newport News Virginia now has GK!!

JHager

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Re: Prednisone and steroids
« Reply #5 on: January 14, 2006, 10:24:01 am »
Hi Nancy,

I was given steroids after my facial nerve didn't recover as quickly as my surgeon had hoped.  End result: no effect.  My face has since mostly recovered, but that is 7 weeks after the 3-day dose of steroids.  I'm sure the medication didn't do anything noticable.

Good luck with your treatment - and I don't think it'll be a problem to avoid steroids!

Josh
3.5 cm right AN.  Surgery 11/7/05, modified translab.  As recovered as I'd ever hoped to be.