Author Topic: chronic insomnia  (Read 6048 times)

Patti

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Re: chronic insomnia
« Reply #15 on: December 08, 2008, 04:08:07 pm »
i haven't responded until today as i am still working on the sleep issue.  i can't tell you how helpful all of you have been.  i appreciate all the time you have taken to respond.  just a little background-i have been dealing with this for years.  i have tried many "sleep hygeine" practices but it was helpful to read them and practice them again.  i have decided i need to be medicated for this problem.  i can sleep sometimes when my life is just perfect, but when i am excited or anxious, i can't sleep.  there usually seems to be something good or bad happening.  so, i am, at least, committed to finding what works for me.  trazedone didn't work.  it still took me hours to fall asleep and then i would sleep all morning.  right now i am trying 25mg of seroquel.  it has worked in getting me to sleep but i still would wake up alot at night.  i am going to stick with it for a while though.  unfortunately though, i am going to try sleeping alone tonight because i wake up every time my husband moves.  as i said before, ambien did work for a while, but you can't take it forever.  these other drugs address my depression/anxiety so maybe that's what i need to do.  a couple of years ago i tried remeron and it worked beautifully, but i gained 10 lbs and my cholesterol went up.  i always try to watch my weight so i eventually stopped.  some people gain weight with serequel - i will wait and see.  i did have a truamatic event happen in 1984 which has caused my anxiety since, so i guess it could be that.  i will look into speaking with a sleep neurologist, anyway.  and because you all care-i just want you to know that i do discuss these issues with a therapist and with my neurologist and my gp.  i will keep trying.  thank you so much.  patti   
4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

Kathleen_Mc

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Re: chronic insomnia
« Reply #16 on: December 11, 2008, 12:13:18 am »
Arushi: I don't know the exact issue for the use of Melatonin in folks like us just that the sleep disorder specialist said this is an absolute no no for someone who's had brain surgery
1st AN surgery @ age 23, 16 hours
Loss of 7-10th nerves
mulitple "plastic" repairs to compensate for effects of 7th nerve loss
tumor regrowth, monitored for a few years then surgically removed @ age 38 (of my choice, not medically necessary yet)

Tumbleweed

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Re: chronic insomnia
« Reply #17 on: December 18, 2008, 08:49:44 pm »
I asked Dr. Chang about this a few days ago. He told me there was no problem with ANers taking melatonin. He said that melatonin affects the pineal gland, which is far away from the IAC and CPA and their associated cranial nerves. I asked specifically if he thought there was a problem taking melatonin after brain surgery, and he said 'no.'

Best,
Tumbleweed
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

cherrypiper

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Re: chronic insomnia
« Reply #18 on: December 27, 2008, 06:51:24 pm »
yes i have had this problem for about 15 years..........nothing to do with my An of last year........

my case it is a lack of REM sleep. brain wont shut down for long enough to get into deep sleep without an aide / med

over the years i have used several. most over counter dont do any good for me..........so its been up to me and Dr.
10 mm x 2.4mm surgery date 12/03/07

glad to be here