Here we go again - surgery scheduled for 1/29

[Jwh]

I finally scheduled my surgery for 1/29 ) :  I had Retro. in 2001 and now I will have Translab  (hopefully this will be it)!  After I scheduled it this morning, I broke down in tears.  It is harder this time since I have little kids to think about.  I wish this was all behind me. 

Jen

[msmaggie]

Dear Jen,

I am so sorry you have to do this again!   Is this for another AN or more work on the last one?  Please know that we are in your corner if you need some moral support or a shoulder to cry on.  Having little ones that depend on you always makes things hard for a mom. 
Sending you hugs,
Priscilla

[MAlegant]

Hi Jen,
I'm sorry to hear you have to go through this once more.  Once is plenty if you ask me.  Tell me more about your story...
Best,
Marci

[sgerrard]

Hi Jen,

I looked up your past posts, and saw that you found about a regrowth a year ago, and found out it was growing and surgery would be needed back in July. Do you remember how you said you didn't feel anything when you heard the news back then? I think it has all caught up with you now.

If anyone is entitled to a serious groan, I think you are. Good grief! Once is more than enough. You have my sympathy, and hopes for a smooth surgery and recovery. It will all be behind you in a few more months. Hang in there.

Steve

[LisaP]

Hi Jen

So sorry to hear that you are facing another surgery.   I'm on a watch and wait, next MRI is in Jan of 09.  This is my third and I am fearing bad news.   Take care, we are all here for you, please lean on us.  You are in my thoughts and prayers.

LisaP

[MAlegant]

Hi Jen,
Now that I"ve read your past posts I remember you!  I hope you are holding up well enough, given the circumstances.  My thoughts are with you.
Best,
Marci

[wendysig]

Jen,
I'm so sorry to hear you have to go though this again.  I have to agree that once is more than enough and sincerely hope this will be the last time you have to deal with your AN.  You and your family are in my thoughts and prayers.

Wishing you the best,
Wendy

[Jim Scott]

Jen:

Add me to the growing list of folks who not only wish you total success with your second AN surgery but also understand the emotions this second operation triggers.  As has been rightly stated: once is enough!  Unfortunately, the 'one cell left behind' risk is always there.  I'm sorry that the odds were not in your favor but will pray that this time, they really do 'get it all'.  Try to stay strong and certainly try to stay connected here.  We're on your side all the way and not only understand but are eager to support you in any way we can.

Jim

[tenai98]

Jen,
My thoughts and prayers are with you and your family. 

Joann

[Jwh]

Thank you so much for your responses    I look forward to reading them and your great encouragement.  It's so nice to have a support system that really understands what your going through. 
Do you think the second surgery will be easier on me?  My doctor feels there shouldn't be any balance issues/  What are your thoughts?
Thanks a ton,
Jen

[Syl]

Jen,

One craniotomy is enough to last me a lifetime. I'm so sorry you have to go through this again. Please assemble your team of caretakers. Not only will you need them, but so will your little ones. I pray that your surgery will go as smooth as possible without complications and that you can be home with your family ASAP.

Syl

[Debbi]

Hi Jen-

Syl said it best - one craniotomy is enough - some might even say that one is one too many.  So sorry you are facing this for a second time.  Eve (Jerseygirl) had two surgeries so hopefully she will chime in - or you can search for her.  Like you, hers grew back.  I had the pleasure of meeting her in person earlier this year and she looks wonderful.

I will add my well wishes to everyone else's - you are not alone!

Debbi

[Cheryl R]

Jen, I have been thru 3 surgeries on one side.   The mid fossa in 2001 and then the facial neuroma in 2006  which was translab plus the nerve taken from by my ear so the incision was longer.      It was not any worse at all  in my case and feel was a bit easier.  Dr was right about no balance issues to throw it off.        I was so sleepy past the 2001 one and not the translab.           It all depends on that ol talk of ours of tumor size and location too.      I remember having the usual 2 weeks weak and tired and just starting to do better when had the CSF leak.             Do not let this scare you at all.          Mine was due to the Univ of Iowa using a new cheaper colloidal implant that didn't hold things together inside well after all.            3 people got leaks.
I had people tell me that they just said that to you but I know too well with being a nurse how purchasing depts do change products any chance they can get.           Wound care products are a very good example!                I felt worse then after the leak surgery just as was more tired and having had 2 so close together.         Very depressing.      Plus not knowing how long the facial paralysis would last.             This was the facial neuroma and not the regular AN aso it should be even easier for you.                   This time around we do know how it all will be which makes it easier.      One knows better that it will improve in time which that first time we sure wonder if it ever will.           Plus knowing what adjustments to make at home helps too.
I wish you well and think positive.       We will all be thinking of you.
                                               Cheryl R
       

[Jwh]

Thanks everyone for your kind words and taking the time to write back to me.  It is much appreciated.
Jen

[Keri]

Hi Jen,
I'm new to this forum. I just found out a couple of months ago about my AN.
You posted on December 1 that you were going to have surgery January 29. On Dec 1, my surgery was also scheduled for January 29. So, I'll be praying for you and for me as well!
I haven't been through any of this before. I'm not scared yet, but am sure I will be when the time gets a bit closer.
But anyway, on January 29 I'll be thinking about you, your kids and family.

Keri
I'll be at Univerysity of Maryland at Baltimore with Dr. Eisenman and Dr. Eisenberg