Author Topic: 7 yrs post Hopkins FSR  (Read 1791 times)

julie

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7 yrs post Hopkins FSR
« on: December 11, 2008, 11:05:09 pm »
just had my every two years MRI and for the first time in the last 5 1/2 years i supposedly have some enlargement.  am waiting to get the films on CD to get them out to hopkins for evaluation.  any feedback around here?  did tons of research, i have read a lot on this site, but not really interested in surgery.  anyone with experience with a second round of radiation?
thanks! 

sgerrard

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Re: 7 yrs post Hopkins FSR
« Reply #1 on: December 11, 2008, 11:58:36 pm »
Hi Julie,

How much supposed growth? Unless it is clearly a significantly larger tumor, I would wait six months and do another MRI. 2mm is not enough. At this point I think you need to establish a clear pattern of growth before contemplating a second treatment.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

julie

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Re: 7 yrs post Hopkins FSR
« Reply #2 on: December 12, 2008, 06:19:55 pm »
thanks, think that i will be doing a watc and wait as the report says the position is the same.  i am a little suspect of the film or reading of it, and have asked for another radiologist to read it as well as sending it off to hopkins for a review.
j