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Author Topic: Postie Priscilla  (Read 4237 times)

msmaggie

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Postie Priscilla
« on: December 13, 2008, 12:33:28 pm »
Hi Everyone!
I am doing really well. Yesterday was the best day and today I feel like a truck hit me.  The only ill effects I have encountered are nausea and a swallowing disorder caused by the breathing tube during surgery. Everything else seems to work. I have to stay one more day because of the swallowing thing, and I am anxious for the peace and quiet of my own home. 
Thanks for all the good wishes!  I truly felt like everyone had my back during all of this.  I am so glad to have it done. Now if I could get rid of this monster headache and matching backache, all would be well.  I get to take a shower and wash my hair today and I can hardly wait.  It's the little things in life that matter, and right now hot water is at the top of my list!   
I will post when I can see better.  My eyes don't want to focus, but I think nap number three of the day will fix that!

Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

sgerrard

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Re: Postie Priscilla
« Reply #1 on: December 13, 2008, 12:40:36 pm »
Hey, hey! Welcome back, Priscilla!

Glad to hear everything went well. Sorry about the breathing tube and swallowing, I hope that clears up quickly. Take care and rest, you will be home soon, where you should also take care and rest.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Jim Scott

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Re: Postie Priscilla
« Reply #2 on: December 13, 2008, 12:50:43 pm »
Priscilla:

Thanks for the update.  Aside from the (hopefully temporary) swallowing problem, headache and backache, you seem to have gotten through this in pretty good shape.  Bravo, postie!  :D

I hope you're home and feeling better very soon.  Now, keep resting.  We'll be here when you feel better.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

NL

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Re: Postie Priscilla
« Reply #3 on: December 13, 2008, 02:25:50 pm »
Hi Priscilla - welcome back!

Glad to hear you're doing well. Hope the nausea and swallowing problem clear up soon. And those three naps a day (or more!) will definitely help with the fatigue or "hit by a truck" feeling! :) Looking forward to more updates when you're feeling better.

Take care and heal well!

Nancy L
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1.6 cm left AN diagnosed Oct. '07
1.9 cm on 2nd MRI, May '08
Retrosigmoid surgery at House Clinic/St. Vincent's on 8/6/08
(no post-op dizziness, nausea, facial or balance issues)
Thankful for a fantastic team of doctors - Dr. Rick Friedman, Dr. Marc Schwartz, & Dr. Michael Stefan

Kaybo

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Re: Postie Priscilla
« Reply #4 on: December 13, 2008, 03:40:26 pm »
Priscilla~
So good to hear from YOU - even though your daughter (& Brian) did a great job keeping us updated.  Hope everything continues to get better.  Rest & relax...

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

leapyrtwins

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Re: Postie Priscilla
« Reply #5 on: December 13, 2008, 05:03:43 pm »
Welcome back postie and congratulations on being done with surgery!  It's great to see you back!

I had the "truck feeling" immediately post op; the good news is it goes away  ;D

Time and naps will help you recover.  Don't overdo it.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Pooter

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Re: Postie Priscilla
« Reply #6 on: December 13, 2008, 05:24:58 pm »
I agree!  Great to hear from you..  It's great to hear that things (aside from the swallowing thing and headache/backache thing) went very well.  Give it some time and lots of rest.  Welcome to postieland!  You done good!

Regards,
Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Brendalu

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Re: Postie Priscilla
« Reply #7 on: December 14, 2008, 05:32:50 am »
Way to go, Priscilla!  Get lots of rest and be kind to yourself.

Hugs,
Brenda
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Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

Dan

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Re: Postie Priscilla
« Reply #8 on: December 14, 2008, 06:20:42 am »
Good to here you are on your way to recovery.  I also had the run over by a truck feeling, I think it was on day 4 after surgery.  I woke up feeling good so I shaved and showered.  Then they brought breakfast and I ate a few bites and almost passed out before I could lay down, my hospital roommate had to call the nurse.  I got a IV I'm not sure what but I layed flat in bed the whole day.  The next day I was better and but I took it alot slower for the next few days.  Dont try to do to much and get alot of sleep.
When I got home from the Hosp. I notice I was sleeping almost as much as our cat.

Dan in Germany
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US Army Retired, age 51,  residing and working in Germany.
Retrosigmoid 21 Sept 07 left side 1.76cm AN, Prof. Mann, Uniklinik Mainz Germany

MAlegant

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Re: Postie Priscilla
« Reply #9 on: December 14, 2008, 08:44:33 am »
Hey Priscilla,
Welcome back and congratulations!  Take it easy on yourself for a while...
Best,
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

mrgarlic

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Re: Postie Priscilla
« Reply #10 on: December 14, 2008, 10:24:20 am »
Greetings Priscilla, I have a little tip for the headache. Try popcycles. On both of my tumor surgeries it worked great. A fellow patient shared his supply with me in 2004. I tried it again last month. They feel soooooooooo good!       Larry
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I am not the person I used to be,
 I am becoming the pereson I am.

AN surgery 2004- Trigeminal Neuroma  surgery scheduled    Nov 2oth 2008

cindyj

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Re: Postie Priscilla
« Reply #11 on: December 14, 2008, 01:44:34 pm »
Great to hear from you, Priscilla!  Congratulatons on coming through so well - yes, that shower and hair washing will feel SO good!  Do keep up with your naps - it does help reduce the number of days you feel as though a truck hit you. 

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Debbi

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Re: Postie Priscilla
« Reply #12 on: December 16, 2008, 02:26:25 pm »
Hi Priscilla -

So glad you are up and online!  And, you are going to feel SOOOO good after that shower.  That was a nearly religious experience for me - and one that I will not soon forget!

Hopefully the swallowing will get better fast - in the meantime, work it for all the milkshakes you can get, along with fruit smoothies!  And, you can hold the cold container up against your temple if you are plagued by headaches - feels great.

Continue to heal - and take lots of naps!

Debbi, sending holiday cheer your way
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Syl

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Re: Postie Priscilla
« Reply #13 on: December 17, 2008, 01:37:35 pm »
Priscilla,

So happy to hear from you as a postie. The worst part is over. I echo everyone else's suggestion of getting lots of rest.

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

bell

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Re: Postie Priscilla
« Reply #14 on: December 17, 2008, 02:25:24 pm »
Hi Priscilla, 
  I am glad to hear you are well.  I am almost 4 weeks post op and I am feeling better,  you will want to sleep alot when you get home.  Keep up on the drugs, i used all of mine and then some.  Do not do anyhting for a couple of weeks, relax.
  When you get home I showered every couple of  days, it felt great but is alot of work.   My DR recommended baby shampoo for the remainder of your hair but do not wash incision.  Keep those crackers around for upset stomach and Dramamine.  Take Care,   Bell
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