Author Topic: Latest newsletter  (Read 10219 times)

LADavid

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Re: Latest newsletter
« Reply #30 on: December 24, 2008, 04:52:08 pm »
Great article, Francesco.  That says volumes about the business end of the AN world.
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

Nancy Drew

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Re: Latest newsletter
« Reply #31 on: December 24, 2008, 09:30:12 pm »
Got mine two weeks ago.  We have a great pony express here in CO.  I agree, great article Francesco!  Thanks for sharing your journey.  You have helped so many folks on this board.  A big thank you from me.  Happy Holidays and a healthy and happy 2009 to all.

Nancy ;D
12/05 AN diagnosed left ear 4.5mm
06/08 6mm
Gamma Knife 10/21/08
1 year MRI  6.8mm x 5.5mm
2 year MRI  5.9mm x 4.9mm
3 year MRI  6.5mm x 6.0mm 
Slight Hearing Loss Post GK

Swedish Gamma Knife Center
Englewood, CO
Dr. Robert Feehs

LADavid

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Re: Latest newsletter
« Reply #32 on: December 24, 2008, 11:42:00 pm »
Lainie

I am thinking of going for two reasons.  One because I love Chicago.  Two because I would love to challenge doctors on post-surgery and the lack of understanding.  But since I have been knocked out of my acting profession, finances may be a bit of a challenge.  We shall see.
David
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

Kaybo

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Re: Latest newsletter
« Reply #33 on: December 25, 2008, 11:49:32 am »
David~
I REALLY thought it one of your reasons would be because you might get to meet ME!!   ;D

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

fbarbera

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Re: Latest newsletter
« Reply #34 on: December 25, 2008, 03:17:28 pm »
Thank you all for your positive feedback on the article!  I've received a number of wonderful emails from lay readers across the country.  None so far from any doctors -- I hope they are reading as well. 

David, Lainie, let's go raise some hell in Chicago!!

Happy holidays to all!

Francesco

leapyrtwins

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Re: Latest newsletter
« Reply #35 on: December 25, 2008, 11:11:30 pm »
Still waiting on my newsletter  :(

Am definitely attending the symposium.

Note to David -

I believe the ANA has something where those who are strapped for cash might get a little sponsorship from other attendees.  I don't know how this all works, since this will be my first symposium, but I believe attendees can somehow contribute funds to help their fellow forumites/ANA members out.  Those who want to take advantage of this sponsorship would have to contact the ANA and ask for more specific details.

It seems like most of us are strapped for cash these days, but hopefully things will work out for everyone and we'll all get to meet each other in August.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sgerrard

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Re: Latest newsletter
« Reply #36 on: December 26, 2008, 01:22:47 am »
Still waiting on my newsletter...
I believe the ANA has something where those who are strapped for cash might get a little sponsorship from other attendees.  I don't know how this all works...

It is all explained in the registration materials included with the current issue of the newsletter.  ;D

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

leapyrtwins

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Re: Latest newsletter
« Reply #37 on: December 26, 2008, 09:50:14 am »
Thanks, Steve. 

If I ever get my newsletter I plan on giving something to the "sponsorship fund" when I pay my own registration - and I urge others to do so.  Every little bit we can give will help someone else in our "same boat".

Being from the Chicago area I won't have to pay much to travel (just the cost of going downtown), so I'll only have hotel and registration fees.

This year won't be as costly for me as future years when the symposium is further away from where I live, so I'd like to help others who will have to pay more.

I'm also assuming that this contribution will be tax deductible - just like any other contribution to the ANA - so that's a nice "perk" when it comes to filing my taxes 8)

Jan

Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Sue

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Re: Latest newsletter
« Reply #38 on: December 26, 2008, 09:12:52 pm »
I hope whoever goes has a great time and learns a lot.  I didn't "re-up", so I don't get a newsletter anymore.  But, I think the last symposium was very interesting and a lot of fun for the folks that went. 

Sue in Vancouver USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

leapyrtwins

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Re: Latest newsletter
« Reply #39 on: December 28, 2008, 12:07:34 am »
I finally got my newsletter today - or it could have been yesterday; I just got home from being out of town tonight.

Haven't had a chance to read Francesco's column, but will do so tomorrow.

Did peruse the symposium materials.  The registration fee is definitely very reasonable; wish the hotel rate was a little more so  :P

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

LADavid

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Re: Latest newsletter
« Reply #40 on: December 28, 2008, 07:16:49 pm »
My bad.  Of course the main reason why I would want to go to Chicago is to meet all of you -- then take on the doctors -- and of course sample the Chicago nightlife.  It's my favorite downtown city.

And btw, the issue with finances is that at this time I have to watch my spending with all the medical things I'm dealing with.  It may be no issue at all as time gets closer.

Have a great week

David
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

leapyrtwins

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Re: Latest newsletter
« Reply #41 on: December 28, 2008, 10:47:25 pm »
David -

I hope you are able to make it to Chicago.

I know Steve is buying ALL the drinks @ the symposium, but if you do attend, I'll personally buy you one  ;D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

LADavid

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Re: Latest newsletter
« Reply #42 on: December 29, 2008, 12:52:26 am »
Grey Goose on the rocks with a twist.
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

leapyrtwins

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Re: Latest newsletter
« Reply #43 on: December 30, 2008, 03:03:26 pm »
You're on  ;D

But you have to remind me of the drink specifics in August.  I don't know a Grey Goose from a brown one LOL

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: Latest newsletter
« Reply #44 on: December 30, 2008, 03:21:18 pm »
My newsletter was here when I got back from Houston!!

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!