Haha, thanks for the advice, Keri! No, I definitely won't go on any midnight trips to the monuments
Glad you're doing ok!
Thanks, everyone, so much for your support! I was indeed able to go home on Monday night - I think I would be way worse off if I hadn't because I really wasn't able to sleep at the hospital. At night, I would wake up and just count down the hours until morning. It was horrible.
Things are ok so far. Walking isn't too bad, but staying in a straight line is a challenge. Turning my head is tough, but we're working on loosening it up. Still no real pain, so that's a good thing. The blood sugar control is getting a bit better since I've been tapering off the Decadron more. My left hand is still numb, which I was not expecting to be an issue at all, but hopefully it will start to come around soon. I imagine that pinched nerves take some time to fix themselves. My blink is still good, and any facial weakness is very minor. I know that my smile isn't quite what it was before, but it's pretty darn good considering that they did have to remove some of the tumor from the facial nerve. I have a black eye where some facial nerve monitoring went too far, and that's starting to get a little sore now. My eye isn't tearing that much, but since I can close it, I think it will be ok, plus I use drops. My throat weakness from being intubated twice is starting to go away, but I still have to eat slowly, which is ok with me (I like eating like a mouse). I guess that's where I am in a nutshell. One week ago I was still on a breathing tube and in ICU. That's pretty amazing.
I'm allowed to wash my hair tonight, so we'll see how that goes. I am not expecting miracles in one washing. I would almost rather shave my head than try to clean it at this point. Hehe.
Take care, everyone!! You guys are awesome. I would be freaking out so much more if I hadn't found you all and read through so many stories over these past months. We took a Magic Scarf photo at the hospital that I will work on posting soon
Cheers!
Kim
