My AN swelled at 3 weeks after cyberknife, leaving me with sudden hearing loss. Dexamethasone brought it back, however today is the first day I'm down to one 4mg pill and I'm having distortion and a really bad metallic taste in my mouth, food tastes weird. I understand that it's probably the swelling tumor now pressing on my trigenial nerve.
It's been a rough 10 days on the steroid, averaging 3 hours sleep a night. Last night was better with an ambien, but only about 4-5 hours, but I wasn't restless and able to just lay in bed quietly instead of roaming the house.
Anyway, the steroids are almost over and the hearing is just not so terrific today. I guess it's just hitting me hard early. Has anybody else experienced this so soon and what happened? I have to get off these steroids, I can't take the exhaustion much longer. I wonder what will happen when I"m off of them. I don't want to have sudden hearing loss again. Also, did anyone have that and it came back withouth the steroids (I mean quickly, not months later)
Thanks
