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Author Topic: finally....a vacation of sorts  (Read 4598 times)

MAlegant

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finally....a vacation of sorts
« on: March 21, 2009, 06:34:43 am »
Hi gang,
I'm off to Florida for few days to see my mom then to meet my friend Andrea and another friend for 3 days at the beach.  I am so excited!  It's really my first non-work related trip and even though I'm leaving my husband behind, I am excited.  I shall be taking my pain and numbness with me and hope to leave it at the beach!  I will be offline for about a week.  Be well all.
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

EJTampa

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Re: finally....a vacation of sorts
« Reply #1 on: March 21, 2009, 06:54:18 am »
Marci,
 
The weather is great here in Florida this week!  Enjoy your vacation!
 
Ernie
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-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

Kaybo

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Re: finally....a vacation of sorts
« Reply #2 on: March 21, 2009, 08:49:11 am »
Marci~
I am jealous but ENJOY!!  Catch a few rays for me! ;D

K ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

sgerrard

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Re: finally....a vacation of sorts
« Reply #3 on: March 21, 2009, 09:52:46 am »
Oh that sounds good.  8)

I like the picture too. Have fun!

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

stoneaxe

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Re: finally....a vacation of sorts
« Reply #4 on: March 21, 2009, 10:48:56 am »
i think my wife would have changed that sentence around to..... "I'm excited that I'm leaving my husband behind"... :o just kidding of course...i think.... ;)

A surefire recipe to leave the pain and numbness at the beach.

1. Find and area of smooth sand with a slight incline (base of a dune is perfect) with a stunning view in front of it.

2. Dig a hole approx. 18" wide, 18" deep, and 3' long. The front and rear should slope to the deepest point in the center.

3. Place a large beach blanket over the hole and press firmly down  into place.

4. Place a large (very large) thermos of frozen pina coladas next to the blanket along with your beach approved plastic glass.

5. Carefully lower yourself into place into the depression.

6. Enjoy the view, the sun and the pina coladas.

7. Laugh along with your friends when you try to get out of the hole.... ;D

Have fun.
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

cindyj

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Re: finally....a vacation of sorts
« Reply #5 on: March 21, 2009, 01:07:19 pm »
Have a great trip, Marci!  Wave to JO as you're passing St. Augustine!

Stoneaxe, my husband makes himself a "lounge chair" just like that every year at the beach!  It really is very comfy!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

MAlegant

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Re: finally....a vacation of sorts
« Reply #6 on: March 21, 2009, 03:24:25 pm »
Thanks all.  Stoneaxe, that's hilarious and I just might try it!  ;D
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

anissa

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Re: finally....a vacation of sorts
« Reply #7 on: March 21, 2009, 03:32:35 pm »
Have a great time!  I bet this time of year would be perfect!!
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Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

msmaggie

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Re: finally....a vacation of sorts
« Reply #8 on: March 21, 2009, 03:54:41 pm »
Just make sure everything you drink has an umbrella or a lime/cherry in it!  Have a great time and tell us whatever is fit to print when you get back.  ;)

Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

Jim Scott

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Re: finally....a vacation of sorts
« Reply #9 on: March 21, 2009, 04:19:21 pm »
Marci ~

Those end-of-winter vacations in Florida are a great way to relax and unwind.  Seeing your mom and your friends should make it even better.  I'm sure you'll be rejuvenated after soaking up some Florida sunshine.  Even if you do have to go sans hubby, I'm confident you'll enjoy the vacation.  Be sure to bring back a souvenir for him. 

We'll look forward to your 'report' in a week or so.  Meanwhile, know that a lot of your AN friends in the north and mid-west will be with you in spirit as you bask in the Florida sun.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

MAlegant

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Re: finally....a vacation of sorts
« Reply #10 on: March 21, 2009, 05:18:50 pm »
You all just make me smile.  :D
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

mimoore

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Re: finally....a vacation of sorts
« Reply #11 on: March 21, 2009, 06:15:48 pm »
Oh Marci that sounds like so much fun!!!
I think you should put your pain and numbness into a bottle and throw it into the water.   :P
Enjoy the beach, your mom, friends and maybe a glass of wine or two.  ::)
Relax and recharge!
Michelle  ;D
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

yardtick

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Re: finally....a vacation of sorts
« Reply #12 on: March 21, 2009, 10:21:44 pm »
ENJOY  ;D :-*

BEHAVE  ;)  ;D

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

wendysig

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Re: finally....a vacation of sorts
« Reply #13 on: March 22, 2009, 02:30:32 pm »
Hi Marci -

Have a great vacation!  I hope you come back feeling recharged and leave the numbness behind!

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Captain Deb

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Re: finally....a vacation of sorts
« Reply #14 on: March 22, 2009, 05:00:24 pm »
Marci

Florida is indeed lovely this time of year--no wonder it's also full of touristas right now!

Say hello to the dolphins and pelicans for me.  Which coast? 

Call if you need bail money!

Have fun!

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW
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