Author Topic: Update on Liz from Washington  (Read 25257 times)

moe

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Re: Update on Liz from Washington
« Reply #45 on: April 03, 2009, 11:01:47 pm »
Is Liz's surgery next week? Anybody know? Or was it supposed to be this week?
Still wondering, praying, and concerned.
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

sgerrard

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Re: Update on Liz from Washington
« Reply #46 on: April 03, 2009, 11:29:05 pm »
The last post from Annalisa (bdsgurl) was on Tuesday the 31st, saying she went into surgery at 7:30 am.

I agree it is troubling. But there are various reasons we may not have heard anything. Annalisa was getting text messages from Liz's husband and then posting updates here. She may not be able to post, or he may not have send a message, or something else like that. All we can do is wait, and hope to hear something soon, and fervently hope it is good news.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

bdsgurl

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Re: Update on Liz from Washington
« Reply #47 on: April 04, 2009, 12:39:18 pm »
Hello everyone, so sorry it has taken me so long to post, I didnt hear from Liz husband until thursday evening. I had some stuff going on yesterday so today has been the first chance i had. Her husband said that surgery was another 16 hours on wednesday. She came through it ok although she has some significant facial paralysis this time and they were keeping her in ICU for the weekend because of the CSF buildup she had, then they would decide if they needed to put the shunt back in or not. He also mentioned that one of the nurses scratched her eye during the surgery and she had to wear a contact lens?? I didnt get to ask anything else about that. I am hoping to hear something else today, i struggle between anxiously wanting to know how she is doing and not wanting to be a pest when i know he has so much going on in his mind and on his plate. So i will update just as soon as i hear something else. Please keep praying, i apologize if there are lots of typos i cant see my screen very well, the backlight is going out....

Annalisa

sgerrard

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Re: Update on Liz from Washington
« Reply #48 on: April 04, 2009, 12:48:22 pm »
Annalisa,

Thank you so much for the update. We have been worried.

I know Liz is having a tough one, and I'm sure her husband is beside himself with worry, and not thinking about updating you or us. We will take what we can get.

I am very glad to hear that she got through it, at least. I am not happy to hear about the eye, I hope they take care of it well, eye issues are no fun at all. The facial paralysis is not so surprising, since it was a large tumor, and they obviously had trouble with it the first time. It is a much better outcome than the alternative.

We are all offering our continued support. Liz will get stabilized and make it through this. Let her and her husband know we are at their side every step of the way.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

mimoore

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Re: Update on Liz from Washington
« Reply #49 on: April 04, 2009, 12:49:53 pm »
Wow another 16 hours... how much can one body take?
My prayers are with you Liz and of course with your family. Rest and heal!
I have been checking and checking hoping she is okay, thank you bdsgirl for the update.
Sending hugs your way. Michelle   :-*
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

bdsgurl

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Re: Update on Liz from Washington
« Reply #50 on: April 04, 2009, 12:51:08 pm »
I will let her know that you guys are all praying for her and behind her, i know it will mean alot to her and her husband, you guys are all really special people!

NancyMc

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Re: Update on Liz from Washington
« Reply #51 on: April 04, 2009, 12:59:13 pm »
Major relief to hear the news.  Give her my best wishes for speedy recovery and trip home.
Thanks.
Nancy
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

Kaybo

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Re: Update on Liz from Washington
« Reply #52 on: April 04, 2009, 01:22:06 pm »
Thank you bdsgurl for the update!  I have had Liz on my mind so much lately!  Yes, please tell them that there are LOTS of prayers coming there way from Texas!!

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

EJTampa

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Re: Update on Liz from Washington
« Reply #53 on: April 04, 2009, 05:26:08 pm »
bdsgurl,
 
Thanks so much for the update!  Like the others, I was getting concerned.
 
We are still praying for more healing for Liz.  So much to endure for one person, two really if you count her husband.  I will be
anxiously awaiting the next update, but understand that it may be a while due to the tough circumstances.
-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

cecile k

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Re: Update on Liz from Washington
« Reply #54 on: April 04, 2009, 09:59:07 pm »
I will be praying for Liz....for physical/emotional healing, for strength for her husband and family supporting her.

Cecile

Rich56

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Re: Update on Liz from Washington
« Reply #55 on: April 04, 2009, 10:05:14 pm »
Annalisa,

We're so sorry Liz had to go through another 16 hours of surgery.  Hopefully that will be it, and she can begin to mend.  Liz and her husband have been through enough.  He must be a reck.  Please convey our concerns for his health also.

As for you, you've been doing great keeping us updated the best that you can.  Obviously you must be upset yourself, so please, do take care also!

Our thoughts and prayers go out to you all,

Rich & Scarlett
SML (Scarlett's) other half, she had - 1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid on 3/18/09 at MGH in Boston, MA. Dr. Barker & Dr. Lee of MGH/MEEI
no facial issues, SSD right side, balance issues to work on.
The AN Calendar is here: http://www.my.calendars.net/AN_Treatments

MAlegant

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Re: Update on Liz from Washington
« Reply #56 on: April 05, 2009, 06:23:41 am »
Thanks so much for the update!    Two extremely long surgeries is a lot for a body to take. My thoughts are with Liz and her husband.
Marci
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

leapyrtwins

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Re: Update on Liz from Washington
« Reply #57 on: April 05, 2009, 10:59:39 am »
Sending out my prayers to Liz and her husband too.

Thanks for the update Annalisa.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

moe

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Re: Update on Liz from Washington
« Reply #58 on: April 05, 2009, 11:06:29 am »
Hi Annalisa, Liz, and husband,

Thank you for the update. Today is Sunday, a big prayer day. I will pray for a speedy recovery at this point without CSF buildup. The docs at Madigan are awesome. They saved MY life and I'm sure they will get Liz home as soon as possible.

As long as they did not cut the facial nerve, hopefully the facial paralysis is just temporary. Lots of swelling going on in there.

I can't imagine 2 surgeries, 14, and 16 hours respectively. Hang in there all 3 of you.

I used to be Dr. Crawford's most memorable patient, but Liz, I think you may  have just  picked up the award. :o

God speed for fast healing.
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Jim Scott

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Re: Update on Liz from Washington
« Reply #59 on: April 05, 2009, 02:38:08 pm »
Annalisa ~

The update on Liz is a bit sobering but still appreciated.  What an ordeal Liz is having!  However, with so many prayers and the support of her friends and family, I'm confident this will all work out in time and Liz will be home and recovering before too long.  That is my prayer for her as well as for strength for her husband. 

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.