Author Topic: This Week (3/29) in the Fuzzy World of the AN  (Read 3949 times)

LADavid

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This Week (3/29) in the Fuzzy World of the AN
« on: March 29, 2009, 06:36:25 pm »
This weeks adjective comes from Sara (Saralynn143) a second time contributor.  She offered this for two reasons -- the fuzzy-headedness that we all seem to encounter with ANs and in honor of all the fuzzy hats flying off Steve's knitting needles.  So fuzzy it is.

It's a mixed bag this week.

Starting off Monday is OMG16, son's fourth AN anniversary, who I believe, along with Taylor and Chelsa are the youngest ANers on the Forum.  Congratulations.  It's been a long road.

Then, Debbie, (oHIo) has her 1st year encounter with the Tube o' Gloom.  Good luck Debbie -- may it be unremarkable.

And on Monday, Joe (Joeelmo79) is having surgery at the Medical University of South Carolina.  Best wishes for a great surgery, Joe and a quick recovery.

Then on Wenesday, Anissa from Idaho, is having a Translab at the University of Utah (that is if the runny nose didn't turn out to be an issue).  Have a great surgery, Anissa, and get as much rest as you can.

And while it isn't on the calendar, I have a consultation with the Audiology Department at House to see if there is something I can do about the little hearing I have left -- and to at least have my hearing aid adjusted properly (Grrrr).

Next on Friday, Phyl (ppearl214) is celebrating her 3rd year CK anniversary -- a very successful one.  Congratulations, Phyl.

Also on Friday, another Tube o' Gloomer, Sue (Suboo) is having her 6 month MRI.  And may yours be unremarkable as well, Sue.

And finally on Friday, Wendy (Wendysig) is finally going to hear!  After what seems to be several months, at last, she will be able to use her BAHA processor.  May the wait be well worth it Wendy.

And that's it for this week.  Have a great one.

David
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

Kaybo

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Re: This Week (3/29) in the Fuzzy World of the AN
« Reply #1 on: March 29, 2009, 09:03:31 pm »
Hope everyone has good results and as little pain as possible!

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

yardtick

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Re: This Week (3/29) in the Fuzzy World of the AN
« Reply #2 on: March 29, 2009, 09:15:27 pm »
What a busy week!  Good luck everyone.

Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Rich56

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Re: This Week (3/29) in the Fuzzy World of the AN
« Reply #3 on: March 29, 2009, 09:23:43 pm »
Joe and Anissa, our prayers will be with you for safe and successful surgeries.

Good luck to Debbie and Sue for clean MRIs.

Hope House has some good news for you David.  Good luck.

Wendy, best wishes on your BAHA, hope everything works perfectly.

Congratulations on your anniversaries OMG16's son, and Phyl.

Rich & Scarlett
SML (Scarlett's) other half, she had - 1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid on 3/18/09 at MGH in Boston, MA. Dr. Barker & Dr. Lee of MGH/MEEI
no facial issues, SSD right side, balance issues to work on.
The AN Calendar is here: http://www.my.calendars.net/AN_Treatments

anissa

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Re: This Week (3/29) in the Fuzzy World of the AN
« Reply #4 on: March 29, 2009, 10:43:32 pm »
I've been wondering all day what the word of the week was going to be for "my" week, and fuzzy it is!  I like it!

Best wishes on all the anniversaries, tube-o-gloom visits, BAHA (its FINALLY here, YAY!!), Davids House visit, and Joe's surgery. 

I am blessed beyond measure for you fine folks and I honestly don't know what I would have done without your support and love over the last few weeks.   So, with that said...Lets Roll.   ;D
Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

moe

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Re: This Week (3/29) in the Fuzzy World of the AN
« Reply #5 on: March 29, 2009, 10:50:31 pm »
Thanks for the weekly update.
God speed to you Anissa this week.
let's keep Liz in WA in our prayers for a successful second surgery on Tuesday.
She is near and dear to me- we had the same surgeon. He is an exceptional surgeon and we both just had complicated AN's.
maureen

06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

LADavid

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Re: This Week (3/29) in the Fuzzy World of the AN
« Reply #6 on: March 29, 2009, 10:54:43 pm »
Moe -- what happened to Liz?  That slipped by me.  My best to Liz.
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

LADavid

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Re: This Week (3/29) in the Fuzzy World of the AN
« Reply #7 on: March 29, 2009, 11:09:45 pm »
I found the thread.  Best wishes to Liz in Tacoma on Tuesday for stopping the CFS leak.  Her second surgery in a week.
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

sgerrard

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Re: This Week (3/29) in the Fuzzy World of the AN
« Reply #8 on: March 29, 2009, 11:18:38 pm »
I think they are going after some additional tumor left behind on the first pass. My very best wishes for Liz as well.

It just so happens I was thinking about possible 100,000 post improvements we could make to the forum, and it occurred to me that in addition to the fine summary of the week ahead that you write, we could use a summary of the week just completed as well. Something that would help us not miss developments like Liz had.

Know any gifted writers who might be interested?  ::)

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

vossman

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Re: This Week (3/29) in the Fuzzy World of the AN
« Reply #9 on: March 29, 2009, 11:24:10 pm »
I'm Chris (Anissa's husband) and I too would like to wish everyone well this week.  It sure is a busy week and I will be praying for everyone to have good results.  I'm new around here but the support system is awesome and everyone is so helpful and thoughtful.  Best wishes to all and especially you Anissa my dear wife -- I love you!!
Chris
Anissa's other half

stoneaxe

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Re: This Week (3/29) in the Fuzzy World of the AN
« Reply #10 on: March 30, 2009, 02:22:09 am »
Best wishes and Good Luck all.
Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

EJTampa

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Re: This Week (3/29) in the Fuzzy World of the AN
« Reply #11 on: March 30, 2009, 07:08:54 am »
Extra prayers going out to Joe, Anissa, and Liz as they all have surgeries this week.
 
Prayers are going out to Debbie and Sue in the hopes for unremarkable MRI's.
 
David, I don't know the full story of your hearing, but hope there is something that can be done to improve it!
 
Happy anniversaries to OMG16's son and Phyl!
 
Wendy, we are looking forward to a full report on how much you like your BAHA!  Be sure to test it in a noisy place or two for me :).
 
Also, I believe Becky (Microsoftfree) and Whitney (Bambi81) are expecting MRI results this week.  I will pray that your MRI's are clean and tumor free.
 
Ernie
 
-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

wendysig

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Re: This Week (3/29) in the Fuzzy World of the AN
« Reply #12 on: March 30, 2009, 07:48:21 am »
Anissa, and Joe -- wishing you the best for wonderful surgical outcomes.  You will be in my thoughts and prayers.

Liz - I hope this is the end of your problems

Phyl  -- Congratulations and Happy Three Year CK Anniversary!!

OMG16 -- Wishing your son well on his 4th ANniversary!

Sue and Debbi - Hope your MRIs  are  clean!

David -- Good luck with your appointment at House, I hope they can help or at the very least, adjust your hearing aid properly.  Thanks for the usual great update.

As for me -- Thanks to all of you for your well wishes.  Because I already have the processor in my possession this week will be especially hard.  I've been playing with it a lot and familiarising myself with it as much as I can without actually putting it on.  I've been really tempted to pop in a  battery and try the test rod it comes with, but I'm afraid I won't be able to stop there.  Rob said if I don't leave the darned thing alone he is going to tell on me by sending Dr. Choe an e-mail.  What a tattle tail!!     :D :D   THIS is why most docs don't let you have the processor  in advance of your BAHA gotcha day!    ;D ;D I will wait until I see Dr. Choe on Friday, I will wait until I see Dr. Choe on Friday.... ;D ;D ;D ;D

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Keri

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Re: This Week (3/29) in the Fuzzy World of the AN
« Reply #13 on: March 30, 2009, 09:47:16 am »
I too hope all goes well with Anissa and Liz.
I guess Joe's getting his surgery now.

Anyone ever hear again from Tracy, the guy who wrote on Friday and was really anxious? Wondering how he's doing.

Good week to all!
Ker
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

oHIo

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Re: This Week (3/29) in the Fuzzy World of the AN
« Reply #14 on: March 31, 2009, 08:15:18 pm »
Thanks for all of the well wishes.  It's been a fuzzy year for me for sure.  I'll post more later about all of the happenings over the last several weeks, but wanted everyone to know my MRI was clean.  That's one step in the right direction.  I saw the neurosurgeon and neurotologist and don't have to go back to anyone for two years...three for the MRI.  I honestly can say it is a relief to not have to go back for a while.  I have seen more doctors in the past year than I ever care to again.  Glad to be done for a while.

Good luck to everyone else.  I'll post more later in the week.
Debbie