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Author Topic: AN Journal Pages  (Read 5660 times)

EJTampa

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AN Journal Pages
« on: March 30, 2009, 09:11:28 am »
I hope no authors of the journal object.  If so, let me know and I will remove those pages.  The first page has the date cut off, but I'm afraid that's how it is on my copy, sorry.  I believe it says 07/2008.
 

 

 

 

 

 

 

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-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

leapyrtwins

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Re: AN Journal Pages
« Reply #1 on: March 30, 2009, 09:14:21 am »
Ernie -

great idea to post these pages.  As one who never got the chance to have the magic scarf - it wasn't invented yet when I had my surgery - I'm finding it very interesting to read.

Thanks,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Keri

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Re: AN Journal Pages
« Reply #2 on: March 30, 2009, 09:41:54 am »
These are great! I'll have to look at the pages more later - can't tell who some of the people are (like who's the casual leopard, pirate and formal leopard guy!!?) That's funny!
Like Jan, I didn't get the scarf either (sniff, sniff!)
That's ok. This is a great idea!
Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

leapyrtwins

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Re: AN Journal Pages
« Reply #3 on: March 30, 2009, 12:09:26 pm »
Quote from: Keri on March 30, 2009, 09:41:54 am
- can't tell who some of the people are (like who's the casual leopard, pirate and formal leopard guy!!?) That's funny!

I think that's Ken - the first male to wear the infamous leopard scarf.  I think he should get a special prize just for that  ;)

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

wendysig

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Re: AN Journal Pages
« Reply #4 on: March 31, 2009, 03:45:12 pm »
Fun to see all those who followed me in experiencing the magic of the "Magic Scarf"!  I really think good magic has been passed on from one recipiient to the next! 

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

ppearl214

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Re: AN Journal Pages
« Reply #5 on: April 01, 2009, 06:05:24 am »
Ernie,

thank you!  Many of us don't get the magic scarf so this is a terrific way to truly feel what those lucky ones experience. Thanks for sharing this! :)

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

sgerrard

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Re: AN Journal Pages
« Reply #6 on: April 01, 2009, 09:05:17 am »
Thank you, Ernie. At last I get to see the journal for the fabled magic scarf. It is having an interesting life!

Someone should let Debbi know about this, she will be tickled.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

lori67

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Re: AN Journal Pages
« Reply #7 on: April 01, 2009, 09:21:20 am »
Ernie,

That is great!  Thanks for sharing the journal and the traveling magic scarf with those of us who "went before"!

That scarf has visited more cities than I have, I think!  Maybe I should hand deliver it from now on.  Phyl can loan me her jet.   :D

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Kaybo

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Re: AN Journal Pages
« Reply #8 on: April 01, 2009, 09:25:09 am »
OHHHH...I want to come...I love to help, you know! ;D

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

SML

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Re: AN Journal Pages
« Reply #9 on: April 02, 2009, 04:44:48 pm »
Hi Everyone,

Now that Nancy has received The Magic Scarf and Journal, I would like to add my entry.

Thank you all for everything, enjoy!

Scarlett
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SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

NancyMc

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Re: AN Journal Pages
« Reply #10 on: April 02, 2009, 05:21:36 pm »
I've just wrapped myself in the Magic Scarf, and I'm getting cozy in my big comfy chair to read the journal entries.
Logged
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

cindyj

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Re: AN Journal Pages
« Reply #11 on: April 02, 2009, 08:31:36 pm »
So good to see the journal again!  Thanks for posting these, Ernie. 

I know it will do its majic for you, too, Nancy!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Dog Lover

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Re: AN Journal Pages
« Reply #12 on: April 02, 2009, 08:58:53 pm »
Since I was one of the first few folks who got the scarf and journal I always wondered where it went and what the other journal entries said.
Oh - and funny enough, IAMSUE (the 3rd postie right before me in the journal) -- I heard from her the other day. She added me as a friend on Facebook!

And the Casual, Pirate and Formal Leopard....OMG, I about fell off my chair laughing!

Cathy
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Cathy
9mm x 3mm Left Side AN
Mid Fossa Aug. 21, 2008
Dr. Gantz / Dr. Woodson
Univ. of Iowa Hospitals and Clinics
No facial issues, hearing saved, I keep active and feel back to normal.

Debbi

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Re: AN Journal Pages
« Reply #13 on: April 03, 2009, 09:58:30 am »
Wow - this is great!  I love seeing where the AN scarf has been.  It started its journey at NYU nearly a year ago - hard to believe.  Really love reading all the notes in the journal.  Here is my picture from the hospital - with the Scarf AND my lucky black cat complete with brain bonnet!



Debbi

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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

NancyMc

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Re: AN Journal Pages
« Reply #14 on: April 03, 2009, 10:47:46 am »
Oh, sure, in New York, they would provide make-up services.  Or are you just that gorgeous?
Please don't expect me to look that good.  Note to self:  Be sure to reduce image size before posting.
Logged
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness
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