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Author Topic: Thoughts and Prayers Please  (Read 16187 times)

Soundy

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Re: Thoughts and Prayers Please
« Reply #45 on: June 18, 2009, 05:49:11 pm »
Gabe is still fighting but no longer able to walk ...bits of cancer popping up in his spinal canal is messing
with nerve impulses and I was told he shakes like he has Parkinson's Disease ...he is getting good pain
control and isn't sitting around hurting all the time so that is a blessing ...  the aunt has moved
to Sumner County because her husband found work there so don't hear alot ... please just keep praying
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3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

saralynn143

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Re: Thoughts and Prayers Please
« Reply #46 on: June 18, 2009, 07:20:16 pm »
God bless Gabe.
And his family.
And his good friends, like Soundy.

I was just wondering about Gabe the other day when I was reading some Caring Bridge sites about other kids I know. Thank you for keeping us informed. I will keep praying.

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

wendysig

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Re: Thoughts and Prayers Please
« Reply #47 on: June 18, 2009, 08:35:02 pm »
Soundy

I don't know how I missed this thread until now.  How truly terrible for a five year old to be going through this.  He and his family are in my prayers.  What a shame he had to go through as much as he did before getting an accurate diagnosis.  I will pray for a miracle for him and his family.  As we all know by now, the power of prayer can be a very powerful thing indeed.  Please keep u s posted.

Sending prayers and hugs to Gabe and his family and you too,,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

saralynn143

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Re: Thoughts and Prayers Please
« Reply #48 on: July 31, 2009, 08:22:07 pm »
Soundy, has there been any news recently about Gabe? I check on several children every day on Caring Bridge and wondered how he is doing.

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

followingHim

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Re: Thoughts and Prayers Please
« Reply #49 on: August 01, 2009, 06:51:38 am »
Praying here.
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mandy721

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Re: Thoughts and Prayers Please
« Reply #50 on: August 01, 2009, 09:33:31 am »
More prayers on the way for Gabe and his family.
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Husband diagnosed 5/30/09 with 3.2cm right AN
Surgery at  Columbia Presbyterian 8/4/09
Platinum eye weight implant - 8/17/09
17 days in hospital and rehab
SSD, facial weakness, some tinnitus, headaches , balance and eye problems

Soundy

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Re: Thoughts and Prayers Please
« Reply #51 on: August 02, 2009, 03:31:11 pm »
Nothing new... school starts tomorrow ... there are some other cousins that go to same school so
may learn something from them...hope he is doing OK and at least pain free... having watched
more than one adult die in pain from cancer makes me sick thinking about this little boy , any child or
person really , going through all he has ...

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3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

Soundy

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Re: Thoughts and Prayers Please
« Reply #52 on: August 03, 2009, 02:25:54 pm »
Talked to Gabe's 7th grade cousin ...she said he is about the same but at home now ... he took some
chemo and is on a break and will have to  go in for more ... right now he seems a bit better ... she said she
didn't think he was better but just hadn't gotten any worse ... in this case not any worse is good 

thoughts and prayers
Logged
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

ppearl214

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Re: Thoughts and Prayers Please
« Reply #53 on: August 03, 2009, 06:56:43 pm »
Gabe continues to be in thoughts and prayers!!!!!!!  Hang in there Gabe! And thanks Soundy for the update...

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Syl

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Re: Thoughts and Prayers Please
« Reply #54 on: August 03, 2009, 08:40:32 pm »
I'll keep hoping for the best.

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

Soundy

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Re: Thoughts and Prayers Please
« Reply #55 on: August 25, 2010, 05:11:07 am »
When I read of Wylie it brought Gabe to mind ...haven't updated him in a long time ...

Gabe is still with us ... he can't walk and has speech problems but is learning his letters and numbers and colors pages and pages of coloring books ... he is being home school due to treatments leaving immune system all but gone ... as of last month when I saw his aunt he was in remission ...family moved over border into Mississippi for a job ... they wanted to move back to this area but decided to stay closer to St Jude's ...
Logged
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

saralynn143

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Re: Thoughts and Prayers Please
« Reply #56 on: August 25, 2010, 05:19:50 am »
Thank you, Soundy. I was thinking of Gabe as well and am happy to hear he is in remission. He and his family have been and remain in my prayers.

Sara
Logged
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Lizard

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Re: Thoughts and Prayers Please
« Reply #57 on: August 25, 2010, 07:22:11 am »
Wow what an amazing story!  Happy to hear Gabe is healthy again.
Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

moe

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Re: Thoughts and Prayers Please
« Reply #58 on: August 25, 2010, 09:59:25 am »
Thanks Soundy for the nice update.
Gabe is still with us and learning, so his brain is still working!
Will he be able to walk again, or is this permanent from everything?
Praying for a couple of years of life worth living for this young guy and his family. (Maybe even more-miracles DO happen :))
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Soundy

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Re: Thoughts and Prayers Please
« Reply #59 on: August 25, 2010, 12:38:28 pm »
Not sure if he will ever walk again and he is learneing delayed ... time will tell
Logged
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery
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