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Author Topic: DLM4me's Update  (Read 15316 times)

NL

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Re: DLM4me's Update
« Reply #15 on: April 10, 2009, 12:19:36 pm »
Hi Everyone,

I spoke to Doug (DLM4me's husband) yesterday while they were waiting for her to be transferred to a private room. He said she was doing great. Since she had a middle fossa and her hearing nerve was preserved, the docs tried some basic tests to see exactly what she could hear on the AN side. She was able to hear all the sounds they made on that side, but they'll know more after any swelling goes down.

He said she had a very slight paralysis, which she described as a "novocaine feeling" that made it a little difficult to sip out of a straw -  but she was in great spirits, laughing and joking around.

Sounds like she's pretty happy to be a postie. :)
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1.6 cm left AN diagnosed Oct. '07
1.9 cm on 2nd MRI, May '08
Retrosigmoid surgery at House Clinic/St. Vincent's on 8/6/08
(no post-op dizziness, nausea, facial or balance issues)
Thankful for a fantastic team of doctors - Dr. Rick Friedman, Dr. Marc Schwartz, & Dr. Michael Stefan

Jim Scott

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Re: DLM4me's Update
« Reply #16 on: April 10, 2009, 12:59:28 pm »
Nancy ~

The good news just keeps on coming!  Thanks for the update. 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Pooter

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Re: DLM4me's Update
« Reply #17 on: April 10, 2009, 01:01:18 pm »
Great news!  Keep the updates coming!  That's great that she's doing well and it appears that her hearing was spared.  Pass along that we're thinking of her and continued healing.

Regards,
Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

EJTampa

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Re: DLM4me's Update
« Reply #18 on: April 10, 2009, 01:26:12 pm »
Sounds like she has a great attitude, which will go a long way in helping her recovery!  Many prayers and good wishes heading her way!
 
Ernie
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-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

Syl

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Re: DLM4me's Update
« Reply #19 on: April 10, 2009, 02:47:11 pm »
Quote from: EJTampa on April 10, 2009, 01:26:12 pm
Sounds like she has a great attitude, which will go a long way in helping her recovery!  Many prayers and good wishes heading her way!
 
Ernie

I second it.

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

Keri

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Re: DLM4me's Update
« Reply #20 on: April 10, 2009, 10:05:32 pm »
I'm so glad she's doing well. Hoping and praying for continued good recovery.

keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

sgerrard

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Re: DLM4me's Update
« Reply #21 on: April 10, 2009, 10:53:26 pm »
Okay, if she is over the surgery and doing pretty well, it is time to ask the question that is on everyone's mind.

What does DLM4me really mean? I think it sounds like the license plate of an inveterate card player, myself.  ;D

And best wishes to postie DLM4me, too.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

joebloggs

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Re: DLM4me's Update
« Reply #22 on: April 10, 2009, 11:15:25 pm »
Fantastic news!  Wow, so many great surgeries the last couple of months eh???  Hope that gives people awaiting their surgery date a good feeling!

Everyone is rocking it!
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Right sided AN 2.7cm at last MRI.  Hearing loss/facial numbness.  Translab scheduled March 11th 2009.  Translab at Royal Melbourne Hospital, Australia successful!  Total tumour removed, SSD, no facial issues, numbness has left the building, balance issues but they'll get better and I'm loving life!

moe

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Re: DLM4me's Update
« Reply #23 on: April 11, 2009, 12:43:50 am »
AWESOME news. I know she was worried. Here's to a good recovery :)
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Rich56

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Re: DLM4me's Update
« Reply #24 on: April 11, 2009, 09:29:16 am »
Quote from: sgerrard on April 10, 2009, 10:53:26 pm
Okay, if she is over the surgery and doing pretty well, it is time to ask the question that is on everyone's mind.

What does DLM4me really mean? I think it sounds like the license plate of an inveterate card player, myself.  ;D

And best wishes to postie DLM4me, too.

Steve

DiLeMma4me,  ???

Hi DLM4me,

As the others have said, it sounds like another successful surgery.  That's fantastic ;D ;D

Hope you have a comfortable and speedy recovery,

Rich & Scarlett

P.S. Thank you for the updates Nancy, they're very much appreciated ;)
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SML (Scarlett's) other half, she had - 1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid on 3/18/09 at MGH in Boston, MA. Dr. Barker & Dr. Lee of MGH/MEEI
no facial issues, SSD right side, balance issues to work on.
The AN Calendar is here: http://www.my.calendars.net/AN_Treatments

MAlegant

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Re: DLM4me's Update
« Reply #25 on: April 11, 2009, 09:48:54 am »
Great news!! Thanks for the update.
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Kaybo

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Re: DLM4me's Update
« Reply #26 on: April 11, 2009, 02:49:32 pm »
Dave used to always type "KLT4me" before we married - my intials for him!!  I didn't think anything about it at all!! ;D

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

NL

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Re: DLM4me's Update
« Reply #27 on: April 12, 2009, 04:07:49 pm »
Hi All,

I spoke to DLM4me this morning and she sounded great. She does have some facial weakness, which the docs say will be temporary, and she was a little surprised by some double vision last night and this morning. But she is extremely upbeat, and very relieved to have finally been properly diagnosed and have the surgery behind her.

She appreciates all your support and well-wishes. (K - you cracked her up with your hokey-pokey comment. :D And Steve, I found out the origin of her username, but I'll let her tell you herself.  ;))

She may be going home tomorrow, so hopefully you'll be hearing from her sometime soon.

Nancy
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1.6 cm left AN diagnosed Oct. '07
1.9 cm on 2nd MRI, May '08
Retrosigmoid surgery at House Clinic/St. Vincent's on 8/6/08
(no post-op dizziness, nausea, facial or balance issues)
Thankful for a fantastic team of doctors - Dr. Rick Friedman, Dr. Marc Schwartz, & Dr. Michael Stefan

mimoore

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Re: DLM4me's Update
« Reply #28 on: April 12, 2009, 06:58:07 pm »
Wahoooooo Great news!
Thanks Nancy for the updates. Let her know we are sending healing vibes her way.
Hugs Michelle  ;D
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

leapyrtwins

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Re: DLM4me's Update
« Reply #29 on: April 12, 2009, 08:53:41 pm »
Quote from: NL on April 12, 2009, 04:07:49 pm
And Steve, I found out the origin of her username, but I'll let her tell you herself.  ;))


I can't wait to hear what DLM4me means - I've been wondering since she joined us.

Glad to hear she's going to be going home soon.

Thanks for the update, Nancy  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways
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