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Author Topic: This week (April 12) in the Stormy World of the AN  (Read 7930 times)

Keri

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Re: This week (April 12) in the Stormy World of the AN
« Reply #15 on: April 12, 2009, 09:33:14 pm »
Ditto on the best wishes for Seal, Laura and Peggy on surgeries and Mitch on the BAHA. Congrats to Sue!

Thank you Tex, I mean Patrick for doing the MS ride. My mom has had multiple sclerosis for 35 or so years. I hope you have good weather and it's not too Texas hot.

Thank you, David, for keeping up with everything!

Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

anissa

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Re: This week (April 12) in the Stormy World of the AN
« Reply #16 on: April 12, 2009, 10:12:37 pm »
Thinking about and praying for Seal, Garzap, and Lauralynn as you go for surgery this week.  May they go well with excellent recoveries.

Sue, congrats on your 3 yr. anniversary!

Patrick, all I can say is, "Wow", how amazing.  I have two friends with MS and I appreciate what you are doing for them.  Thank you!

Mitch, all the best for your BAHA surgery!  I hope you have fast healing and that the wait for the processor goes quick!

LADavid, thanks for keeping us posted!  Have a great week everybody!

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Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

ppearl214

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Re: This week (April 12) in the Stormy World of the AN
« Reply #17 on: April 13, 2009, 11:10:02 am »
Sue, knew you were on my heels when it came to our treatments.. and hun.... WE DID IT! Congrats on 3 yrs, you toastie postie! You have come a longggggggg way, bebe!   :-*  :-*

Patrick, you G-D-send! Wow! :) Great job!

Mitch, wellness wishes for the procedure... and before you know it, the processor will be on and working and hoping it brings you much joy!


Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

TaraT

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Re: This week (April 12) in the Stormy World of the AN
« Reply #18 on: April 13, 2009, 11:14:24 am »
Good luck to Steve, Peggy and Laura on your surgeries.  Prayers for safe surgeries and quick recoveries sent your way.

Mitch - Good luck on your BAHA surgery!  As you know, Dr. Chen is amazing!

Sue - Congrats on your 3 year anniversary.

Patrick - Have a great ride!

Tara
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1/7/09 2 cm AN diagnosed
3/24/09 Translab surgery
Dr. Chen and Dr. Aziz, AGH, Pittsburgh, PA
SSD right ear
Facial paralysis right side 3/6

Seal

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Re: This week (April 12) in the Stormy World of the AN
« Reply #19 on: April 15, 2009, 07:43:00 pm »
Back home this afternoon!     Does this qualify for a record?   Dr McKenna said tomorrow, but the others all said I could go home, SO I DID!    Retrosig went well.   8.5 hours, but mostly because it was cystic.   Dr. Barker did yoeman's work peeling it off the brain stem.   So far, the numbness is going away. no bad vertigo, no puking, and minor pain.     I could not have hoped for better.    Thanks to you all for the support & see you soon online.

Steve

PS: they need to fix the pot holes & ruts on the Southeast Expressway & Rte 95 this summer..........................
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Diagnosed 1/14/09 - 2.4cm AN right side --- about 70% cycstic
Retrosigmoid wiih McKenna & Barker - total removal successful on April 13th. 
Issues: balance, facial & mouth numbness, hearing loss right side
Results:   numbness gone, balance is good, SSD right side. Great results.

suboo73

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Re: This week (April 12) in the Stormy World of the AN
« Reply #20 on: April 15, 2009, 08:25:19 pm »
Awesome, Steve!  Home again, home again, jiggety jog (oops, watch out for those potholes).
Congrats on the great outcome and quick exit from the hospital!

Thoughts and prayers  to you and your family.
Sincerely,
Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

leapyrtwins

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Re: This week (April 12) in the Stormy World of the AN
« Reply #21 on: April 15, 2009, 08:28:29 pm »
Wow, Steve/Seal - terrific update on yourself.

Very impressive!!  You did good - as did your docs.

Any idea if you got to keep your hearing? or do you find that out later?

Welcome home, postie!  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sgerrard

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Re: This week (April 12) in the Stormy World of the AN
« Reply #22 on: April 15, 2009, 08:28:46 pm »
Quote from: Seal on April 15, 2009, 07:43:00 pm
Back home this afternoon!     Does this qualify for a record?

You will have to compare notes with Ernie.  ;)

Congratulations on a successful surgery and quick return home. Take it easy for a while.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

EJTampa

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Re: This week (April 12) in the Stormy World of the AN
« Reply #23 on: April 15, 2009, 10:02:44 pm »
Quote from: sgerrard on April 15, 2009, 08:28:46 pm
Quote from: Seal on April 15, 2009, 07:43:00 pm
Back home this afternoon!     Does this qualify for a record?

You will have to compare notes with Ernie.  ;)

Congratulations on a successful surgery and quick return home. Take it easy for a while.

Steve

Maybe an MGH record? :).  I was home the day after surgery.  I felt good, and wasn't about to spend another night in ICU!
 
Of course, if we go by your sig, then you've been in the hospital for almost a  month!  :o
 
Ernie
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-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

Keri

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Re: This week (April 12) in the Stormy World of the AN
« Reply #24 on: April 15, 2009, 10:34:45 pm »
Hi Steve / Seal,
Glad you're home and doing well! That's great! Do take it easy.
Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

stoneaxe

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Re: This week (April 12) in the Stormy World of the AN
« Reply #25 on: April 15, 2009, 10:54:03 pm »
Great news on getting out Seal.

Hope everything went well on Tuesday for Peggy and Laura

Let us know how you like it Mitch.

Sue...while the anniversay of your GK may not be worthy of a wild party (or maybe it is) its certainly worthy of a couple beers or a glass of wine. Happy Anniversary.

You go Patrick. I'm in training myself (fingers crossed there's no interuptions)

Thanks David
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

NancyMc

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Re: This week (April 12) in the Stormy World of the AN
« Reply #26 on: April 16, 2009, 02:34:24 am »
Steve,
You got me beat!  I suggested frequently they let me go on Saturday morning after Wednesday surgery, and they couldn't argue for staying.
You sound like you're flying just as I was when I got out of there.  I was going to see if I could reach the floor today, but you would have been gone!
Did you have Tierney and McCall and the Swiss anaesthesiologist?  What a team!  Did you see that cool microscope in the corner?  I think they said it is Barker's exclusively.
Enjoy the beautiful weather now.
Welcome home, and yeah, the roads north suck, too.
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

Seal

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Re: This week (April 12) in the Stormy World of the AN
« Reply #27 on: April 16, 2009, 07:16:14 am »
Thanks everyone.   Ernie......... the next day???   HOLY ----- !!   You beat me on that one.    They said they only had one other patient go home from MGH on the second day.         Great outcome, great doctors.     Mass General Hospital.   MGH:   also  Man's Greatest Hospital,  Must Give Heprin......... and a few others that I can't print here!!! 

Nancy, they need to do alot of road work this summer!   I had Oleg who I assume was the Swiss guy.    I think McCall assisted McKenna becaue they were concerned about the cycstic nature.     McKenna stated that "this was not an operation for the a fellow" and that gave me comfort that he would be doing it.  Barker was so busy this week that I never say him.     All I know is that it took him a long time to peel the remaining shell away from all the nerves and stem.  It must have been like trying to pick up wet toilet paper.   Tedious.       Yep, its just good to be home....................
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Diagnosed 1/14/09 - 2.4cm AN right side --- about 70% cycstic
Retrosigmoid wiih McKenna & Barker - total removal successful on April 13th. 
Issues: balance, facial & mouth numbness, hearing loss right side
Results:   numbness gone, balance is good, SSD right side. Great results.

Jim Scott

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Re: This week (April 12) in the Stormy World of the AN
« Reply #28 on: April 16, 2009, 08:42:45 am »
Steve:

Congratulations on a successful surgery, rapid hospital exit and what I assume will be a swift and total recovery.  Well done.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

NancyMc

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Re: This week (April 12) in the Stormy World of the AN
« Reply #29 on: April 16, 2009, 08:52:53 am »
Mine was a little cystic, too, but I had seen McCall at initial pre-op appts, so I just thought he was the only guy who assisted McKenna.  I hardly saw Barker either, but he did drop in my last night in the evening still in scrubs from OR and once on Saturday morning.  I was feeling a little neglected.  I never saw him in the OR, so I wondered if he'd even been to the event.
Did you have the sole or the fresh fruit?
aka Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness
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