vestubular decline??

[cin605]

I went to dartmouth today to vestub.rehab specialist back on the balance master.I went fron 25% WORKING TO 17% .
i stopped rehab 3 weeks ago as advised by neaurologist.
I am going to restart tomorow.
The only thing i could think of was i was having an o.k. day first time in Jan. or becouse i stopped rehab for 3 weeks.oh yeh!This time i was barefoot as opposed to last time i had hiking boots on.
Any thoughts???

[LADavid]

I definitely have input on that one.  When I was released from the hospital, my balance was a little wobbly but fine.  Over the next 4 or 5 months it worsened.  I started Physical Therapy for my face and balance 6 months after surgery.  When the PT evalutated my balance last May, my vestibular senosory ratio was at 20% -- in October it was 40% -- and last month 50% -- all abnormal.  There have been periods where it got worse.  Only my visual ratios have been acceptable.  The word from my PT, stick with rehab and stick with my exercises.  As far as the hiking boots and barefeet -- I can only guess that the hiking boots would provide more stability.

David

[cin605]

Hi-thanks David.My visuals are same as my vestube. at 17% they were also higher in jan.
Back to rehab.!The nausea is really getting to me today.Went out to brunch w/ mom.She smokes in her car..not w/ me in it becouse she knows my smell sensitivity.Eyes are gone ...ear is gone...but i still have the Touch!lol
My smell has seemed to increase.i can not tolerate perfume smoke or anything strong.
Finalyy found neck coller that fits...I had a universal one..TOO BIG...i am 5ft 115 pounds.I went to mediacal supply store & they had a small one.

[stoneaxe]

All I know is that extreme therapy has worked wonders for me. On the odd occasions where I stopped for a couple of weeks my balance came crashing down...literally. I don't even think about stopping now...that's why I paddle my board even in the dead of winter in New England.

Funny you mention the increased sensitivity to smells. I never equated the two but shortly before ny AN was diagnosed I started to develop a sensitivity to scents. The sicky sweet scents really get to me and can kick off a headache.

[LADavid]

Cindy
Like Bob said about paddle-boarding, I found to be true of kayaking.  It seems to help.  I am sorry to hear about your visuals though.  I think that have acceptable visuals is the only thing that has gotten me as far as I have.  I would definitely stick with PT if I were you.  I'm not stopping it until all my ratings are in acceptable levels.
Best wishes
David

[cin605]

yes,this is my new plan.Its all so frustrating my left eye is not tracking things well & will follow object stop when it stops then jump
past it.I am having major muscle spasms in neck n head that actually cause my AN ear to visually move.