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Author Topic: This Week (4/26) in the Pandemonic AN World  (Read 6388 times)

LADavid

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This Week (4/26) in the Pandemonic AN World
« on: April 26, 2009, 06:54:36 pm »
Since Swine Flu is in the news this week and the word pandemic is being bantered about, I thought I would jump on the bandwagon.  Anyone know the origins of the word?

What I know about last week:

Mike (mikjul1) and Lisa (Sefra22) started their race to the processor with successful BAHA surgeries.

Patrick (Texsooner) completed the rain delayed MS 150.

And the NE Brunch Bunch ate Apple Dumplings.

So what's going on this week.

Monday, Marybeth (m4guzman) from New Jersey is having a Mid-Fossa at NYU.  Best wishes for a great surgery Marybeth.

Tuesday's a busy day starting off with Debbi's first year anniversary visit to the Tube o' Gloom.  I'm sure you're well prepared with Valium -- so have a pleasant tube visit and hoping for an un-remarkable scan.

Next up, Laura (Allegro17) from Houston who ran the Boston Marathon last week is having a Endoscopic surgery here in LA and recovering in New York.  A whirlwind AN tour.  Have a great surgery Laura.

Then Patty (cjtender) from the New York area is having a Retro Sig at Sloan Kettering.  Best wishes for a successful surgery, Patty.

Wrapping up the day, Jan (leapyeartwins) holder of the most posts record, is having a 2nd year visit to the T o'G MRI at Hinsdale in Chicago.  May your scan too be unremarkable, Jan.

On Wednesday, Sara (saralynn143) from Jefferson City, MO is having an ophthalmological follow-up visit.  Best wishes for a good check up, Sara.

Then rounding out the week on Thursday, Patrick (Texsooner) from Hosuton who get two mentions  this week is celebrating his 49th Birthday.  Have a great one Patrick.

And finally on Thursday, Jo (tenai98) from Ontario has a follow-up visit with the ENT.  Hope everything goes well, Jo.

And that's it for this week.  Have a great week everyone.

David

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Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

sgerrard

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Re: This Week (4/26) in the Pandemonic AN World
« Reply #1 on: April 26, 2009, 07:51:49 pm »
The Online Etymology Dictionary says:
1666, from Gk. pandemos "pertaining to all people," from pan- "all" + demos "people."

Lest you think pandemic is related to pandemonium, be advised thus:
1667, Pandæmonium, in "Paradise Lost" the name of the palace built in the middle of Hell, "the high capital of Satan and all his peers," coined by John Milton (1608-74) from Gk. pan- "all" + L.L. dæmonium "evil spirit," from Gk. daimonion "inferior divine power," from daimon "lesser god"

In case you are wondering about etymology, it says this:
1398, from Gk. etymologia, from etymon "true sense" (neut. of etymos "true," related to eteos "true") + logos "word."

I will stop there.  ;D

Big best wishes to the upcoming surgeries for Marybeth, Laura, and Patty.

Regular sized best wishes for the rest of the bunch. Hope all goes well.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

anissa

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Re: This Week (4/26) in the Pandemonic AN World
« Reply #2 on: April 26, 2009, 11:39:16 pm »
Wow, busy week! 
Best wishes to Marybeth, Laura, and Patti having surgery, you all will be in my thoughts and prayers.  May your surgeries be great and your recoveries swift.
Happy birthday Patrick and way to go on the MS150!
Good luck to Jan and Debbi in the tube o' gloom visits, I know you'll be glad to have that behind you!
Sara & Jo, I hope you have happy doctors and happy news on your follow-up visits. 
Have a fab week everyone!
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Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

suboo73

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Re: This Week (4/26) in the Pandemonic AN World
« Reply #3 on: April 27, 2009, 03:06:28 am »
Quote from: sgerrard on April 26, 2009, 07:51:49 pm
The Online Etymology Dictionary says:
1666, from Gk. pandemos "pertaining to all people," from pan- "all" + demos "people."

David,  Thank you for the update in such a busy week!  ;D

Added late to the calendar:  Cliff ('Greengiant71') Translab surgery on Tuesday.

To ALL those having surgery - my thoughts and prayers are with you, too.
Please keep us posted on your updates - thanks!

To those having MRI scans - my best wishes for totally unremarkable, boring pics, the kind we all want to have.
To those having follow-up doc visits - be calm and steady, i am sure the updates will be great!

Sincerely,
Sue

PS.  I would like to see Pandemic relate to a positive rather than negative conotation...  Can we have Pandemic good health for all - that would be fantastic!
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suboo73
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moe

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Re: This Week (4/26) in the Pandemonic AN World
« Reply #4 on: April 27, 2009, 09:13:08 am »
Thanks, David for the weekly update.
A lot to remember!
Anissa, how are you doing BTW? Home with 4 kids post brain surgery-I know you sailed through the surgery....however nothing like the real world coming back at ya! :o
Hope you are getting help at home (sorry about the hijack).
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

NancyMc

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Re: This Week (4/26) in the Pandemonic AN World
« Reply #5 on: April 27, 2009, 09:21:10 am »
I need a nap, being off steroids now, after reading all that is going on this week.  Last week was so relaxing on the forum, just following up on Lauralynn, so we'd all best rest up and be prepared for cheering on FOUR post-op recoveries.  Oh, my!
Positive vibes to all surgical, tubical, and follow-up patients and 49 Forever, Patrick, as I plan to be 59 Forever later this year!
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Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

wendysig

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Re: This Week (4/26) in the Pandemonic AN World
« Reply #6 on: April 27, 2009, 10:32:26 am »
Thanks David for the great reminder. 

Marybeth - I hope your surgery went well and you are on the road to a speedy and uneventful recovery.  The first few days are the worst, so rest, heal and get well.

Debbi - I know how much you dislike the TOG.  Hope the doc gave you some Valium and you breeze through it and see with your own eyes and Ethel is truly gone.

Laura - Wishing you a great operative outcome and quick uneventful recovery.

Patty - Sending wishes for a wonderful surgical outcome and recovery.

Jan -  Sending best wishes for your second post-op visit to the TOG.  I hope it shows nothing new.

Best wishes to Sara -- hope your checkup brings good news.

Patrick - Happy birthday -- I hope the doc has a good news report for you -- that would be the best present of all, I'm sure.

Jo - Hope your follow-up visit goes well.

Wendy

Best wishes,

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

saralynn143

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Re: This Week (4/26) in the Pandemonic AN World
« Reply #7 on: April 27, 2009, 01:30:30 pm »
Looks to be a very busy week here. Best to everyone for excellent results in procedures and good news in follow-ups.

I do not personally anticipate anything other than a quick look-see and reschedule in four months.

Since I will be in St. Louis, I plan to stop and see if I can find a decent used Subaru Forester to replace our van that was totaled last month. That is, if the insurance company ever gets us a check.


Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
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Fitted for scleral lens 5/9/13

Debbi

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Re: This Week (4/26) in the Pandemonic AN World
« Reply #8 on: April 27, 2009, 01:46:28 pm »
Hey all-  Yep, I am loaded with valium and am about as ready as I can be for tomorrow's visit to the Tube of 1,000 Devils!  Can you believe that my surgery was 1 year ago this Thursday?  Holy cow. 

I can so vividly remember what I was feeling at this time last year - hopeful, scared, anxious and a raft of other emotions.  Emtional roller coaster is an apt description of what everyone goes through between diagnosis and treatment.  My heart goes out to every person on this board who is on the countdown to treatment and all I can tell you is that you just have to take it one day at a time and have faith. 

As always, I am eternaly grateful for all the wonderful people here - you guys all totally rock!

Debbi, prepared to square off against the Tube of Gloom!
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Jim Scott

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Re: This Week (4/26) in the Pandemonic AN World
« Reply #9 on: April 27, 2009, 02:12:28 pm »
Marybeth, Laura & Patty - ladies, you have my hopes and prayers for successful, complication-free surgeries this week

Debbi and Jan - I sincerely hope your respective MRI scans are completely unremarkable.
 
Sara - I wish you a successful ophthalmological follow-up. 

JO - I also hope your follow-up doctor visit is encouraging. 

Patrick - Happy Birthday!  Enjoy the final year of your 40th decade. 

David, as always, our individual and collective appreciation goes out to you - it may even become pandemic.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

ppearl214

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Re: This Week (4/26) in the Pandemonic AN World
« Reply #10 on: April 27, 2009, 03:10:10 pm »
Thanks David! Once again, great job! :)

for all procedures this week... wellness and speedy recoveries to you all!

for those celebrating their *coff* 21st birthday, may it be VERY speshal! :)

for those in follow up mode... continued wellness wishes to you!!!!!!!!!!!!!
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leapyrtwins

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Re: This Week (4/26) in the Pandemonic AN World
« Reply #11 on: April 27, 2009, 03:39:42 pm »
Quote from: Jim Scott on April 27, 2009, 02:12:28 pm
Debbi and Jan - I sincerely hope your respective MRI scans are completely unremarkable.
 

Personally I'm hoping my doc says I still have that brain  ;)

Good luck to everyone on everything - very busy week.

Jan
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Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

suboo73

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Re: This Week (4/26) in the Pandemonic AN World
« Reply #12 on: April 27, 2009, 04:25:03 pm »
Quote from: wendysig on April 27, 2009, 10:32:26 am

Sending best wishes for your second post-op visit to the TOG.  I hope it shows nothing new.

Wendy

Wendy - i like that acronym - TOG!  Now i can just tell folks i need a TOG next time!
-------------------
Let's not forget Cliff, way out there in Hawaii i think!

Best wishes and speedy recoveries to all, even in the "TOG!"

Sue
(I didn't like my last TOG either, but you gotta do, what you gotta so!)
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

stoneaxe

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Re: This Week (4/26) in the Pandemonic AN World
« Reply #13 on: April 28, 2009, 03:25:41 pm »
Hope all the surgeries are swift and succesful with great recoveries. the tubes of gloom are uneventful, the followups come with good news, and the birthday party has good beer...er cake!.... ;)

Best wishes all!
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

leapyrtwins

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Re: This Week (4/26) in the Pandemonic AN World
« Reply #14 on: April 28, 2009, 03:58:28 pm »
Survived the TOG earlier today - actually found it quite pleasant this time around.  Did I really say that  ???  :o

Anyway, got a souvenir CD that I haven't looked at yet - think I'll defer to my doc's judgment on the prognosis. 

Radiologist's report should be done in a few days and I asked that a copy be mailed to me.

I'm not ready to celebrate yet, but I feel quite good about the results.  Let's hope I'm not delusional  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways
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