Bob, being a "wait & watcher" for 16 years (knowing the name of AN for 9 years plus a prior 7 years of "obvious symptoms), I can relate to what you write. I feel grateful someone started a topic for the wait & watch patients. There are more of us that meet the eyes. But this is still an oddity.
In the old ANAUSA there was one who had been waiting 17 years.That was in 2002, but I knew about her since 97. And there was 2 more, plus I. I often felt out of place among the patients who had treatment.
Do you think we could keep this topic open for W&W to join.?
I also try to minimize my tumor with a reasonable diet and also use my symptoms to learn what is affecting the AN and in what way.
It is now such a long story, I will not pour it in one post, I have try this before. No response.
My success in using myself as a gunny pig is paying off in spite of the continuous growing of the tumor and the discovery at the beginning of 2 more schwannomas, one very close to the AN and one in the kidney area. All seem to have started at the same time. I have been very successful with the one in the kidney though surgical removal would be easy there.
Diet is very important, and drinking mostly water is primordial, at least to me.
Thanks for your post.
antoinette