Author Topic: OneYear MRI  (Read 5690 times)

wendysig

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Re: OneYear MRI
« Reply #15 on: April 29, 2009, 10:09:27 am »
Hi Debbi -

I wrote earlier and apparently didn't hit "post".  I'm so happy for you that the MRI went well even if you had a little help from Valium.  Love the pics -- I'm glad to see there is no trace of Ethel anywhere.!  Congratulations!!!

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Debbi

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Re: OneYear MRI
« Reply #16 on: April 29, 2009, 11:29:28 am »
Thanks everyone!  What a difference a year makes.  Hey, wait, one year ago today at this time, I was still in surgery and my poor husband and parents were pacing fretfully around NYU biting their nails.   ;D  It is just amazing how different things are a year later!!

Pooter, I know exactly how you feel - I was getting pretty anxious these last few weeks.  I suspect that Jan is right that the first is the worst. 

Nance, I told Dr. Golfinos that I had seen you recently and that you look fantastic.  He's quite pleased with himself (as well he should be.)  BTW, he's got a new Gamma Knife unit just for the brain patients that he is pretty excited about.  (Not that we ever want to see it!)  He's also now the Chair of the Neurology Dept - he seems less excited about that.   ;D
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

NancyMc

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Re: OneYear MRI
« Reply #17 on: April 29, 2009, 12:11:47 pm »
Well, congratulations again (on other thread)!  I didn't read the labels at first and thought, I wonder if she noticed all that weird stuff in her head.  I've never seen fat on an MRI before.  So that's what it looks like.
For some reason my neurotologist wants an MRI in a year, but my neurosurgeon wants in three months, so I'll be seeing the old FATHEAD in July.
You must have the biggest smile ever on your face after seeing your films.
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

yardtick

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Re: OneYear MRI
« Reply #18 on: April 30, 2009, 09:48:05 pm »
What a BRAIN  ;D


Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

leapyrtwins

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Re: OneYear MRI
« Reply #19 on: April 30, 2009, 09:55:45 pm »

For some reason my neurotologist wants an MRI in a year, but my neurosurgeon wants in three months, so I'll be seeing the old FATHEAD in July.

Well, you may and then again, you may not.

My doc has ordered both my post op MRIs with fat suppression so even though I'm a fathead, that's not evident from my MRI films.

My films also don't show any of my titanium either - mesh and screws from my AN surgery and abutment from my BAHA surgery.  Truth be told, I was a little disappointed by that.  I kind of wanted to see the "hardware" inside of my head  :D

Sorry for the hijack, Debbi.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

anissa

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Re: OneYear MRI
« Reply #20 on: April 30, 2009, 11:04:36 pm »
Congrats on the clean MRI, I loved the before and after pictures, thanks for posting them!
Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

Pooter

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Re: OneYear MRI
« Reply #21 on: May 01, 2009, 03:14:33 pm »
My turn in the tube 'o gloom next week! 

Will this be your first MRI post op, Pooter?

I found myself really stressing before my first one, but strangely calm for this one (2nd post op).  Maybe I'm just falsely confident, but I'm finding I'm not worried at all.

Best of luck to you.  Did you put your "date" on the AN Calendar?

Jan

Yes, it will be my first MRI since diagnosis.  And, yes, I did put it on the calendar.  How else am I going to make it to the big leagues of the weekly update?  :)

I've been too busy to stress about it all that much this week.  I'm sure next week will be different.  I want confirmation that it was all taken out.  And, I hope they find a brain like they did on yours! ;)

Brian
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

leapyrtwins

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Re: OneYear MRI
« Reply #22 on: May 01, 2009, 04:35:59 pm »
Pooter -

I'm fairly confident they'll see a brain; but I'm no doctor so don't hold me to that  ;) 

Can't wait to see your feature in David's weekly post  ;D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: OneYear MRI
« Reply #23 on: May 01, 2009, 04:43:09 pm »
Deb~
I guess I missed this one!  Looks to me like there is a LOT more going on in the 2nd pic than the first (minus the big white spot) - I bet you are a LOT smarter now!! :D

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Rich56

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Re: OneYear MRI
« Reply #24 on: May 01, 2009, 04:50:35 pm »
Hi Debbi,

Happy anniversary, and congratulations on a clean MRI :)

Thank you for starting The Magic Scarf ;D

Rich & Scarlett
SML (Scarlett's) other half, she had - 1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid on 3/18/09 at MGH in Boston, MA. Dr. Barker & Dr. Lee of MGH/MEEI
no facial issues, SSD right side, balance issues to work on.
The AN Calendar is here: http://www.my.calendars.net/AN_Treatments

Kate B

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Re: OneYear MRI
« Reply #25 on: May 01, 2009, 06:47:04 pm »
Cool shots...If I may ask, how did you upload the pics so clearly?
Kate
Middle Fossa Surgery
@ House Ear Institute with
Dr. Brackmann, Dr. Hitselberger
November 2001
1.5 right sided AN

Please visit http://anworld.com/

wendysig

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Re: OneYear MRI
« Reply #26 on: May 04, 2009, 10:12:17 pm »
Jan,

I was also disappointed to hear that our titanium hardware doesn't show up in an MRI -- I was also hoping to see what it looked like, especially since I can feel it under my skin.  It definitely feels different from the bone on the other side of my head and was really curious to see what it looks like.  I guess I'll just have to stay curious.

Wendy 

Sorry for the hijack Debbi  :)
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!