Author Topic: This Week (May 3) in the Tempestuous World of the AN  (Read 6747 times)

ppearl214

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Re: This Week (May 3) in the Tempestuous World of the AN
« Reply #15 on: May 05, 2009, 03:07:06 pm »
as usual, I'm late at the thread BUT, David is on top of it, as always! Great job, David! :)


Sending wishes to everyone this week, for good To'G visits, for procedures being done... and continued wellness wishes to everyone!

Be well, all!
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Pooter

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Re: This Week (May 3) in the Tempestuous World of the AN
« Reply #16 on: May 05, 2009, 03:55:46 pm »
Then on Wednesday, Brian (pooter) has a date with the Tube o' Gloom.  Brian, being a musician, maybe you can come up with a song based on all the booming and banging in the Tube.  It would make an interesting bass line.
[...]
Finally, on Friday, Brian (pooter) is celebrating his one year Retro Sig anniversary.  Wow, and it just seems like a year ago.  Celebrate big, Brian.

David

Why does the book that goes like "hands and figers, hands and thumbs, dum diddy dum diddy dum dum dum" come to mind?  :)

Jan:  I know, it seems like yesterday when I was here asking all sorts of questions about what to expect after surgery, etc..  I was so ill-informed.  Not that I am much more informed now, but I have the experience to talk about.  Thanks for the help!

Thanks everyone for the well wishes.  I've been busier than a one-eyed cat watching 2 mouse holes so I haven't been around much lately.  I guess it helps to keep the mind off of the MRI trip tomorrow.  I'll report back when I know something.  My Dr. visit is on 5/18 to review the results.

Regards,
Brian

Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Kaybo

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Re: This Week (May 3) in the Tempestuous World of the AN
« Reply #17 on: May 05, 2009, 08:45:35 pm »
Oh my goodness - that was one of my FAVORITE books as a kid & I LOVED to read it to my girlies!!  Hand, Hand, Finger, Thumb....Good Luck, Pooter!

K ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Lilan

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Re: This Week (May 3) in the Tempestuous World of the AN
« Reply #18 on: May 08, 2009, 07:50:06 am »
I'm ready to hear from Wetever (or her authorized agent!  :)


Facial nerve hemangioma. Probable dx 7/2008 confirmed 4/2009. Combo middle fossa and translab to remove the blood vessel malformation and snip ruined hearing and balance nerves by Drs. House and Brackmann @ House 6/2009. Doing great!

saralynn143

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Re: This Week (May 3) in the Tempestuous World of the AN
« Reply #19 on: May 08, 2009, 11:57:50 am »
Has anyone heard from LADavid this week? I haven't seen a post from him all week. Hope he is off somewhere exotic having a wonderful time.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

leapyrtwins

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Re: This Week (May 3) in the Tempestuous World of the AN
« Reply #20 on: May 08, 2009, 12:12:46 pm »
Has anyone heard from LADavid this week? I haven't seen a post from him all week. Hope he is off somewhere exotic having a wonderful time.


I hope he's off somewhere exotic having a wonderful time, too.  But if he is, I hope he doesn't stay too long.

Who would do the weekly update if he doesn't return??  It just wouldn't be the same without David  :(  :'(

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

leapyrtwins

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Re: This Week (May 3) in the Tempestuous World of the AN
« Reply #21 on: May 08, 2009, 12:23:23 pm »

As for me, my MRI results arrived in the mail yesterday and, although I have no MD behind my name, I think the radiologist's report says I'm "clean".  I'm waiting for my neurotologist's official confirmation before I celebrate though - since he does have an MD behind his name  ;D


Official word today from my doc - my MRI is clean  ;D  Celebration can start now - just in time for Mother's Day - I wonder if the kids will make me breakfast in bed.

Next MRI in one year.  Life is good  8)

Jan


Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: This Week (May 3) in the Tempestuous World of the AN
« Reply #22 on: May 08, 2009, 12:28:26 pm »
GREAT news, Jan!! ;D

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Jim Scott

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Re: This Week (May 3) in the Tempestuous World of the AN
« Reply #23 on: May 08, 2009, 02:32:58 pm »
Jan ~

My heartiest congratulations on your clean MRI report. 

Happy Mother's Day!  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

leapyrtwins

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Re: This Week (May 3) in the Tempestuous World of the AN
« Reply #24 on: May 09, 2009, 11:27:00 am »
Thanks, Jim.

I appreciate it  ;D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Lilan

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Re: This Week (May 3) in the Tempestuous World of the AN
« Reply #25 on: May 09, 2009, 12:12:25 pm »
Jan, congrats on the excellent news!

Facial nerve hemangioma. Probable dx 7/2008 confirmed 4/2009. Combo middle fossa and translab to remove the blood vessel malformation and snip ruined hearing and balance nerves by Drs. House and Brackmann @ House 6/2009. Doing great!

wendysig

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Re: This Week (May 3) in the Tempestuous World of the AN
« Reply #26 on: May 09, 2009, 04:42:42 pm »
Jan -

Congratulations on getting good news regarding your MRI -- one of the very best presents you could have gotten!!   ;D

Wishing you a wonderful and Happy Mothers day!

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

LADavid

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Re: This Week (May 3) in the Tempestuous World of the AN
« Reply #27 on: May 09, 2009, 09:21:45 pm »
I'm here.  Just a very busy week fighting with the IRS over their mistake (funny how they won't owe up to one of theirs) and helping my daughter out with work.
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

Kaybo

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Re: This Week (May 3) in the Tempestuous World of the AN
« Reply #28 on: May 10, 2009, 06:34:52 am »
Glad everything is OK, David!  We missed you!  ;D

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

saralynn143

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Re: This Week (May 3) in the Tempestuous World of the AN
« Reply #29 on: May 10, 2009, 09:56:09 am »
Oh, that's too bad, David. I was having a grand time envisioning you in all sorts of exotic locales. I'm glad you're back.

Take care,
Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13