Author Topic: Pics added ..... Brag for me! ;)  (Read 2419 times)

Denisex2boys

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Pics added ..... Brag for me! ;)
« on: May 07, 2009, 09:15:57 am »
Well, Brendan and I completed the 5k sprint ...... I personally raised over $1,400. !!!!  the gold for our local chapter was $21,000. and all total we raised over $44,000.!  WooHoo!

It was a very surreal day ...... on one extreme a very happy, proud moment and on the other end very depressing and sad :(  The 'kicker' and most emotional moment for me was when all the SURVIVORS of brain tumors got our group picture done - - this was all of us - - supporters wore white t's and survivors wore blue t's - - there were not a lot of survivors :( - but a couple of hundred runners in support of us - they gave a a huge standing ovation - it really was a nice moment - one gal there had AN surgery as well - very rare around here .....

... and on the other end .....

Our wee dog (a Japanese Chin) - had not been doing too well in the past 3-4 weeks - he was 16 years YOUNG!  Dan and I made the decision that his day may be here - we had taken him to the ER Vet a couple of weeks ago with a bowel issue and things had progressively been getting worse - - our Vet's new clinic was scheduled to open on the 5th of May .......... strangely enough we had been treating Suki for a couple of months for an ulcerated cornea (the very thing we are all avoiding by use of lubricants and drops) - - he has always been a healthy wee companion but since my surgery has seemed to age ... he was struggling with the stairs, his hearing, eyes, and then his bowels and urine ..... I wanted to be with him but Dan (I think) purposely made his appointment with the vet for the very time that I was to do the Sprint - - he did not think I could hear what we both knew the vet may say ......

Brendan and I arrived for the Sprint and the skies opened up - not just rain - but a HUGE storm - - I really thought that the Sprint would be postponed - - - I looked at my watch and it was the very time Dan was to be at the Vet..... and then 'miraculously' is cleared up and got sunny - - I knew in my heart then that the Vet had confirmed what Dan and I already knew - and that he was gone ...... he was in kidney failure :(

So the day was happy and sad .... and I would like to share a few pictures with you ........  - - I am sorry I did not post sooner - - but I have been an emotional basket case of late ....... 

Brendan and I - THUMBS UP!




The Group!




My Suki - now in Heaven ....





;)
This weekend is the weekend that I am in the 5K for the Brain Tumor Foundation of Canada annual Spring Sprint .... I have raised over $1,300. in sponsorships!  Brendan is running with me (my 9 year old son) - - I asked him if he still wanted to since it is supposed to rain on Saturday and he said "yes" - 'cause it is Mommy's Day this weekend!  :)  What a sweetie!

So .... this is a culmination of really, really awesome rehab to gain my balance back - since the balance nerve on the left was 'squashed' by the tumor - - I may stumble and trip up still - but I am walking up to 3 miles on my lunch hour, am now back to work FULL-TIME - and have completed 5 weeks of (1 class per week) of Body Boot Camp.  I also just tried riding my bike - -still a bit wobbly on my bike but with practice it will come back.

I still am numb on the internal part of my left cheek, tongue and throat, feeling is slowly coming back to the back of my head, hair is growing in nicely (albiet funny), no tears yet - - BUT ALL IS GOOD!

Wish me luck this weekend! .... I still cannot believe that I have come so far since my Oct. '08 surgery - - if I had been told then that I would be feeling this way now - I would have NEVER believed it - - so for all of you that have just recently had surgery - - I too had a really rough time of it - but you DO RECOVER with determination and patience!

Thank you all for your support and friendships <3
« Last Edit: May 20, 2009, 10:59:47 am by Denisex2boys »
- Oct. 16/08 - 12 hour 'blob-ectomy' at LHSC in London, ON - Dr. Lownie and Parnes
- Some internal facial numbness (cheek, tongue, eye), SSD, headaches (getting better), dry eye, some balance issues..... but othwise AWESOME!

NancyMc

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Re: Brag for me! ;)
« Reply #1 on: May 07, 2009, 10:56:07 am »
Good luck, and congratulations!
NancyMc
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

lori67

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Re: Brag for me! ;)
« Reply #2 on: May 07, 2009, 11:11:12 am »
Awesome Denise!

I hope the rain holds off for you.  I know you'll do great.  But, then again, we've all believed you could do it all  along!

Send pictures!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

cindyj

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Re: Brag for me! ;)
« Reply #3 on: May 07, 2009, 01:14:43 pm »
That's great to hear, Denise!  Enjoy the day and let us know how it goes :)

Cindy
rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

MAlegant

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Re: Brag for me! ;)
« Reply #4 on: May 07, 2009, 02:03:25 pm »
Wow, so great Denise.  And you will have your boy with you!  Now that's what I"m talking about...
Best,
Marci
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Jim Scott

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Re: Brag for me! ;)
« Reply #5 on: May 07, 2009, 02:23:15 pm »
Hey, Denise ~

Many thanks for a heartening post.  It's both amazing and inspiring to read that, just 7 months post-op, you're doing a 5 kilometer (approximately 3 mile) walk to raise money for the Brain Tumor Foundation of Canada - and with your 9-year-old son, no less!  Let's all hope for a dry day.  I admire the fact that you're determined not to allow any remaining AN/surgery deficits to stop you from regaining control of your life.  We use the word 'inspirational' a lot around here and people like you are the reason, Denise.  Good luck this weekend!  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

leapyrtwins

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Re: Brag for me! ;)
« Reply #6 on: May 07, 2009, 06:33:19 pm »
Denise -

this is just phenomenal. 

Good luck to you and Brendan  ;D

If you can get someone to take a picture of you guys, please post it for us.

I'd love to see it.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

stoneaxe

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Re: Brag for me! ;)
« Reply #7 on: May 07, 2009, 08:50:27 pm »
Awesome....what a great way to spend Mother's day. Not only you but he will remember it for the rest of his life. The feeling you'll get crossing the line is going to be amazing. Congratulations....you've already run a great race.
Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

EJTampa

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Re: Brag for me! ;)
« Reply #8 on: May 08, 2009, 08:48:51 am »
Way to go Denise!  Good luck this weekend and Happy Mothers Day! :)
 
Ernie
-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

msmaggie

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Re: Brag for me! ;)
« Reply #9 on: May 08, 2009, 09:11:56 am »
Wow!  You make us all proud!  And what a sweet boy to want to do this for his mom :).  Hope the weather holds for you.  Good luck!

Priscilla
Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

ppearl214

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Re: Brag for me! ;)
« Reply #10 on: May 08, 2009, 09:33:16 am »
Denise... honestly, you rawk! :) thank you for running for all of us.... for those that have endured before us, for those just entering the journey.... please keep all of us in your hearts when the run gets a bit tough, or if Brendan starts to slow down... just remind yourselves that you are doing it for so many that need the help!

Truly, congrats for a terrific job! You've worked hard to achieve this! Go get 'em! :)

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

moe

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Re: Brag for me! ;)
« Reply #11 on: May 10, 2009, 08:42:00 am »
What  a nice mother's day present, Denise to have your 9 year old with you.  Congratulations and Happy Mother's Day.
We need to have Mary Beth read this! With determination and patience, you will recover and even do great things.
That is AWESOME that you raised that much money for the brain tumor foundation of Canada.
Way to go :)
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Keri

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Re: Brag for me! ;)
« Reply #12 on: May 18, 2009, 08:46:09 pm »
Hi Denise,
Just saw this. I hope your 5K went great and I think it's so neat that your son ran with you. May you have many more happy runs / races together. Congrats on raising so much support.
Great job!
Keri
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

4cm in Pacific Northwest

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Re: Brag for me! ;)
« Reply #13 on: May 18, 2009, 10:39:43 pm »
WOW!!

You have sure come a long way. Great to see you are moving forward at such a fast pace ... and paying it forward too.

Right on!

DHM (AKA "4")
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

Denisex2boys

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Re: Pics added ..... Brag for me! ;)
« Reply #14 on: May 20, 2009, 11:00:36 am »
I updated with pics at top .......
- Oct. 16/08 - 12 hour 'blob-ectomy' at LHSC in London, ON - Dr. Lownie and Parnes
- Some internal facial numbness (cheek, tongue, eye), SSD, headaches (getting better), dry eye, some balance issues..... but othwise AWESOME!