Author Topic: The week's (5/10) update  (Read 4446 times)

MAlegant

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Re: The week's (5/10) update
« Reply #15 on: May 11, 2009, 05:23:10 am »
Anne Marie,
I have a pull-out sofa in my apartment if you do want to come! 
Best,
Marci
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

ppearl214

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Re: The week's (5/10) update
« Reply #16 on: May 11, 2009, 05:36:23 am »
I thought you and joef got raises last year  ;)

naw, only upgrades from coach to first class seating on the Mod Leer Jet! :D
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

NancyMc

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Re: The week's (5/10) update
« Reply #17 on: May 11, 2009, 07:28:01 am »
Quote
I have a pull-out sofa in my apartment if you do want to come! 

Are you serious, Marci?  Is it a double?  I'm sure Anne Marie won't mind my snoring.  I can sing, la la la!  ;D
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

CHD63

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Re: The week's (5/10) update
« Reply #18 on: May 11, 2009, 08:35:20 am »
Marci .....

Sorry for the hijack ..... cannot resist.  Our daughter and husband are in the Tuscany region of Italy this week (one of their favorite places in the world!) so if you see a handsome couple wandering around ..... :D  Actually we are keeping their 2-year-old daughter for two weeks ......  With my balance issues it has been a fun ride!

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

saralynn143

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Re: The week's (5/10) update
« Reply #19 on: May 12, 2009, 07:57:20 pm »
I had my follow-up appointment with Dr. Neely today. At 11.5 months post-op, I scored 53 on his scale. I believe this would correspond with a weak III on the House-Brackman scale. Dr. Neely thinks that considering where I started, I have made excellent progress. I have symmetry at rest. My eyelid closes most of the way with the platinum weight, then drifts the rest of the way shut. Dr. Neely said he could see the muscle that holds the eyelid opening countering against the muscle that shuts the eyelid on the first attempt, but when I relaxed it was much better. He described my snarl as good, my smile as good except that the marginal mandibular muscle (I hope I remembered that correctly) isn't moving much so it is still lopsided. No movement in my forehead yet. Synkenesis is minimal.

I asked when I should consider starting physical therapy or facial retraining, and he said now is good. Someone will be giving me a call in the next few days to set that up. Dr. Neely does not need to see me for regular follow-ups anymore unless I feel I need one.

Yay!
Sara

MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13